在拉丁美洲建立银屑病卓越中心:real - panar小组的共识建议。

Rodrigo Garcia-Salinas,Alexis Ogdie,Fernando Sommerfleck,Enrique R Soriano,Andre L Ribeiro,Verónica Avellanal,Javier Badilla,Antonio Cachafeiro,Juan Raul Castro Ayarza,Nelly Colman,Boris Garro,Sebastián Ibañez Vodnizza,Angela Londoño-Garcia,John Londoño,Daniel Palleiro,Cesar Pacheco-Tena,Carlos Rios,Jossiel Then,Manuel F Ugarte-Gil,Carlo Vinicio Caballero,Paula A Beltran,Pedro Santos-Moreno
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引用次数: 0

摘要

目的:银屑病(PsD)是一种慢性、多系统炎症,其特点是表现不均匀,包括外周关节炎、轴向受累、银屑病、皮肤和指甲银屑病。这种情况对患者有显著的身体、情绪和社会心理影响。在拉丁美洲,医疗保健差距加剧了诊断和治疗的延误,增加了PsD和相关合并症的负担。本研究旨在建立卓越中心(CoE)的区域适应标准,以优化PsD护理。方法由来自12个拉丁美洲国家的18名风湿病和皮肤病学专家组成的小组使用德尔菲法制定了CoE标准。一篇叙述性文献综述告知了这一过程,并使用李克特量表评估了标准。共识定义为≥70%的同意。面对面的会议细化了未解决的问题。根据Donabedian的质量评价模型,将标准分为结构、过程和结果。结果定义了两种CoE类型:最优型和模型型。最佳CoEs需要一个多学科的团队,包括风湿病学家、皮肤科医生、护士和心理学家。模型coe扩展了这个团队,包括胃肠病学家,眼科医生,物理医生,以及其他专家。结构标准强调数据管理的基础设施和电子系统。过程标准包括以患者为中心的教育、多学科咨询和社会心理支持。结果集中在标准化临床测量工具(如PASI, DAPSA)和“治疗到目标”策略上。支持率从80%到100%不等。结论:该共识建立了拉丁美洲PsD护理CoE的框架,解决了结构、流程和结果标准,以改善临床结果、患者满意度和医疗保健系统的可持续性。这些标准为在资源有限的情况下加强PsD管理提供了路线图。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Establishing Centers of Excellence for Psoriatic Disease in Latin America: Consensus Recommendations from the REAL-PANLAR Group.
OBJECTIVE Psoriatic Disease (PsD) is a chronic, multisystem inflammatory condition characterized by heterogeneous manifestations, including peripheral arthritis, axial involvement, enthesitis, and cutaneous and nail psoriasis. The condition has significant physical, emotional, and psychosocial impacts on patients. In Latin America, healthcare disparities exacerbate delays in diagnosis and treatment, increasing the burden of PsD and associated comorbidities. This study aimed to establish regionally adapted criteria for Centers of Excellence (CoE) to optimize PsD care. METHODS A panel of 18 experts in rheumatology and dermatology from 12 Latin American countries developed CoE criteria using the Delphi methodology. A narrative literature review informed the process, and criteria were evaluated using a Likert scale. Consensus was defined as ≥70% agreement. An in-person meeting refined unresolved items. The criteria were categorized into structure, process, and outcomes, based on Donabedian's quality evaluation model. RESULTS Two types of CoE were defined: Optimal and Model. Optimal CoEs require a multidisciplinary team including rheumatologists, dermatologists, nurses, and psychologists. Model CoEs expand this team to include gastroenterologists, ophthalmologists, physiatrists, among other specialists. Structural criteria emphasized infrastructure and electronic systems for data management. Process criteria included patient-centered education, multidisciplinary consultations, and psychosocial support. Outcomes focused on standardized clinimetric tools (e.g., PASI, DAPSA) and the "treat-to-target" strategy. Approval ratings ranged from 80% to 100%. CONCLUSION The consensus establishes a framework for CoE in PsD care in Latin America, addressing structural, process, and outcome criteria to improve clinical outcomes, patient satisfaction, and healthcare system sustainability. These standards provide a roadmap for enhancing PsD management in resource-limited settings.
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