超越悲伤:量化农村家庭照顾者的丧亲需求。

IF 2.1 4区 医学 Q3 HEALTH POLICY & SERVICES
Catherine Vanderboom, Diane Holland, Cory Ingram, Brystana G Kaufman, Allison Gustavson, Jay Mandrekar, Ann Marie Dose, Ellen Wild, Carole Stiles, Joan M Griffin
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引用次数: 0

摘要

目的:家庭照护者(FCGs)在其照护者(CR)去世前后可能会遇到人际关系、心理健康和财务方面的许多社会心理和实际挑战。影响农村FCGs的具体挑战尚未得到很好的了解,他们往往难以获得姑息治疗服务、过渡性护理和其他社区资源。本文的目的是量化农村FCGs在CR死亡之前所经历的挑战,并持续到丧亲期。方法:对随机对照试验资料进行二次分析。为期8周的干预包括姑息治疗研究护士和照顾患有限制生命疾病的患者的FCGs之间的视频访问。数据来自干预组中CR在干预期间死亡的fcg的护士访问期间的结构化访谈。结果215例FCGs中有90例(41.8%)发生CR死亡,其中女性(58.9%)、白人(97.5%)、配偶或伴侣(55.6%)居多,与CR一起生活(66.7%)。大多数FCGs(84%)在CR死亡后继续进行研究护士的干预访问。死亡后平均7.2天恢复探视。大多数fcg在CR死亡前后都经历了悲伤/应对技能(56%)和人际关系/支持系统(52%)方面的挑战。fcg在死亡前后也经历了收入/财务、住房和与社区资源沟通方面的实际挑战。结果的意义:丧亲支持应超越对悲伤的关注,包括FCGs经历的实际挑战。由于丧失亲人期间所经历的挑战往往始于CR死亡之前,因此由已知临床医生从死亡前到死亡后持续提供FCG支持是有益的。在有选择的情况下,许多农村地区的家庭保健服务组最早会在CR死亡后一周内提供丧亲支助。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Beyond grief: Quantifying bereavement needs of rural family caregivers.

Objectives: Family caregivers (FCGs) may experience numerous psychosocial and practical challenges with interpersonal relationships, mental health, and finances both before and after their care recipient (CR) dies. The specific challenges affecting rural FCGs who often have limited access to palliative care services, transitional care, and other community resources are not well understood. The purpose of this paper is to quantify the challenges rural FCGs experienced immediately before the death of a CR and continuing into the bereavement period.

Methods: A secondary analysis of data from a randomized controlled trial was conducted. The 8-week intervention included video visits between a palliative care research nurse and FCGs caring for someone with a life-limiting illness. Data were from structured interviews during nurse visits with FCGs in the intervention arm whose CR died during the intervention period.

Results: Ninety (41.8%) of the 215 FCGs experienced the death of their CR. The majority of FCGs were female (58.9%), White (97.5%), spouses or partners (55.6%) and lived with the CR (66.7%). Most FCGs (84%) continued with intervention visits by the study nurse after the CR's death. Visits resumed on average 7.2 days post-death. The majority of FCGs experienced challenges with grief/coping skills (56%) and interpersonal relationships/support systems (52%) both pre- and post-death of the CR. FCGs also experienced practical challenges with income/finance, housing, and communication with community resources both pre-and post-death.

Significance of results: Bereavement support should extend beyond a focus on grief to include practical challenges experienced by FCGs. Because challenges experienced in the bereavement period often begin before a CR's death, there is benefit in continuity of FCG support provided by a known clinician from pre- to post-death. When given an option, many rural FCGs are open to bereavement support as early as a week after the death of a CR.

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来源期刊
Palliative & Supportive Care
Palliative & Supportive Care HEALTH POLICY & SERVICES-
CiteScore
4.10
自引率
9.10%
发文量
280
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