“将世界带入家中变得越来越重要”:探索文化包容性痴呆症友好社区的障碍和促进因素。

IF 2.2
Eman Shatnawi, Genevieve Z Steiner-Lim, Gabriela E Caballero, Irena Stojcevska, Thi Hang Vu, Nhan Ho Trong Pham, Nicky Morrison, Michelle DiGiacomo, Ann Dadich, Diana Karamacoska, Canterbury Bankstown Dementia Alliance
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引用次数: 0

摘要

痴呆症友好社区可以提高痴呆症患者的社区参与和社会福祉。然而,文化和语言多样化的人通常被排除在痴呆症友好型社区设计过程之外或代表性不足。本研究旨在确定影响文化和语言不同的痴呆症患者社区参与的因素,以及他们对澳大利亚坎特伯雷-班克斯敦痴呆症友好社区的建议。双语研究人员用三种语言进行了半结构化访谈(N = 17): 7种是英语访谈(N = 6,前护理人员N = 1);5例为阿拉伯语患者(痴呆症患者n = 1;二人组n = 3;前护理人员n = 1), 5例为越南语患者(二人组n = 4;前护理人员n = 1)。这些访谈探讨了社区参与的障碍和促进因素,以及设计一个文化包容性的痴呆症友好社区的考虑因素。访谈记录按主题进行归纳分析。影响参与的因素包括社区对痴呆症的看法、家庭支持、交通和公共环境的可及性。阿拉伯语和越南语群体的成员面临语言障碍和文化耻辱,这增加了被排斥和孤立的感觉。作为回应,他们强调需要便利的交通、包容的社会团体和社区范围的痴呆症教育,以创造一个对痴呆症更友好的环境。他们的建议与传统的痴呆症友好社区原则相一致,随后被当地痴呆症联盟采用,以设计一个更具包容性和文化响应性的痴呆症友好社区。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
"It Became More and More Important to Bring the World Into the House": Exploring the Barriers and Facilitators to a Culturally Inclusive Dementia-Friendly Community.

Dementia-friendly communities can increase community participation and social wellbeing for people impacted by dementia. However, culturally and linguistically diverse people have typically been excluded or underrepresented from dementia-friendly community design processes. This study aimed to establish the factors that affect community engagement for culturally and linguistically diverse people impacted by dementia, and their suggestions for a dementia-friendly community in Canterbury-Bankstown, Australia. Bilingual researchers conducted semi-structured interviews (N = 17) in three languages: seven were in English (dyads n = 6; former carer n = 1); five were in Arabic (person with dementia n = 1; dyads n = 3; former carer n = 1) and five were in Vietnamese (dyads n = 4; former carer n = 1). These interviews explored barriers and facilitators to community engagement and design considerations for a culturally inclusive dementia-friendly community. Interview transcripts were thematically analysed, inductively. Factors that affected participation included community perceptions of dementia, family support, and the accessibility of transport and public environments. Members of the Arabic and Vietnamese groups faced language barriers and cultural stigma, which increased a sense of exclusion and isolation. In response, they emphasised the need for accessible transport, inclusive social groups, and community-wide dementia education to create a more dementia-friendly environment. Their suggestions aligned with traditional dementia-friendly community principles and were subsequently adopted by the local dementia alliance in designing a more inclusive and culturally responsive dementia-friendly community.

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