家长对Covid-19大流行限制对唐氏综合症儿童健康、教育和发展的长期影响的担忧:一项定性分析

IF 1.4 Q3 EDUCATION, SPECIAL
Laura Nixon, Gema Milla de la Fuente, Vassilis Sideropoulos, Monica Lakhanpaul
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引用次数: 0

摘要

Covid-19大流行严重限制了获得支持神经分化儿童,特别是唐氏综合症儿童的健康、教育和发展所需的重要服务和资源的机会。我们对开放式问题的回答进行了定性分析,这些问题探讨了照顾者(n = 194)对大流行限制对其患有退行性痴呆的儿童的影响的担忧。结果显示,在封锁期间,父母担心孩子的身心健康,并报告说,孩子们觉得社会隔离和缺乏日常生活特别具有挑战性。限制措施也引发了持续的长期担忧。家长报告说,有限的社交接触影响了孩子的沟通和社交技能的发展,而较少的团体活动影响了孩子的体重和运动发育。学校关闭影响了学业进步和课堂环境所需技能的发展。获得保健服务的机会受限,延误了诊断和治疗,取消了治疗,扰乱了语言和运动发育;持续的中断继续限制了缓解担忧的机会。多重限制的相互关联的影响使挑战复杂化,突出了可获得的社会资源和全系统支持对神经分化儿童的健康和发展的重要性。我们敦促从业人员、研究人员和决策者与家庭合作,减轻这一流行病对退行性残疾儿童的长期影响。
本文章由计算机程序翻译,如有差异,请以英文原文为准。

Parental concerns about the long-term impacts of Covid-19 pandemic restrictions on the health, education and development of their children with Down syndrome: A qualitative analysis

Parental concerns about the long-term impacts of Covid-19 pandemic restrictions on the health, education and development of their children with Down syndrome: A qualitative analysis

Parental concerns about the long-term impacts of Covid-19 pandemic restrictions on the health, education and development of their children with Down syndrome: A qualitative analysis

Parental concerns about the long-term impacts of Covid-19 pandemic restrictions on the health, education and development of their children with Down syndrome: A qualitative analysis

Parental concerns about the long-term impacts of Covid-19 pandemic restrictions on the health, education and development of their children with Down syndrome: A qualitative analysis

The Covid-19 pandemic significantly limited access to vital services and resources required to support the health, education and development of neurodivergent children, especially children with Down syndrome (DS). We undertook qualitative analysis of responses to open-ended questions exploring caregiver (n = 194) concerns about the impact of the pandemic restrictions on their children with DS. Results showed that parents were concerned about their child's mental and physical health during lockdowns, and reported that children found the social isolation and lack of routine particularly challenging. Restrictions also raised ongoing longer-term concerns. Parents reported that limited social contact affected the development of children's communication and social skills, and fewer group activities impacted weight and motor development. School closures affected academic progress and development of the skills required to navigate a classroom environment. Restricted access to healthcare services delayed diagnosis and treatment, and cancelled therapies disrupted speech and motor development; ongoing disruptions continued to limit opportunities to mitigate concerns. The interlinking impacts of multiple restrictions compounded the challenges, highlighting the importance of accessible social resources and system-wide support for the health and development of neurodivergent children. We urge practitioners, researchers and policymakers to collaborate with families to mitigate the long-term implications of the pandemic for children with DS.

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来源期刊
CiteScore
1.90
自引率
15.40%
发文量
52
期刊介绍: This well-established and respected journal covers the whole range of learning difficulties relating to children in mainstream and special schools. It is widely read by nasen members as well as other practitioners, administrators advisers, teacher educators and researchers in the UK and overseas. The British Journal of Special Education is concerned with a wide range of special educational needs, and covers all levels of education pre-school, school, and post-school.
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