国际癌症研究机构/世界卫生组织BBMRI-ERIC学院第一届伦理、法律和社会影响研讨会的见解和展望。

IF 1.4 4区生物学

Biopreservation and Biobanking Pub Date : 2025-08-19 DOI:10.1177/19475535251370637

Michaela Th Mayrhofer, Marialuisa Lavitrano, Zisis Kozlakidis

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引用次数: 0

摘要

首届生物银行和生物分子资源研究基础设施-学院伦理、法律和社会影响（ELSI）研讨会于2024年6月在里昂IARC/WHO举行，通过跨学科的视角探讨了生物银行和生物医学研究的伦理、法律和社会层面。大会共分八个主题会议，讨论了数据隐私、人工智能伦理、监管合规、基因组学和公众参与等多个主题，展示了全球专家和年轻研究人员的贡献。研讨会强调了平衡研究创新与社会和伦理考虑的重要性，为建立信任、性别敏感方法和跨境合作提供了见解。这次研讨会标志着以elsi为重点的讨论的一个里程碑，为持续的参与奠定了基础，下一次会议计划于2025年在毕尔巴鄂举行。

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Insights and Outlook from the First Ethical, Legal, and Social Implication Symposium of the BBMRI-ERIC Academy at International Agency for Research on Cancer/World Health Organization.

The first Biobanking and BioMolecular resources Research Infrastructure-Academy Ethical, Legal, and Social Implications (ELSI)'s Symposium, held in June 2024 at IARC/WHO in Lyon, explored ethical, legal, and societal dimensions of biobanking and biomedical research through interdisciplinary perspectives. Over eight thematic sessions, the event addressed diverse topics including data privacy, artificial intelligence ethics, regulatory compliance, genomics, and public participation, showcasing contributions from global experts and young researchers. The symposium emphasized the importance of balancing research innovation with societal and ethical considerations, offering insights into trust-building, gender-sensitive approaches, and cross-border collaboration. Marking a milestone for ELSI-focused discourse, the symposium laid the groundwork for ongoing engagement, with the next meeting planned for 2025 in Bilbao.

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来源期刊

Biopreservation and Biobanking Biochemistry, Genetics and Molecular Biology-General Biochemistry,Genetics and Molecular Biology

自引率

12.50%

发文量

114

期刊介绍： Biopreservation and Biobanking is the first journal to provide a unifying forum for the peer-reviewed communication of recent advances in the emerging and evolving field of biospecimen procurement, processing, preservation and banking, distribution, and use. The Journal publishes a range of original articles focusing on current challenges and problems in biopreservation, and advances in methods to address these issues related to the processing of macromolecules, cells, and tissues for research. In a new section dedicated to Emerging Markets and Technologies, the Journal highlights the emergence of new markets and technologies that are either adopting or disrupting the biobank framework as they imprint on society. The solutions presented here are anticipated to help drive innovation within the biobank community. Biopreservation and Biobanking also explores the ethical, legal, and societal considerations surrounding biobanking and biorepository operation. Ideas and practical solutions relevant to improved quality, efficiency, and sustainability of repositories, and relating to their management, operation and oversight are discussed as well.