让美好时光成长:探索休闲活动对痴呆夫妇的重要意义。

IF 2.2
Hayley Bruce, Kristen Tulloch, Nancy A Pachana, Tamara De Regt, Theresa Scott
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引用次数: 0

摘要

痴呆症是一组疾病,影响着世界各地越来越多的人,对确诊患者及其亲人的生活造成影响。痴呆症对家庭的影响已被广泛记录;然而,这通常是通过照顾者负担的角度来实现的。相比之下,本研究探讨了痴呆症夫妇在共同休闲活动方面的需求。五名患有痴呆症的澳大利亚人和他们的伴侣参加了半结构化的录音访谈。对采访记录的专题分析产生了四个主题和15个次主题,突出了这一人口在休闲方面的需求和价值。主题包括“提高对夫妻如何度过时间的认识”,“意识到关系中的夫妻变化”,“欣赏充实的时刻”,以及“痴呆症患者的参与/活动缓和和护理伴侣的支持”。结果支持现有的研究,包括关系动态和诊断后生活方式的变化。这项研究表明,休闲干预措施的重要性,重点是改善痴呆症患者及其伴侣的社交活动,并支持增加共度美好时光的机会。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Let the Good Times Grow: Exploring What is Important to Couples Living With Dementia Surrounding Leisure Activities.

Dementia is a cluster of disorders affecting a growing number of people around the world, with consequent disruption to the lives of those diagnosed and their loved ones. The impact of dementia on families has been widely documented; however, this is often done through the lens of caregiver burden. In contrast, the present research explores the wants and needs of couples living with dementia in terms of their shared leisure activities. Five Australians living with dementia and their partners participated in recorded semi-structured interviews. Thematic analysis of transcribed interviews produced four main themes and 15 subthemes highlighting this population's needs and values regarding leisure. Themes included, "increased awareness of how dyads spend their time", "awareness of dyadic changes within the relationship", "appreciation of fulfilling moments", and "person with dementia's engagement/activity moderation and support by care partner". The results support existing research including changes to relationship dynamics and lifestyle post-diagnosis. This research indicates the importance of leisure interventions that focus on improving socialisation for people with dementia and their partners and supports increased opportunities for quality time together.

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