正常发育的兄弟姐妹如何接受患有唐氏综合症或自闭症的兄弟姐妹?对个人特征的检查

IF 5.6 2区 心理学 Q1 PSYCHOLOGY, DEVELOPMENTAL
Autism Pub Date : 2025-08-28 DOI:10.1177/13623613251366870
Raaya Alon
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引用次数: 0

摘要

通常发育中的兄弟姐妹对患有唐氏综合症或自闭症的兄弟姐妹的接受程度会影响兄弟姐妹关系的性质以及他们将来照顾残疾兄弟姐妹的意愿。乐观是应对具有挑战性的生活环境的核心人格特征,而对患有唐氏综合症/自闭症的兄弟姐妹的情绪在兄弟姐妹适应复杂环境时是突出的。目前的研究调查了对患有唐氏综合症或自闭症的兄弟姐妹的乐观和情绪如何影响典型的发育中的兄弟姐妹对残疾兄弟姐妹的接受程度。还考虑了人口统计学变量的作用(典型发育兄弟姐妹的性别、诊断和残疾兄弟姐妹的独立功能)。参与者包括520名犹太以色列兄弟姐妹(189名兄弟,331名姐妹,年龄在18-27岁)。其中,284人的兄弟姐妹患有唐氏综合症,236人的兄弟姐妹患有自闭症。兄弟姐妹完成了关于乐观、情绪和接受度的自我报告问卷。三向互动的层次回归显示,乐观、性别、兄弟姐妹的诊断和独立功能解释了接受度差异的重要部分。研究结果强调了培养乐观情绪和情绪处理的重要性,尤其是对自闭症患者的兄弟姐妹和兄弟之间。这些结果对旨在改善兄弟姐妹关系和未来照顾的干预措施具有启示意义。作为唐氏综合症或自闭症患者的兄弟姐妹,可以影响兄弟姐妹对残疾兄弟姐妹的感受和照顾。这项研究着眼于乐观(一种普遍的积极前景)和情绪与接受残疾个体的关系。该研究还考虑了非残疾兄弟姐妹的性别、诊断(唐氏综合症或自闭症)以及残疾兄弟姐妹的独立能力水平是否对接受程度有影响。这项研究的参与者是520名犹太裔以色列年轻人(年龄在18-27岁之间),他们的兄弟姐妹患有唐氏综合症或自闭症。他们回答了关于他们的情绪、乐观程度和对残疾兄弟姐妹的接受程度的问题。结果显示,乐观和情绪对接受很重要,但这取决于发育正常的兄弟姐妹是男性还是女性,是否患有唐氏综合症或自闭症,以及他们的独立能力水平。这些发现表明,帮助兄弟姐妹,尤其是自闭症患者的兄弟姐妹,建立乐观情绪,处理情绪,可以改善兄弟姐妹关系,并为未来的照顾角色提供支持。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
How do typically developing brothers and sisters accept their siblings with Down syndrome or autism? An examination of personal characteristics.

Typically developing siblings' acceptance of a sibling with Down syndrome (DS) or autism influences the nature of sibling relations and their willingness to care for their sibling with disability in the future. Optimism is a central personality characteristic in coping with challenging life situations and the emotions toward the sibling with Down syndrome/autism are prominent in siblings' adjustment to their complex circumstances. The current study examined how optimism and emotions toward a sibling with Down syndrome or autism influence typically developing siblings' acceptance of their sibling with a disability. The role of demographic variables (sex of the typically developing sibling, diagnosis, and independent functioning of the sibling with disability) was also considered. Participants included 520 Jewish-Israeli siblings (189 brothers, 331 sisters, aged 18-27). Of these, 284 had siblings with Down syndrome, and 236 had siblings with autism. Siblings completed self-report questionnaires on optimism, emotions, and acceptance. Hierarchical regressions with three-way interactions revealed that optimism, sex, and the sibling's diagnosis and independent functioning explained a significant portion of variance in acceptance. The findings highlight the importance of fostering optimism and emotional processing, particularly for siblings of individuals with autism and among brothers. These results have implications for interventions aimed at improving sibling relationships and future caregiving.Lay AbstractBeing a brother or sister to an individual with Down syndrome or autism can shape how siblings feel about and care for their sibling with the disability. This study looked at how optimism (a general positive outlook) and emotions relate to accepting the individual with the disability. The study also considered whether the non-disabled sibling's gender, diagnosis (Down syndrome or autism), and level of independent capability of the sibling with the disability contributed to the acceptance levels. Participants in the study were 520 Jewish-Israeli young adults (ages 18-27) who had a sibling with Down syndrome or autism. They answered questions about their emotions, optimism, and acceptance of the sibling with the disability. The results showed that optimism and emotions were important for acceptance, but this varied depending on whether the typically developing sibling was male or female, whether the sibling had Down syndrome or autism, and their level of independent capability. These findings suggest that helping siblings, especially brothers of individuals with autism, build optimism and process their emotions, can improve sibling relationships and support future caregiving roles.

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来源期刊
Autism
Autism PSYCHOLOGY, DEVELOPMENTAL-
CiteScore
9.80
自引率
11.50%
发文量
160
期刊介绍: Autism is a major, peer-reviewed, international journal, published 8 times a year, publishing research of direct and practical relevance to help improve the quality of life for individuals with autism or autism-related disorders. It is interdisciplinary in nature, focusing on research in many areas, including: intervention; diagnosis; training; education; translational issues related to neuroscience, medical and genetic issues of practical import; psychological processes; evaluation of particular therapies; quality of life; family needs; and epidemiological research. Autism provides a major international forum for peer-reviewed research of direct and practical relevance to improving the quality of life for individuals with autism or autism-related disorders. The journal''s success and popularity reflect the recent worldwide growth in the research and understanding of autistic spectrum disorders, and the consequent impact on the provision of treatment and care. Autism is interdisciplinary in nature, focusing on evaluative research in all areas, including: intervention, diagnosis, training, education, neuroscience, psychological processes, evaluation of particular therapies, quality of life issues, family issues and family services, medical and genetic issues, epidemiological research.
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