自闭症儿童父母的经历、困难与应对机制:一项现象学研究

IF 1.5 Q2 NURSING
Gamze Kaş Alay, Havva Kaçan, Seniha Kurtoğlu
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引用次数: 0

摘要

自闭症谱系障碍(ASD)有可能给父母带来许多挑战和问题,因为他们一生都有问题行为。目的采用多学科合作的方法,探讨ASD患儿家长的经历、困难及应对机制。本研究采用描述性定性研究方法。在结构化访谈协议的指导下,通过对12位家长进行半结构化、面对面的个人访谈收集数据。使用MAXQDA程序进行数据管理和分析。数据分析采用了专题方法。结果参与者报告了与抚养被诊断为ASD的孩子相关的挑战和积极情绪,并描述了各种应对策略。访谈数据的专题分析揭示了以父母视角为中心的五个关键主题:(1)养育自闭症儿童;(2)家庭对诊断的反应;(3)心理和社会困难;(4)未来相关的担忧;(5)感知到的支持需求。结论自闭症儿童的父母在其一生中必须应对许多问题。需要资源来支持父母的生理、心理和社会。通过改进现有的保健和社会政策、建立正式的支助网络和便利获得儿童保育服务,可以加强向父母提供标准化教育和支助。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Experiences, Difficulties, and Coping Mechanisms of Parents With Children With Autism: A Phenomenology Study in Türkiye

Background

Autism spectrum disorder (ASD) has the potential to create a number of challenges and problems for parents due to having lifelong problem behaviors.

Purpose

The aim of this qualitative study was to explore the experiences, difficulties, and coping mechanisms of parents with children with ASD through a multidisciplinary team approach.

Methodology

This study employed a descriptive qualitative research methodology. Data were collected through semi-structured, face-to-face individual interviews with 12 parents, guided by a structured interview protocol. Data management and analysis were conducted using the MAXQDA program. A thematic approach was used in data analysis.

Results

Participants reported experiencing both challenges and positive emotions related to raising a child diagnosed with ASD, and described a variety of coping strategies. Thematic analysis of the interview data revealed five key themes centered on parental perspectives: (1) parenting a child with ASD, (2) families' reactions to the diagnosis, (3) psychological and social difficulties, (4) future-related concerns, and (5) perceived support needs.

Conclusions

Parents of children have ASD have to cope with many problems throughout their lives. Resources are needed to support parents bio-psycho-socially. Enhancing the provision of standardized education and support to parents can be achieved by improving existing health and social policies, establishing formal support networks, and facilitating access to childcare services.

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来源期刊
CiteScore
2.90
自引率
6.70%
发文量
41
期刊介绍: Journal of Child and Adolescent Psychiatric Nursing (JCAPN) is the only nursing journal to focus exclusively on issues of child and adolescent mental health around the world. As a primary resource for nurses and other healthcare professionals in clinical practice, educator roles, and those conducting research in mental health and psychiatric care, the journal includes peer-reviewed, original articles from a wide range of contributors in a broad variety of settings.
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