南非农村母亲对减轻脑瘫护理策略的看法。

IF 1.5 Q4 HEALTH CARE SCIENCES & SERVICES
African Journal of Disability Pub Date : 2025-07-07 eCollection Date: 2025-01-01 DOI:10.4102/ajod.v14i0.1632
Ngokwana C Rachamose
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引用次数: 0

摘要

背景:大量证据表明,脑瘫儿童的主要照护者在其照护角色方面存在障碍;然而,这些护理人员也报告了遇到的因素,促进他们的护理经验。目的:本文旨在探讨促进和支持南非农村脑瘫儿童护理人员的因素。方法:采用探索性质的研究设计。采用有目的方便抽样和滚雪球抽样的方法,选取10名3 ~ 18岁脑瘫患儿的主要照顾者。采用半结构化访谈法收集数据。采用专题分析对数据进行分析。结果:本研究确定了促进和支持脑瘫儿童护理人员的几个因素。这些因素包括社会支持、照顾者理解和接受子女残疾的能力、心理健康支持和照顾者获得资源的机会。结论:研究发现,在农村社区照顾脑瘫儿童的护理人员可以获得一定的支持系统,这有助于他们的护理经验;但是,需要加强和维持这种支助系统,以减轻护理负担。贡献:本文强调了在南非农村社区照顾脑瘫儿童的促进因素和支持因素,以告知利益相关者在抚养限制性残疾儿童的背景下可能的孕产妇心理健康干预策略。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Rural South African mothers' perspectives on strategies to mitigate cerebral palsy caregiving.

Background: Ample evidence suggests that primary caregivers of children with cerebral palsy experience barriers relating to their caregiving role; however, these caregivers also reported encountering factors that facilitate their caregiving experience.

Objectives: This article aimed to explore factors that facilitate and support caregivers of children living with cerebral palsy in rural South Africa.

Method: An exploratory qualitative research design was employed. Purposive convenience and snowball sampling were used to select 10 primary caregivers of children living with cerebral palsy between the ages of 3 years and 18 years. A semi-structured interview was used to collect data. Data were analysed using thematic analysis.

Results: This research identified several factors for facilitating and supporting caregivers of children living with cerebral palsy. These include social support, caregivers' ability to understand and accept their children's disability, mental health support and caregivers' access to resources.

Conclusion: The study found that caregivers looking after children living with cerebral palsy in rural communities have access to certain support systems that aid their caregiving experiences; however, such systems of support need to be strengthened and sustained to reduce the burden of care.

Contribution: This article highlights the facilitators and supportive factors of caring for children living with cerebral palsy in rural communities of South Africa to inform stakeholders on possible intervention strategies for maternal mental health in the context of raising a child with limiting disabilities.

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来源期刊
African Journal of Disability
African Journal of Disability HEALTH CARE SCIENCES & SERVICES-
CiteScore
2.10
自引率
5.90%
发文量
50
审稿时长
20 weeks
期刊介绍: The African Journal of Disability, the official journal of CRS, AfriNEAD and CEDRES, introduce and discuss issues and experiences relating to and supporting the act of better understanding the interfaces between disability, poverty and practices of exclusion and marginalisation. Its articles yield new insight into established human development practices, evaluate new educational techniques and disability research, examine current cultural and social discrimination, and bring serious critical analysis to bear on problems shared across the African continent. Emphasis is on all aspects of disability particularity in the developing African context. This includes, amongst others: -disability studies as an emerging field of public health enquiry -rehabilitation, including vocational and community-based rehabilitation -community development and medical issues related to disability and poverty -disability-related stigma and discrimination -inclusive education -legal, policy, human rights and advocacy issues related to disability -the role of arts and media in relation to disability -disability as part of global Sustainable Development Goals transformation agendas -disability and postcolonial issues -globalisation and cultural change in relation to disability -environmental and climate-related issues linked to disability -disability, diversity and intersections of identity -disability and the promotion of human development.
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