“我这样出生绝对是有目的的”:患有慢性病的青少年的生活经历。

IF 1.3 Q3 PSYCHOLOGY, CLINICAL
Health Psychology Open Pub Date : 2025-08-23 eCollection Date: 2025-01-01 DOI:10.1177/20551029251370802
Briana P Keller, Emily Rothenberg, Ashton Helveston, Jessika C Boles
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引用次数: 0

摘要

患有慢性疾病的青少年对与他们的病情相关的胜利、挑战和责任的认识有所提高。尽管一些研究探讨了青少年癌症患者的经历,但很少有研究其他慢性疾病群体。因此,这个现象学定性研究的目的是探讨青少年对生活和成长与慢性疾病的看法。12名被诊断患有一种或多种慢性健康状况的个人(13-17岁)参加了半结构化访谈。采访录音并逐字抄写。利用解释性现象学分析,研究人员产生了五个主题:(1)疾病随时间的轨迹,(2)疾病和治疗相关的限制,(3)人际关系,(4)达到接受,(5)感知收益/利益。参与者发现了慢性病的负面影响,同时也注意到了对他们生活的积极影响。尽管在诊断上几乎没有重叠,但参与者之间存在相似的主题和经历,这表明慢性健康状况有一定程度的普遍性。
本文章由计算机程序翻译,如有差异,请以英文原文为准。

"It was definitely for a purpose that I was born this way": Lived experiences of adolescents with chronic illness.

"It was definitely for a purpose that I was born this way": Lived experiences of adolescents with chronic illness.

"It was definitely for a purpose that I was born this way": Lived experiences of adolescents with chronic illness.

"It was definitely for a purpose that I was born this way": Lived experiences of adolescents with chronic illness.

Teenagers with chronic illnesses gain uniquely increased awareness of the triumphs, challenges, and responsibilities associated with their condition. Although some studies have explored the experiences of adolescents with cancer, few have studied other chronic illness groups. Therefore, the purpose of this phenomenological qualitative study was to explore adolescent perceptions of living and growing with a chronic illness. 12 individuals (ages 13-17) diagnosed with one or more chronic health conditions participated in a semi-structured interview. Interviews were audio-recorded and transcribed verbatim. Using interpretative phenomenological analysis, five themes were generated by the researchers: (1) trajectory of illness over time, (2) illness- and treatment-related restrictions, (3) interpersonal concerns, (4) reaching acceptance, and (5) perceived gains/benefits. Participants identified negative aspects of a chronic illness while also noting positive impacts on their lives. Despite little overlap in diagnoses, similar themes and experiences were present among participants, suggesting some level of generalizability among chronic health conditions.

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来源期刊
Health Psychology Open
Health Psychology Open Psychology-Clinical Psychology
CiteScore
5.90
自引率
0.00%
发文量
7
审稿时长
12 weeks
期刊介绍: Health Psychology Open (HPO) is an international, peer-reviewed, open access, online-only journal providing rapid publication. HPO is dedicated to publishing cutting-edge research in health psychology from around the world. HPO seeks to provide a platform for both traditional empirical analyses and more qualitative and/or critically oriented approaches to health psychology. All areas of health psychology are covered, but these topics are of particular interest: Clinical health psychology Critical health psychology Community health psychology Health psychology practice Health psychology through a social, cultural or regional lens The journal particularly favours papers that focus on health psychology in practice, including submissions concerning community and/or clinical applications and interventions. Review articles are also welcomed. There is no fixed limit to the length of manuscripts, which is normally strictly limited in other journals, for example HPO’s sister journal, Journal of Health Psychology (JHP). Studies published in this journal are required to obtain ethical approval from an Institutional Review Board. Such approval must include informed, signed consent by all research participants. Any manuscript not containing an explicit statement concerning ethical approval and informed consent will not be considered.
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