创伤性脑损伤后儿童和青少年认知沟通障碍的重要结局:一项国际多视角共识研究

IF 2.5 3区 医学 Q1 AUDIOLOGY & SPEECH-LANGUAGE PATHOLOGY
Lauren Crumlish, Anthony J Angwin, Bridget Burton, Sarah J Wallace
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引用次数: 0

摘要

目的:本研究的目的是在研究人员、临床医生和服务管理人员之间就创伤性脑损伤儿童和青少年(5-18岁)在急性期后康复及以后的认知沟通治疗的最重要结果达成共识。方法:采用国际三轮e-Delphi研究。在第一轮中,参与者回答了三个开放式问题,得出了三个发展阶段(5-11岁、12-15岁和15-18岁)的重要治疗结果。结果分析使用定性内容分析,并结合先前范围审查的结果。在第2-3轮中,结果的重要性按9分制进行排序。共识是先验定义的,至少70%的受访者将结果评为“基本”(7-9),不到15%的受访者将结果评为1-3。协商一致的结果与国际功能、残疾和健康分类(ICF)相联系。结果:所有年龄组共有360个结果符合共识。对于5至11岁的儿童,ICF的重要结果与身体功能(n = 52, 13.1%)和活动/参与(n = 50, 12.6%)组成部分几乎同等相关。“成功开始上学”、“返回学校”和“学校功能”的结果是非常重要的。对于年龄较大的儿童和青少年,与ICF的活动/参与部分相关的结果最常见(12-15岁:n = 62, 15.6%; 15-18岁:n = 73, 18.4%)。对于年龄较大的人群,“情感安全”、“就业”和“生活技能发展”的独特结果达到了共识。结论:参与者认为许多结果,跨越大部分ICF,对患有认知沟通障碍(CCDs)的儿童和青少年是重要的。随着儿童和青少年年龄的增长,ICF组成部分的重要性发生了变化,并出现了不同的结果,突出了与发展相关的康复的必要性。达成共识的广泛结果反映了儿科CCD的复杂性和对整体、以人为本的护理的需求。未来的研究应探讨儿童和青少年的ccd及其家庭的优先事项。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Important Outcomes for Children and Adolescents With Cognitive-Communication Disorders After Traumatic Brain Injury: An International Multiperspective Consensus Study.

Purpose: The aim of this study was to reach consensus among researchers, clinicians, and service managers on the most important outcomes of cognitive-communication treatments for children and adolescents (ages 5-18 years) with traumatic brain injury, in the postacute stage of rehabilitation and beyond.

Method: This is an international three-round e-Delphi study. In Round 1, participants answered three open-ended questions, generating important treatment outcomes at three stages of development (5-11, 12-15, and > 15-18 years). Results were analyzed using qualitative content analysis and combined with outcomes from a previous scoping review. In Rounds 2-3, outcome importance was ranked on a 9-point scale. Consensus was defined a priori with outcomes rated as being "essential" (7-9) by at least 70% of respondents and rated 1-3 by less than 15% of respondents. Consensus outcomes were linked to the International Classification of Functioning, Disability and Health (ICF).

Results: A total of 360 outcomes met consensus for all age groups. For 5- to 11-year-old children, important outcomes linked almost equally to the Body Functions (n = 52, 13.1%) and Activity/Participation (n = 50, 12.6%) components of the ICF. Outcomes of "successful start to school," "return to school," and "school functioning" were uniquely important. For older children and adolescents, outcomes linked to the Activity/Participation component of the ICF most frequently (12-15 years: n = 62, 15.6%; > 15-18 years: n = 73, 18.4%). For older cohorts, unique outcomes of "emotional safety," "employment," and "life skill development" met consensus.

Conclusions: Participants consider many outcomes, spanning most of the ICF, to be important for children and adolescents with cognitive-communication disorders (CCDs). As children and adolescents age, the importance of ICF components shifts, and distinct outcomes emerge, highlighting the necessity of developmentally relevant rehabilitation. The broad range of outcomes reaching consensus reflects pediatric CCD complexity and the need for holistic, person-centered care. Future research should explore the priorities of children and adolescents with CCDs and their families.

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来源期刊
American Journal of Speech-Language Pathology
American Journal of Speech-Language Pathology AUDIOLOGY & SPEECH-LANGUAGE PATHOLOGY-REHABILITATION
CiteScore
4.30
自引率
11.50%
发文量
353
审稿时长
>12 weeks
期刊介绍: Mission: AJSLP publishes peer-reviewed research and other scholarly articles on all aspects of clinical practice in speech-language pathology. The journal is an international outlet for clinical research pertaining to screening, detection, diagnosis, management, and outcomes of communication and swallowing disorders across the lifespan as well as the etiologies and characteristics of these disorders. Because of its clinical orientation, the journal disseminates research findings applicable to diverse aspects of clinical practice in speech-language pathology. AJSLP seeks to advance evidence-based practice by disseminating the results of new studies as well as providing a forum for critical reviews and meta-analyses of previously published work. Scope: The broad field of speech-language pathology, including aphasia; apraxia of speech and childhood apraxia of speech; aural rehabilitation; augmentative and alternative communication; cognitive impairment; craniofacial disorders; dysarthria; fluency disorders; language disorders in children; speech sound disorders; swallowing, dysphagia, and feeding disorders; and voice disorders.
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