Briana P Keller, Emily Rothenberg, Ashton Helveston, Jessika C Boles
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"It was definitely for a purpose that I was born this way": Lived experiences of adolescents with chronic illness.
Teenagers with chronic illnesses gain uniquely increased awareness of the triumphs, challenges, and responsibilities associated with their condition. Although some studies have explored the experiences of adolescents with cancer, few have studied other chronic illness groups. Therefore, the purpose of this phenomenological qualitative study was to explore adolescent perceptions of living and growing with a chronic illness. 12 individuals (ages 13-17) diagnosed with one or more chronic health conditions participated in a semi-structured interview. Interviews were audio-recorded and transcribed verbatim. Using interpretative phenomenological analysis, five themes were generated by the researchers: (1) trajectory of illness over time, (2) illness- and treatment-related restrictions, (3) interpersonal concerns, (4) reaching acceptance, and (5) perceived gains/benefits. Participants identified negative aspects of a chronic illness while also noting positive impacts on their lives. Despite little overlap in diagnoses, similar themes and experiences were present among participants, suggesting some level of generalizability among chronic health conditions.
期刊介绍:
Health Psychology Open (HPO) is an international, peer-reviewed, open access, online-only journal providing rapid publication. HPO is dedicated to publishing cutting-edge research in health psychology from around the world. HPO seeks to provide a platform for both traditional empirical analyses and more qualitative and/or critically oriented approaches to health psychology. All areas of health psychology are covered, but these topics are of particular interest: Clinical health psychology Critical health psychology Community health psychology Health psychology practice Health psychology through a social, cultural or regional lens The journal particularly favours papers that focus on health psychology in practice, including submissions concerning community and/or clinical applications and interventions. Review articles are also welcomed. There is no fixed limit to the length of manuscripts, which is normally strictly limited in other journals, for example HPO’s sister journal, Journal of Health Psychology (JHP). Studies published in this journal are required to obtain ethical approval from an Institutional Review Board. Such approval must include informed, signed consent by all research participants. Any manuscript not containing an explicit statement concerning ethical approval and informed consent will not be considered.