在巴勒斯坦被占领土内,父母照顾一个以上患有同样慢性或严重疾病的儿童的经历:一项定性研究。

IF 1.6 4区 医学 Q3 NURSING
Maha Atout, Intima Alrimawi, Abd Al-Hadi Hasan, Atheer Qashou
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引用次数: 0

摘要

在巴勒斯坦被占领土(被占领土),政治局势复杂,获得资源的机会有限,迫切需要加深对如何照顾患有限制生命和危及生命疾病的儿童的了解。本研究探讨父母照顾一个以上患有慢性或严重疾病的孩子的经验。采用定性描述方法,从两个巴勒斯坦被占领土城市图尔卡姆和拉马拉的几个儿科单位收集数据。对16位家长进行了半结构化的面对面访谈(每次访谈都是针对一位家长)。采用主题分析法对数据进行分析,发现反映家长经历的七大主题。这些变化如下:第一个孩子的疾病给生活带来了重大变化;第二次体验;变得更强;支持系统;经济困难;社会歧视;以及社会孤立。数据分析表明,向父母提供情感和物质支持的需求非常大,应实施文化上突出的社会服务条款,以减轻这些父母的负担。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Experiences of parents caring for more than one child with the same chronic or serious illness in Occupied Palestinian Territory: A qualitative study.

In Occupied Palestinian territory (OPT), which is in a complex political situation and has limited access to resources, there is a critical need to deepen the understanding of how children with life-limiting and life-threatening illnesses are cared for. This study explores the experiences of parents caring for more than one child with a chronic or serious illness. A qualitative descriptive method was adopted, with data collected from several paediatric units in two OPT cities, Tulkarm and Ramallah. Semi-structured, face-to-face interviews were conducted with 16 parents (each interview was of an individual parent). Data were analysed using thematic analysis, and the analysis unearthed seven major themes that reflected the parents' experiences. These were as follows: Significant life changes with the first child's illness; the second experience; becoming stronger; support systems; economic difficulties; social stigma; and social isolation. Data analyses suggest that there is a significant need for emotional and physical support to be provided to parents, and culturally salient social service provisions should be implemented to alleviate the burden placed on these parents.

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来源期刊
Journal of Child Health Care
Journal of Child Health Care NURSING-PEDIATRICS
CiteScore
4.10
自引率
15.80%
发文量
60
审稿时长
>12 weeks
期刊介绍: Journal of Child Health Care is a broad ranging, international, professionally-oriented, interdisciplinary and peer reviewed journal. It focuses on issues related to the health and health care of neonates, children, young people and their families, including areas such as illness, disability, complex needs, well-being, quality of life and mental health care in a diverse range of settings. The Journal of Child Health Care publishes original theoretical, empirical and review papers which have application to a wide variety of disciplines.
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