弥合世界:第二代肿瘤青少年与姑息治疗需求的文化挑战的案例系列

Q3 Medicine
A. Santini , A. Mercante , A. Marinetto , F. Benini
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引用次数: 0

摘要

在儿童姑息治疗(PPC)中,儿童和家庭的文化维度在影响医疗保健经验和结果方面的作用日益得到认可。因此,一个具有文化敏感性的护理项目对于以人为本、整体和量身定制的PPC方法至关重要。然而,这并不总是那么容易。第二代移民具有独特的社会和文化背景,在平衡他们的双文化身份方面可能面临许多挑战。本报告探讨了在不同文化背景下PPC领域内与共同决策和个人护理计划相关的复杂性。它采用了一个说明性的案例系列来强调需要在不同的文化之间建立桥梁,年轻人在其中生活并找到平衡。作为家庭的中间人,她们经常忍受着不舒服和苛刻的角色,这导致她们对个人需求和关切的认识减少。临床医生通常发现,直接与青少年接触比与他们的父母接触更有效,他们通常假设父母与他们的孩子有着相似的价值观和信仰。然而,这种假设可能忽略了重要的文化和代际差异。在这些动态中向青少年提供全面支持是必不可少的,因为这有助于他们管理自己复杂的角色和应对文化差异。同时,提高临床医生对这些动态的认识对于促进更具文化竞争力的护理方法至关重要。本文强调有效沟通和弥合文化差异的策略,概述了在多元文化环境中实践和政策的含义。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Bridging worlds: A case-series on cultural challenges for second-generation oncological adolescents with palliative care needs
The role of the child and family’s cultural dimension in influencing healthcare experiences and outcomes has been increasingly recognized in pediatric palliative care (PPC). Therefore, a culturally sensitive project of care is essential to allow the person-centered, holistic, and tailored approach that characterizes PPC. However, this is not always easy.
Second-generation immigrants have a unique social and cultural background and may face numerous challenges in balancing their bicultural identity. This report explores the complexities associated with shared decision-making and individual care planning within the realm of PPC across diverse cultural contexts. It employs an illustrative case series to emphasize the need to build bridges between different cultures within which the young person lives and finds balance.
Serving as intermediaries for their families, they often endure uncomfortable and demanding roles, which results in a diminished awareness of their personal needs and concerns. Clinicians generally find it more effective to engage directly with the adolescent rather than with their parents, often presuming that the parents share values and beliefs similar to those of their child. However, such assumptions may overlook significant cultural and generational disparities.
Delivering comprehensive support to adolescents within these dynamics is imperative, as it assists them in managing their intricate roles and navigating cultural disparities. Concurrently, enhancing clinicians’ awareness of these dynamics is vital for promoting a more culturally competent approach to care. This discourse emphazises strategies for effective communication and bridging cultural differences, outlining implications for practice and policy in multicultural environments.
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来源期刊
Ethics, Medicine and Public Health
Ethics, Medicine and Public Health Medicine-Health Policy
CiteScore
2.20
自引率
0.00%
发文量
107
审稿时长
42 days
期刊介绍: This review aims to compare approaches to medical ethics and bioethics in two forms, Anglo-Saxon (Ethics, Medicine and Public Health) and French (Ethique, Médecine et Politiques Publiques). Thus, in their native languages, the authors will present research on the legitimacy of the practice and appreciation of the consequences of acts towards patients as compared to the limits acceptable by the community, as illustrated by the democratic debate.
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