Tia Cheung-Cook, Phil Joddrell, Karen Harrison Dening, Thea Sobers, Madeleine Walpert, Emma Wolverson
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引用次数: 0
摘要
预计到2039年,独居的痴呆症患者数量将翻一番。痴呆症患者可能会选择独自生活,也可能会因为丧亲之类的生活事件而独自生活。对于痴呆症患者、他们的护理伙伴和支持他们的服务机构来说,独居面临着独特的挑战。本综述旨在总结独居痴呆患者报告的心理社会需求。检索通过Academic Search Ultimate, MEDLINE, CINAHL Ultimate, APA PsycArticles和APA PsycInfo完成。符合条件的文章通过定性或混合方法探讨了独居痴呆患者的需求或经历。资料以叙述性方式合成,并使用国家护理与健康卓越研究所的质量评估清单来评估所有纳入的研究。在Kitwood模型的所有领域都确定了需求;爱,认同,依恋,包容,职业和舒适。数据显示,独居的痴呆症患者和与他人同住的痴呆症患者之间的需求重叠,但重要的是,独居的痴呆症患者的需求是明显的或加剧的。具体来说,是对人格的威胁,没有其他人来维持关于身份的故事,以及在家里生活的管理,并认识到这最终会结束。研究强调了独居痴呆症患者的异质性,并考虑了研究中特定群体(如LGBTQ +社区的个体)需求代表方面的差距。因此,需要一个交叉和以人为本的方法,以未来的研究和临床实践进行了讨论。
The Psychosocial Needs of People With Dementia Living Alone: A Narrative Synthesis Systematic Review.
The number of people with dementia living alone is predicted to double by 2039. People with dementia may live alone through choice and others due to life events like bereavement. There are unique challenges to living alone for people with dementia, their care partners and services supporting those individuals. The current review sought to summarise the psychosocial needs reported by people with dementia who live alone. Searches were completed accessing Academic Search Ultimate, MEDLINE, CINAHL Ultimate, APA PsycArticles and APA PsycInfo. Eligible articles explored the needs or experiences of people with dementia living alone through qualitative or mixed methods. The data was synthesized narratively, and the National Institute of Care and Health Excellence's quality appraisal checklist was used to assess all included studies. Needs were identified across all domains of Kitwood's model; love, identity, attachment, inclusion, occupation and comfort. The data revealed overlapping needs between those with dementia who live alone and those who live with others but importantly, needs that were distinct or exacerbated by living alone with dementia. Specifically, threat to personhood without others to maintain stories about identity and the management of living at home with the recognition that this would eventually end. The heterogeneity of people with dementia who live alone was highlighted and the gaps in the representation of the needs of specific groups in the research were considered such as individuals from the LGBTQ + community. Thus, the need for an intersectional and person-centred approach to future research and clinical practice was discussed.