Jenny Bergqvist, Johanna Hök Nordberg, Kathrin Wode, Berit Sunde, Per Fransson, Britt-Marie Bernhardson
{"title":"晚期胰腺癌患者的日常生活经历。","authors":"Jenny Bergqvist, Johanna Hök Nordberg, Kathrin Wode, Berit Sunde, Per Fransson, Britt-Marie Bernhardson","doi":"10.1002/pon.70260","DOIUrl":null,"url":null,"abstract":"<p><strong>Background: </strong>Pancreatic cancer is often diagnosed in late stages of the disease with only a 10% 5-year survival. The disease is associated with complex symptoms and psychological distress.</p><p><strong>Aims: </strong>The specific objective of this qualitative study was to explore patients' experiences of what symptoms and distress that had impact on their everyday life.</p><p><strong>Methods: </strong>We interviewed 31 patients with advanced pancreatic cancer nested within a randomized controlled study, called MISTRAL, about their everyday life using a semi structured interview guide. For data analysis we used interpretive description as described by S. Thorne to capture the subjective experiences of a population with the intention of improving clinical practice.</p><p><strong>Results: </strong>Three themes were identified from the interviews: \"Unpredictability\", \"Psychological and social distress\" and \"Strategies for hope and normalization\". Unpredictable and highly fluctuating levels of energy as well as psychological and social distress were reported as major concerns. Participants tried to normalize everyday life to maintain hope and cope with the situation.</p><p><strong>Conclusions: </strong>Unpredictable and highly fluctuating levels of energy and major psychological and social distress impact on patients' ability to cope with symptoms and treatment. Patient-centered care with interventions to reduce distress is important to improve quality of life among patients with advanced pancreatic cancer.</p>","PeriodicalId":20779,"journal":{"name":"Psycho‐Oncology","volume":"34 9","pages":"e70260"},"PeriodicalIF":3.5000,"publicationDate":"2025-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12408248/pdf/","citationCount":"0","resultStr":"{\"title\":\"Living With Advanced Pancreatic Cancer: Patients' Experiences of Daily Life.\",\"authors\":\"Jenny Bergqvist, Johanna Hök Nordberg, Kathrin Wode, Berit Sunde, Per Fransson, Britt-Marie Bernhardson\",\"doi\":\"10.1002/pon.70260\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p><strong>Background: </strong>Pancreatic cancer is often diagnosed in late stages of the disease with only a 10% 5-year survival. The disease is associated with complex symptoms and psychological distress.</p><p><strong>Aims: </strong>The specific objective of this qualitative study was to explore patients' experiences of what symptoms and distress that had impact on their everyday life.</p><p><strong>Methods: </strong>We interviewed 31 patients with advanced pancreatic cancer nested within a randomized controlled study, called MISTRAL, about their everyday life using a semi structured interview guide. For data analysis we used interpretive description as described by S. Thorne to capture the subjective experiences of a population with the intention of improving clinical practice.</p><p><strong>Results: </strong>Three themes were identified from the interviews: \\\"Unpredictability\\\", \\\"Psychological and social distress\\\" and \\\"Strategies for hope and normalization\\\". Unpredictable and highly fluctuating levels of energy as well as psychological and social distress were reported as major concerns. Participants tried to normalize everyday life to maintain hope and cope with the situation.</p><p><strong>Conclusions: </strong>Unpredictable and highly fluctuating levels of energy and major psychological and social distress impact on patients' ability to cope with symptoms and treatment. Patient-centered care with interventions to reduce distress is important to improve quality of life among patients with advanced pancreatic cancer.</p>\",\"PeriodicalId\":20779,\"journal\":{\"name\":\"Psycho‐Oncology\",\"volume\":\"34 9\",\"pages\":\"e70260\"},\"PeriodicalIF\":3.5000,\"publicationDate\":\"2025-09-01\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12408248/pdf/\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Psycho‐Oncology\",\"FirstCategoryId\":\"3\",\"ListUrlMain\":\"https://doi.org/10.1002/pon.70260\",\"RegionNum\":2,\"RegionCategory\":\"医学\",\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"Q2\",\"JCRName\":\"ONCOLOGY\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Psycho‐Oncology","FirstCategoryId":"3","ListUrlMain":"https://doi.org/10.1002/pon.70260","RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q2","JCRName":"ONCOLOGY","Score":null,"Total":0}
Living With Advanced Pancreatic Cancer: Patients' Experiences of Daily Life.
Background: Pancreatic cancer is often diagnosed in late stages of the disease with only a 10% 5-year survival. The disease is associated with complex symptoms and psychological distress.
Aims: The specific objective of this qualitative study was to explore patients' experiences of what symptoms and distress that had impact on their everyday life.
Methods: We interviewed 31 patients with advanced pancreatic cancer nested within a randomized controlled study, called MISTRAL, about their everyday life using a semi structured interview guide. For data analysis we used interpretive description as described by S. Thorne to capture the subjective experiences of a population with the intention of improving clinical practice.
Results: Three themes were identified from the interviews: "Unpredictability", "Psychological and social distress" and "Strategies for hope and normalization". Unpredictable and highly fluctuating levels of energy as well as psychological and social distress were reported as major concerns. Participants tried to normalize everyday life to maintain hope and cope with the situation.
Conclusions: Unpredictable and highly fluctuating levels of energy and major psychological and social distress impact on patients' ability to cope with symptoms and treatment. Patient-centered care with interventions to reduce distress is important to improve quality of life among patients with advanced pancreatic cancer.
期刊介绍：
Psycho-Oncology is concerned with the psychological, social, behavioral, and ethical aspects of cancer. This subspeciality addresses the two major psychological dimensions of cancer: the psychological responses of patients to cancer at all stages of the disease, and that of their families and caretakers; and the psychological, behavioral and social factors that may influence the disease process. Psycho-oncology is an area of multi-disciplinary interest and has boundaries with the major specialities in oncology: the clinical disciplines (surgery, medicine, pediatrics, radiotherapy), epidemiology, immunology, endocrinology, biology, pathology, bioethics, palliative care, rehabilitation medicine, clinical trials research and decision making, as well as psychiatry and psychology.
This international journal is published twelve times a year and will consider contributions to research of clinical and theoretical interest. Topics covered are wide-ranging and relate to the psychosocial aspects of cancer and AIDS-related tumors, including: epidemiology, quality of life, palliative and supportive care, psychiatry, psychology, sociology, social work, nursing and educational issues.
Special reviews are offered from time to time. There is a section reviewing recently published books. A society news section is available for the dissemination of information relating to meetings, conferences and other society-related topics. Summary proceedings of important national and international symposia falling within the aims of the journal are presented.
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