自闭症成年人自我报告的优势和才能。

IF 5.6 2区 心理学 Q1 PSYCHOLOGY, DEVELOPMENTAL
Autism Pub Date : 2025-08-26 DOI:10.1177/13623613251364361
Linnea A Lampinen, Joseph Singer, Xinyue Wang, Benjamin VanHook, Ellen Wilkinson, Vanessa H Bal
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引用次数: 0

摘要

许多成年人对自闭症的诊断过程表示不满,并且对缺乏肯定神经多样性的评估方法表示担忧。在某种程度上,这是由于工具将行为定义为导致损害的症状,而忽略了潜在的好处。在评估过程中系统地测量优势和才能,可以以更肯定神经多样性的方式为诊断和支持规划提供信息。从历史上看,研究依赖于照顾者报告的优势;需要更多关于自我报告优势的信息,以便为自我报告工具的开发和评估实践提供信息。参与者包括127名合法独立的自闭症成年人,主要是通过SPARK研究匹配招募的,他们完成了关于优势和才能的开放式问题。定性内容分析确定了优势的主题,并检查了优势与性别、年龄、诊断年龄和教育水平之间的关联。自闭症和非自闭症团队成员在定性编码、数据解释和手稿写作方面进行合作。定性回答中出现的主题包括认知/执行功能(61%)、性格优势(55%)、创意/艺术(52%)、学术(33%)和人际关系(30%)。力量域与《精神障碍诊断与统计手册》(第5版)自闭症诊断标准之间的重叠表明,我们在如何概念化自闭症时需要更多的细微差别,同时考虑到优势和挑战。本研究中确定的优势领域可用于通知测量发展和基于优势的评估和支持规划。【摘要】自闭症研究和测试的重点是自闭症患者的困难,而没有关注自闭症患者的优势。大多数调查询问与自闭症相关的挑战,但没有考虑自闭症成年人的积极品质和才能。以前对自闭症个体优势的研究大多基于父母的报告,所以我们对自闭症成年人如何看待自己的优势知之甚少。我们在一项在线调查中询问了127名自闭症成年人,告诉我们他们的优势和才能。自闭症和非自闭症团队成员一起工作,根据相似的主题或类别对答案进行分组。我们解释了类别,并比较了它们与参与者特征的关系。自闭症成年人有许多不同的优势,包括解决问题的能力、性格、创造力、学术能力和与他人相处的能力。不同年龄、教育水平或性别的人更容易提到一些优点。结果表明,自闭症成年人有许多不同的优势。对于研究人员、医生和公众来说,重要的是认识到自闭症成年人的优势和挑战,以创造一个更平衡的自闭症观点。在诊断自闭症和规划支持时,考虑这些优势可以改善自闭症成年人的福祉,减少耻辱,并帮助人们以更平衡的方式了解自闭症。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Self-reported strengths and talents of autistic adults.

Many adults express dissatisfaction with the autism diagnostic process, and concerns have been cited regarding the lack of neurodiversity-affirming assessment methods. In part, this is due to instruments framing behaviors as symptoms causing impairment, overlooking potential benefits. Systematically measuring strengths and talents during assessment may inform diagnosis and support planning in a more neurodiversity-affirming manner. Historically, research has relied on caregiver-reported strengths; more information on self-reported strengths is needed to inform self-report instrument development and assessment practices. Participants included 127 legally independent autistic adults recruited primarily through SPARK Research Match, who completed open-ended questions regarding strengths and talents. Qualitative content analysis identified themes of strengths, and associations between strengths and gender, age, age of diagnosis, and education level were examined. Autistic and nonautistic team members collaborated on qualitative coding, data interpretation, and manuscript writing. Themes emerging from the qualitative responses included Cognitive/Executive Functioning (61%), Character Strengths (55%), Creative/Artistic (52%), Academic (33%), and Interpersonal (30%). Overlap between strength domains and Diagnostic and Statistical Manual of Mental Disorders (5th ed.) autism diagnostic criteria suggest that more nuance is needed in how we conceptualize autism, considering both strengths and challenges. Domains of strengths identified in this study can be used to inform measure development and strengths-based assessment and support planning.Lay AbstractAutism research and testing has had a heavy focus on difficulties, without much attention to the strengths of autistic people. Most surveys ask about challenges associated with autism, but do not consider the positive qualities and talents of autistic adults. Previous research on strengths in autistic individuals has mostly been based on what parents report, so we do not know as much about how autistic adults see their own strengths. We asked 127 autistic adults to tell us about their strengths and talents in an online survey. Both autistic and nonautistic team members worked together to group answers by similar themes or categories. We explained categories and compared how they were related to participants' characteristics. Autistic adults shared many different strengths, including skills in problem-solving, character, creativity, academics, and getting along with others. Some strengths were more likely to be mentioned by people of different ages, education levels, or genders. The results show that autistic adults have many different strengths. It is important for researchers, doctors, and the public to recognize both the strengths and challenges of autistic adults to create a more balanced view of autism. Thinking about these strengths when diagnosing autism and planning supports can improve the well-being of autistic adults, reduce stigma, and help people understand autism in a more balanced way.

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来源期刊
Autism
Autism PSYCHOLOGY, DEVELOPMENTAL-
CiteScore
9.80
自引率
11.50%
发文量
160
期刊介绍: Autism is a major, peer-reviewed, international journal, published 8 times a year, publishing research of direct and practical relevance to help improve the quality of life for individuals with autism or autism-related disorders. It is interdisciplinary in nature, focusing on research in many areas, including: intervention; diagnosis; training; education; translational issues related to neuroscience, medical and genetic issues of practical import; psychological processes; evaluation of particular therapies; quality of life; family needs; and epidemiological research. Autism provides a major international forum for peer-reviewed research of direct and practical relevance to improving the quality of life for individuals with autism or autism-related disorders. The journal''s success and popularity reflect the recent worldwide growth in the research and understanding of autistic spectrum disorders, and the consequent impact on the provision of treatment and care. Autism is interdisciplinary in nature, focusing on evaluative research in all areas, including: intervention, diagnosis, training, education, neuroscience, psychological processes, evaluation of particular therapies, quality of life issues, family issues and family services, medical and genetic issues, epidemiological research.
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