日本护理和福利专业人员对类风湿关节炎患者的支持:一项横断面研究。

IF 1.9 4区 医学 Q3 RHEUMATOLOGY
Toshihiro Matsui, Mie Fusama, Kimito Kawahata, Ryoko Sakai, Takahiko Sugihara, Miho Tsujimura, Isao Matsushita, Nobuyuki Yajima, Takeo Isozaki, Noriyoshi Shimahara, Shotaro Suzuki, Rei Ono, Shinya Taguchi, Shigeto Tohma, Ryo Yanai, Hideshi Yamazaki, Toshie Kadonaga, Hiroaki Nakabayashi, Chiaki Ando, Masayo Kojima, Yutaka Kawahito
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引用次数: 0

摘要

目的:本研究旨在评估日本护理和福利专业人员在支持类风湿性关节炎(RA)患者方面所面临的知识、经验和挑战,并确定医疗和福利服务之间协调的相关问题。方法:采用分层区域抽样方法,在全国范围内进行问卷调查。目标人群包括来自日本护理经理协会(JCMA)和日本注册社会工作者协会(JASW)的1000名会员。调查评估了受访者对类风湿性关节炎的知识、支持经验、实际做法、对跨学科合作的看法,以及患者对现有系统的理解。结果:JCMA会员390人,JASW会员330人。虽然对RA症状和病程的基本知识很普遍,但对RA特异性药物的认识有限,特别是在JASW受访者中。许多参与者几乎没有支持类风湿性关节炎患者的经验。报告的挑战包括来自医生的信息不足,缺乏结构化的信息共享,以及对长期护理认证的护理需求的低估。患者和家属对医疗保健和福利制度的了解也很有限。结论:研究结果强调了改进教育、加强跨学科协调和加强信息共享的必要性。综合努力对于确保社区环境中RA患者的持续高质量护理至关重要。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Support for Patients with Rheumatoid Arthritis Provided by Care and Welfare Professionals in Japan: A Cross-sectional study.

Objectives: This study aimed to evaluate the knowledge, experience, and challenges faced by care and welfare professionals in supporting patients with rheumatoid arthritis (RA) in Japan, and to identify issues related to coordination between medical and welfare services.

Methods: A nationwide questionnaire survey was conducted using stratified regional sampling. The target population included 1 000 members each from the Japan Care Manager Association (JCMA) and the Japanese Association of Certified Social Workers (JASW). The survey assessed respondents' knowledge of RA, support experience, actual practices, views on interdisciplinary collaboration, and perceptions of patients' understanding of available systems.

Results: Valid responses were obtained from 390 JCMA members and 330 JASW members. While basic knowledge of RA symptoms and disease course was common, awareness of RA-specific medications was limited, especially among JASW respondents. Many participants had little experience supporting RA patients. Reported challenges included insufficient information from physicians, a lack of structured information sharing, and underestimation of care needs in long-term care certification. Patients and families also showed limited understanding of healthcare and welfare systems.

Conclusions: The findings highlight the need for improved education, better interdisciplinary coordination, and enhanced information sharing. Comprehensive efforts are essential to ensure continuous, high-quality care for RA patients in community settings.

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来源期刊
Modern Rheumatology
Modern Rheumatology RHEUMATOLOGY-
CiteScore
4.90
自引率
9.10%
发文量
146
审稿时长
1.5 months
期刊介绍: Modern Rheumatology publishes original papers in English on research pertinent to rheumatology and associated areas such as pathology, physiology, clinical immunology, microbiology, biochemistry, experimental animal models, pharmacology, and orthopedic surgery. Occasional reviews of topics which may be of wide interest to the readership will be accepted. In addition, concise papers of special scientific importance that represent definitive and original studies will be considered. Modern Rheumatology is currently indexed in Science Citation Index Expanded (SciSearch), Journal Citation Reports/Science Edition, PubMed/Medline, SCOPUS, EMBASE, Chemical Abstracts Service (CAS), Google Scholar, EBSCO, CSA, Academic OneFile, Current Abstracts, Elsevier Biobase, Gale, Health Reference Center Academic, OCLC, SCImago, Summon by Serial Solutions
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