访谈晚期痴呆患者的原则和策略。

IF 2.2
Tamara Backhouse, Anne Killett, Yun-Hee Jeon, Eneida Mioshi
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引用次数: 0

摘要

有认知障碍的人,如痴呆症患者,特别是处于中度或晚期的痴呆症患者,可以被排除在定性访谈研究之外。然而,人们越来越认识到痴呆症患者参与研究的价值。对用于晚期痴呆症患者的定性访谈技术的适应性尚未得到充分探索。我们对在家庭和护理院中患有晚期痴呆症的人进行了13次半结构化访谈。我们检查研究人员的直觉适应,以情境化和澄清,包括成员在需要时用直接、封闭的问题检查的重要性;痴呆症患者“游手好闲”并处于领先地位;以及作为谈话对象的照顾者。我们提出了一些学习要点,包括如何创造安全的面试互动,以及提高意义创造的策略。我们提出方法学学习和考虑时,采访的人与晚期痴呆可能是有指导意义的其他研究人员。我们建议研究主题需要具有相关性,并且应该考虑多种意义构建方法。我们的分析有助于越来越多的证据基础,考虑如何在访谈中改善与痴呆症患者的有意义的接触。我们鼓励其他研究人员反思他们与痴呆症患者的访谈互动,以进一步描绘成功的组成部分,并为未来的研究实践提供信息。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Principles and Strategies of Interviewing People with Advanced Dementia.

People with cognitive impairment such as those with dementia, particularly in the moderate or advanced stages, can be excluded from qualitative interview research. However, the value of people with dementia's participation in research is increasingly acknowledged. Adaptations to qualitative interview techniques for use with people with advanced dementia are underexplored. We draw on 13 semi-structured interviews undertaken with people with advanced dementia in family and care-home settings. We examine researcher intuitive adaptations to contextualise and clarify including the importance of member checking in the moment with direct, closed questions if need be; people with dementia 'coasting' and leading; as well as carers as conversation partners. We draw out learning points around creating safe interview interactions, and strategies to enhance meaning making. We present methodological learnings and considerations when interviewing people with advanced dementia likely to be instructive for other researchers. We suggest that the research topic needs to be relatable and multiple methods of meaning making should be considered. Our analysis contributes to the growing evidence base considering how to improve meaningful engagement with people with dementia in interviewing. We encourage other researchers to reflect on their interview interactions with people with dementia to further delineate successful components and inform future research practices.

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