“照顾者的生活就是无人照顾的生活”:巴西脑瘫儿童母亲在精神卫生保健中的经历。

IF 2.1 3区 心理学 Q2 PSYCHOLOGY, DEVELOPMENTAL
Danton Matheus de Souza, João Vitor de Jesus Santana, Letícia Cristina Pereira Coelho, Sofia de Souza Cruz, Ana Paula Scoleze Ferrer, Jaqueline Lemos de Oliveira, Lisabelle Mariano Rossato
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引用次数: 0

摘要

目的:了解脑瘫儿童的母亲在护理对其心理健康的影响及其参与巴西社会心理护理网络方面的经验。方法:采用布鲁默符号互动主义的理论框架,进行描述性-探索性质的研究。对年龄在18岁或以上的巴西妇女进行了访谈,她们至少有一个孩子患有CP,年龄在28天至19岁以下。数据收集的重点是他们在精神卫生保健方面的经验以及他们与巴西社会心理保健网络的相互作用。这些采访被记录下来并进行专题内容分析。结果:15名女性参与,平均年龄36岁,主要是高中和高等教育学历,远离工作场所,已婚。从互动分析中出现了两个中心类别:“我的生活不正常”:母亲在心理健康需求中与患有CP的孩子生活;“如果你需要我,我就在这里”:对母亲自我保健的追求,面临的障碍,以及另一种途径,具有相互关联的子类别。结论:巴西CP患儿母亲的心理健康状况不明显且存在多重挑战。她们的社会交往影响她们的社会心理健康,这一点虽然得到承认,但往往因照顾子女而被忽视。这些挑战延伸到巴西的社会心理护理网络,其特点是难以获得满足其需求的适当护理。作为另一种选择,母亲们参与自我护理活动,重新与她们作为女性的个人需求联系起来。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
"The caregiver's life is the uncared-for life": experiences of mothers of children with cerebral palsy in mental health care in Brazil.

Objective: To understand the experiences of mothers of children with cerebral palsy (CP) regarding the impact of caregiving on their mental health and their engagement with Brazil's psychosocial care network.

Method: This descriptive-exploratory qualitative study employed the theoretical framework of Symbolic Interactionism by Herbert Blumer. Interviews were conducted with Brazilian women aged 18 years or older, who had at least one child with CP aged between 28 days and under 19 years. Data collection focused on their experiences with mental health care and their interactions with Brazil's psychosocial care network. The interviews were transcribed and subjected to thematic content analysis.

Results: Fifteen women participated, with an average age of 36 years, predominantly with high school and higher education, who were distanced from the workforce and were married. Two central categories emerged from the interactions analyzed: "My life is not normal": Maternal life with a child with CP amidst mental health demands; and "If you need me, I'm here": The pursuit of maternal self-care, the obstacles faced, and an alternative route, with interconnected subcategories.

Conclusion: The mental health of Brazilian mothers of children with CP is marked by invisibility and multiple challenges. Their social interactions influence their psychosocial well-being, which, while acknowledged, is often neglected in favor of caregiving for their child. These challenges extend to the psychosocial care network in Brazil, characterized by barriers to accessing appropriate care for their needs. As an alternative, mothers engage in self-care activities to reconnect with their personal needs as women.

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来源期刊
Journal of Pediatric Psychology
Journal of Pediatric Psychology PSYCHOLOGY, DEVELOPMENTAL-
CiteScore
6.00
自引率
11.10%
发文量
89
期刊介绍: The Journal of Pediatric Psychology is the official journal of the Society of Pediatric Psychology, Division 54 of the American Psychological Association. The Journal of Pediatric Psychology publishes articles related to theory, research, and professional practice in pediatric psychology. Pediatric psychology is an integrated field of science and practice in which the principles of psychology are applied within the context of pediatric health. The field aims to promote the health and development of children, adolescents, and their families through use of evidence-based methods.
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