重获生命:在社区为青少年和青年癌症幸存者提供的基于虚拟同伴的心理支持。

IF 1.2 4区 医学 Q4 ONCOLOGY
Elin Irestorm, Claire E Wakefield, Kate Hetherington, Brittany C McGill, Holly E Evans, Fiona McDonald, Pandora Patterson, Annette Beattie, Richard J Cohn, Ursula M Sansom-Daly
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引用次数: 0

摘要

目的:青少年和年轻成人(AYA)癌症幸存者有独特的心理需求,需要量身定制的支持,因为他们在癌症治疗后从医院环境过渡。本研究旨在评估在线“重获生命”项目在早期癌症生存期改善AYA老年幸存者心理适应的安全性和临床有效性。方法:在社区环境中,由合作的癌症支持组织训练有素的社会心理工作人员进行干预。参与者接受了七次基于认知行为疗法的在线课程,六次每周90分钟的小组课程和一次强化课程。采用前后设计,参与者在摄入时和干预完成后6个月完成患者报告的结果测量。测量评估了心理困扰、癌症相关问题、同伴支持和项目收益/负担。结果:30名13-39岁的混合性癌症患者(平均诊断时间为2.9年)完成了两项评估。我们没有发现证据表明干预减少了心理困扰。然而,在完成“重获生活”6个月后,aya报告的癌症相关问题减少(t(29) = 2.63, p = 0.003),同伴支持改善(t(29) = 8.04, p = 0.015),效应大小中等。大多数参与者报告没有项目负担(72%),并且发现“重获生活”至少有些好处(79%)。大多数人(73%)报告在干预后仍与该组的助理助理保持联系。结论:在完成“重获生活”六个月后,aya报告有更多的同伴支持和更少的癌症相关问题。这项研究解决了针对AYA幸存者需求的心理服务的充分记录差距。在社区提供的“重获生命”解决了AYAs关注的领域,并可能教授幸存者适应癌症治疗后生活的适应技能。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Recapturing Life: Virtual Peer-Based Psychological Support for Adolescent and Young Adult Cancer Survivors Delivered in the Community.

Purpose: Adolescent and young adult (AYA) cancer survivors have unique psychological needs and require tailored support, as they transition from hospital settings following cancer treatment. This study aimed to evaluate the safety and clinical effectiveness of the online "Recapture Life" program to improve AYA aged survivors' psychological adjustment in early cancer survivorship. Methods: The intervention was delivered in community settings, by trained psychosocial staff at partnering cancer-support organizations. The participants received seven cognitive behavioral therapy-based online sessions six weekly 90-minute group sessions and a booster session. A pre-post design was used, where participants completed patient-reported outcome measures at intake, and 6 months after intervention completion. Measures assessed psychological distress, cancer-related problems, peer support, and program benefit/burden. Results: Thirty 13-39-year-olds with mixed cancer diagnoses (mean time since diagnosis 2.9 years) completed both assessments. We did not find evidence that the intervention reduced psychological distress. However, 6 months after completing Recapture Life, AYAs reported fewer cancer-related problems (t(29) = 2.63, p = 0.003) and improved peer support (t(29) = 8.04, p = 0.015), with medium effect sizes. Most participants reported no program burden (72%) and found Recapture Life at least somewhat beneficial (79%). Most (73%) reported staying in contact with AYAs from their group post-intervention. Conclusion: Six months after completing Recapture Life, AYAs reported having more peer support and fewer cancer-related problems. This study addresses a well-documented gap in psychological services tailored to AYA survivors' needs. Recapture Life delivered in the community addressed areas of concern for the AYAs and may teach adaptive skills for survivors adjusting to life after cancer treatment.

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来源期刊
CiteScore
3.70
自引率
15.00%
发文量
114
期刊介绍: Journal of Adolescent and Young Adult Oncology (JAYAO) breaks new ground as the first cancer journal dedicated to all aspects of adolescent and young adult (AYA)-aged cancer patients and survivors. JAYAO is the only central forum for peer-reviewed articles, reviews, and research in the field, bringing together all AYA oncology stakeholders and professionals across disciplines, including clinicians, researchers, psychosocial and supportive care providers, and pediatric and adult cancer institutions.
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