一份在线问卷改善了特应性湿疹患儿的治疗效果。

IF 1.8 4区 医学 Q2 DERMATOLOGY
Danielle Paea, Kate L Francis, David Orchard
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引用次数: 0

摘要

背景:特应性皮炎(AD)是一种管理复杂的疾病,因为它涉及到各种诱因和治疗方案的重要教育。在许多情况下,获得湿疹专科护理的机会往往有限,导致AD患儿的父母寻求在线支持,以获得有效管理策略的指导。目的:该项目的目的是为正在等待专家预约孩子湿疹的父母提供在线“湿疹诱因”问卷。主要目的是确定使用该问卷是否会改善儿童的湿疹严重程度,在初次预约时通过评分特应性皮炎(SCORAD)临床工具进行评估。其次,确定是否减少了对专家预约的需求。这可以通过首次预约取消率增加和/或由于完成在线问卷改善了湿疹管理和控制而减少了对检查预约的需求来证明。方法:在一项随机对照研究中,等待他们患有AD的孩子预约的家庭被分配在预约前获得在线湿疹触发问卷,或者在没有预约前问卷的情况下继续进行标准预约流程。计算样本量为100(每组50),使用90%的功率检测SCORAD中10分的差异。结果:有119个家庭获得了入选资格。108个家庭被随机分组,其中55个(49%)被分配到干预组。干预组的平均SCORAD评分为21.4 (SD: 14.0),低于对照组的25.2 (SD: 15.6)(平均差异为-3.8 [95% CI: -9.6 ~ 2.0], p = 0.195),表明湿疹预后较好。在随访中,干预组(46%)比对照组(74%)预约少28% (95% CI: 10 - 46, p = 0.003)。在“治疗管理分析”方法下,完成触发问卷干预的组(n = 30)与对照组和未完成问卷干预的组(n = 74)进行比较,干预组(平均得分17.3 SD: 12.5)和未完成问卷干预的组(平均得分25.7,SD: 15.2)的平均SCORAD差异更为明显(-8.4 [95% CI: -14.7至-2.1,p = 0.010])。结论:在线湿疹触发问卷在初级保健机构管理儿童AD方面提供了积极的结果,在等待专家预约时提供了护理和建议。在完成问卷调查的个体中,发现阿尔茨海默病的严重程度较不明显,从而减少了随访预约的需要。它为提高儿童及其家庭的健康和福祉结果提供了机会,同时也减少了对AD专科护理的长期需求。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
An Online Questionnaire Improves Outcomes for Children With Atopic Eczema.

Background: Atopic dermatitis (AD) is a condition where management can be complicated as it involves significant education about a variety of triggers and treatment options. Access to specialist care for eczema is often limited in many situations, leading parents of children with AD to seek online support for guidance on effective management strategies.

Objective: The intention of the project was to provide an online 'eczema triggers' questionnaire to parents who are waiting for a specialist appointment for their child's eczema. The primary aim was to determine whether using this questionnaire will improve the child's eczema severity as assessed by the SCORing Atopic Dermatitis (SCORAD) clinical tool at the initial appointment. Secondly, to determine if there is a reduced need for a specialist appointment. This can be demonstrated in the form of an increased rate of cancellation in the number of first appointments and/or a decreased need for a review appointment due to improved eczema management and control as a result of completing the online questionnaire.

Methods: A randomised controlled study where families waiting for an appointment for their child with AD were allocated to receive access to an online eczema triggers questionnaire before their appointment or to continue with the standard booking process without a pre-appointment questionnaire. The sample size was calculated to be 100 (50 per group), using 90% power to detect a difference of 10 points in the SCORAD.

Results: There were 119 families assessed for eligibility. One hundred and eight families were randomised, with 55 (49%) assigned to the intervention group. The mean SCORAD score was lower (indicating better eczema outcome) in the intervention group 21.4 (SD: 14.0), compared to the control group 25.2 (SD: 15.6) (mean difference: -3.8 [95% CI: -9.6 to 2.0], p = 0.195). There were 28% (95% CI: 10 to 46, p = 0.003) fewer appointments booked in the intervention group (46%) compared to the control group (74%) at follow up. Under an 'analysis by treatment administered' approach where the group who completed the triggers questionnaire intervention (n = 30) was compared to the control group and the non-completers (n = 74) the difference in mean SCORAD was more pronounced (-8.4 [95% CI: -14.7 to -2.1, p = 0.010]) between the intervention group (mean score 17.3 SD: 12.5) and non-completers (mean score 25.7, SD: 15.2).

Conclusion: The online eczema triggers questionnaire provides positive outcomes in managing a child's AD in the primary care setting, giving access to care and advice whilst waiting for a specialist appointment. The severity of AD upon presentation was found to be less pronounced in individuals who completed the questionnaire, resulting in a reduced need for follow-up appointments. It offers an opportunity to enhance health and well-being outcomes for children and their families whilst also reducing the long-term demand for specialist AD care.

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来源期刊
CiteScore
3.20
自引率
5.00%
发文量
186
审稿时长
6-12 weeks
期刊介绍: Australasian Journal of Dermatology is the official journal of the Australasian College of Dermatologists and the New Zealand Dermatological Society, publishing peer-reviewed, original research articles, reviews and case reports dealing with all aspects of clinical practice and research in dermatology. Clinical presentations, medical and physical therapies and investigations, including dermatopathology and mycology, are covered. Short articles may be published under the headings ‘Signs, Syndromes and Diagnoses’, ‘Dermatopathology Presentation’, ‘Vignettes in Contact Dermatology’, ‘Surgery Corner’ or ‘Letters to the Editor’.
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