Sara Holton, Craig Nelson, Elizabeth Manias, Bodil Rasmussen, Vicki Levidiotis
{"title":"澳大利亚慢性肾病妇女的生育问题、信息需求和偏好：一项探索性质的研究。","authors":"Sara Holton, Craig Nelson, Elizabeth Manias, Bodil Rasmussen, Vicki Levidiotis","doi":"10.1111/psrh.70027","DOIUrl":null,"url":null,"abstract":"<p><strong>Objective: </strong>Pregnancy is associated with adverse maternal and fetal outcomes for women with chronic kidney disease (CKD). Yet few women with CKD report receiving information about pregnancy and often experience difficulties making informed childbearing decisions and optimizing pregnancy outcomes. The aim of this study was to identify the fertility and childbearing concerns and related information needs and preferences of women with CKD living in Australia.</p><p><strong>Methods: </strong>We completed an exploratory qualitative study. Women with CKD, recruited from a public health service in metropolitan Melbourne, Australia, participated in an online discussion group hosted on WhatsApp. We analyzed the discussion group transcript for key findings.</p><p><strong>Results: </strong>Participants (N = 8) reported wanting children but often had fewer children than desired due to concerns about the impact of pregnancy on their CKD and the possible impact of CKD on a pregnancy or their child, including their baby inheriting CKD, how CKD medications may affect their baby, and the potential effects of a kidney transplant. Participants found it difficult to access relevant, up-to-date information about CKD and pregnancy.</p><p><strong>Conclusions: </strong>Women with CKD often have concerns about getting pregnant or having a baby but find it difficult to access information especially from their healthcare team. Women with CKD would benefit from relevant and current information provided at specific times such as before and after a kidney transplant or when considering pregnancy to assist them in making informed decisions and achieving their reproductive goals.</p>","PeriodicalId":47632,"journal":{"name":"Perspectives on Sexual and Reproductive Health","volume":"57 3","pages":"430-435"},"PeriodicalIF":3.5000,"publicationDate":"2025-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"Fertility Concerns and Information Needs and Preferences of Australian Women With Chronic Kidney Disease: An Exploratory Qualitative Study.\",\"authors\":\"Sara Holton, Craig Nelson, Elizabeth Manias, Bodil Rasmussen, Vicki Levidiotis\",\"doi\":\"10.1111/psrh.70027\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p><strong>Objective: </strong>Pregnancy is associated with adverse maternal and fetal outcomes for women with chronic kidney disease (CKD). Yet few women with CKD report receiving information about pregnancy and often experience difficulties making informed childbearing decisions and optimizing pregnancy outcomes. The aim of this study was to identify the fertility and childbearing concerns and related information needs and preferences of women with CKD living in Australia.</p><p><strong>Methods: </strong>We completed an exploratory qualitative study. Women with CKD, recruited from a public health service in metropolitan Melbourne, Australia, participated in an online discussion group hosted on WhatsApp. We analyzed the discussion group transcript for key findings.</p><p><strong>Results: </strong>Participants (N = 8) reported wanting children but often had fewer children than desired due to concerns about the impact of pregnancy on their CKD and the possible impact of CKD on a pregnancy or their child, including their baby inheriting CKD, how CKD medications may affect their baby, and the potential effects of a kidney transplant. Participants found it difficult to access relevant, up-to-date information about CKD and pregnancy.</p><p><strong>Conclusions: </strong>Women with CKD often have concerns about getting pregnant or having a baby but find it difficult to access information especially from their healthcare team. Women with CKD would benefit from relevant and current information provided at specific times such as before and after a kidney transplant or when considering pregnancy to assist them in making informed decisions and achieving their reproductive goals.</p>\",\"PeriodicalId\":47632,\"journal\":{\"name\":\"Perspectives on Sexual and Reproductive Health\",\"volume\":\"57 3\",\"pages\":\"430-435\"},\"PeriodicalIF\":3.5000,\"publicationDate\":\"2025-09-01\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Perspectives on Sexual and Reproductive Health\",\"FirstCategoryId\":\"3\",\"ListUrlMain\":\"https://doi.org/10.1111/psrh.70027\",\"RegionNum\":2,\"RegionCategory\":\"医学\",\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"2025/7/14 0:00:00\",\"PubModel\":\"Epub\",\"JCR\":\"Q1\",\"JCRName\":\"DEMOGRAPHY\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Perspectives on Sexual and Reproductive Health","FirstCategoryId":"3","ListUrlMain":"https://doi.org/10.1111/psrh.70027","RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"2025/7/14 0:00:00","PubModel":"Epub","JCR":"Q1","JCRName":"DEMOGRAPHY","Score":null,"Total":0}
Fertility Concerns and Information Needs and Preferences of Australian Women With Chronic Kidney Disease: An Exploratory Qualitative Study.
Objective: Pregnancy is associated with adverse maternal and fetal outcomes for women with chronic kidney disease (CKD). Yet few women with CKD report receiving information about pregnancy and often experience difficulties making informed childbearing decisions and optimizing pregnancy outcomes. The aim of this study was to identify the fertility and childbearing concerns and related information needs and preferences of women with CKD living in Australia.
Methods: We completed an exploratory qualitative study. Women with CKD, recruited from a public health service in metropolitan Melbourne, Australia, participated in an online discussion group hosted on WhatsApp. We analyzed the discussion group transcript for key findings.
Results: Participants (N = 8) reported wanting children but often had fewer children than desired due to concerns about the impact of pregnancy on their CKD and the possible impact of CKD on a pregnancy or their child, including their baby inheriting CKD, how CKD medications may affect their baby, and the potential effects of a kidney transplant. Participants found it difficult to access relevant, up-to-date information about CKD and pregnancy.
Conclusions: Women with CKD often have concerns about getting pregnant or having a baby but find it difficult to access information especially from their healthcare team. Women with CKD would benefit from relevant and current information provided at specific times such as before and after a kidney transplant or when considering pregnancy to assist them in making informed decisions and achieving their reproductive goals.
期刊介绍：
Perspectives on Sexual and Reproductive Health provides the latest peer-reviewed, policy-relevant research and analysis on sexual and reproductive health and rights in the United States and other developed countries. For more than four decades, Perspectives has offered unique insights into how reproductive health issues relate to one another; how they are affected by policies and programs; and their implications for individuals and societies. Published four times a year, Perspectives on Sexual and Reproductive Health includes original research, special reports and commentaries on the latest developments in the field of sexual and reproductive health, as well as staff-written summaries of recent findings in the field.
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