从孕前到产后癫痫妇女健康信息的质量：在线资源的评估

IF 2.3 3区医学 Q2 BEHAVIORAL SCIENCES

Epilepsy & Behavior Pub Date : 2025-08-29 DOI:10.1016/j.yebeh.2025.110656

Jade Parnell , Déirdre Daly , Julia Duff , Aisling Walsh

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引用次数: 0

摘要

背景：许多癫痫女性（WWE）在生殖健康方面做出了复杂的决定。互联网可以为WWE提供从孕前到产后的特定教育资源。本研究回顾了从孕前到产后针对WWE的在线资源的类型和质量。方法采用“女性与癫痫”、“女性癫痫”、“孕前到产后与癫痫女性”、“癫痫与妊娠”4个关键词，对b谷歌、YouTube、GooglePlay Store和Spotify进行系统搜索。HONcode和DISCERN工具用于测量资源的可靠性和整体质量。额外的研究特定问题包括评估每个资源的受众相关性。结果共识别出240条初始搜索结果。其中43项资源用于质量评价。这些资源包括26个网站（22%），13个视频（33%），4个播客（10%），没有应用程序。这43个资源的平均质量得分为47.97 (SD = 13.67)，满分为75分，被评为“一般”。在这26个网站中，有12%通过了HONCode认证。信息的可读性/可听性、语言性、敏感性、可及性、价值和一致性的平均得分较高（从1到5分，M = 3.90, SD = 1.13 ~ M = 4.27, SD = 0.930）。结论在线WWE资源是可用的，但仍需改进以提高其整体质量。本文提供了一份经审查的资源清单，以支持为癫痫妇女提供可靠的信息。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

Quality of health information for women with epilepsy from preconception to postpartum: An evaluation of online resources

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Quality of health information for women with epilepsy from preconception to postpartum: An evaluation of online resources

Background

Many women with epilepsy (WWE) navigate complex decisions regarding their reproductive health. The internet can provide specific educational resources for WWE from preconception to postpartum. This study reviewed the type and quality of online resources targeting WWE from preconception to postpartum.

Methods

A systematic search of Google, YouTube, GooglePlay Store, and Spotify was conducted online using four search terms: “women and epilepsy,” “epilepsy in women,” “preconception to postpartum and women with epilepsy,” and “epilepsy and pregnancy.” The HONcode and DISCERN tools were used to measure the reliability and overall quality of the resources. Additional study-specific questions were included to assess each resource’s audience relevancy.

Results

A total of 240 initial search results were identified. Of these, 43 resources were included for quality assessment. These resources comprised of 26 websites (22 %), 13 videos (33 %), 4 podcasts (10 %), and no Applications. The average quality score for these 43 resources was 47.97 (SD = 13.67), out of a maximum of 75, which is rated as ‘fair.’ Out of the 26 websites, 12 % were HONCode certified. The average readability/listenability, language, sensitivity, accessibility, value, and consistency of information was high (from a scale of 1 to 5, the scores ranged from M = 3.90, SD = 1.13 to M = 4.27, SD = 0.930).

Conclusion

Online resources for WWE are deemed usable, however improvements could be made to enhance their overall quality. This paper provides a list of reviewed resources to support in the delivery of reliable information for women with epilepsy.

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来源期刊

Epilepsy & Behavior 医学-行为科学

CiteScore

5.40

自引率

15.40%

发文量

385

审稿时长

43 days

期刊介绍： Epilepsy & Behavior is the fastest-growing international journal uniquely devoted to the rapid dissemination of the most current information available on the behavioral aspects of seizures and epilepsy. Epilepsy & Behavior presents original peer-reviewed articles based on laboratory and clinical research. Topics are drawn from a variety of fields, including clinical neurology, neurosurgery, neuropsychiatry, neuropsychology, neurophysiology, neuropharmacology, and neuroimaging. From September 2012 Epilepsy & Behavior stopped accepting Case Reports for publication in the journal. From this date authors who submit to Epilepsy & Behavior will be offered a transfer or asked to resubmit their Case Reports to its new sister journal, Epilepsy & Behavior Case Reports.