成年中期自闭症成人体育活动的观点和经验。

IF 5.6 2区 心理学 Q1 PSYCHOLOGY, DEVELOPMENTAL
Autism Pub Date : 2025-08-12 DOI:10.1177/13623613251360862
James McLeod, Martin Roderick, Mary Hanley, Deborah M Riby, Patrick Jachyra
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引用次数: 0

摘要

自闭症成人的身体活动(PA)参与度较低;然而,目前尚不清楚为什么会出现这种情况。到目前为止,很少有研究包括自闭症成年人在成年中期的观点,以了解如何支持他们的个人助理和理解他们日常生活的复杂性。17名年龄在36-59岁之间的自闭症成年人参加了两次在线半结构化访谈(N = 34)。数据分析采用自反性主题分析,主题解释采用社会生态模型。研究过程中所做的反思笔记(N = 34)也进行了分析,以支持解释的严谨性。关于自闭症和PA的神经规范假设,信任的重要性和感觉敏感性塑造了这些自闭症成年人PA的参与。神经规范性假设的新概念强调了普遍存在的假设是如何具有破坏性的,使建立信任变得困难,并降低了PA参与的偏好。这篇文章提供了原创和重要的知识,并呼吁该领域共同生产神经分化知情的PA实践,反映自闭症成年人的生活,需求和能力。我们通过强调创伤知情的方法如何在建立信任和支持PA的自闭症成年人方面具有潜在价值来总结文章。什么是已知的?自闭症成年人在参加体育活动(PA)方面存在障碍,而且他们的参与率很低。这是一个问题,因为PA的参与可以带来许多健康和福祉的好处。有必要进行研究,以更好地了解如何支持他们的PA参与。直接与自闭症成年人一起工作是至关重要的,因为很少有研究直接包括他们的观点。本文补充内容:来自英国的17名自闭症成年人参加了两次在线半结构化访谈(N = 34)。访谈数据附有反思性笔记,这是研究团队在研究过程中对数据进行初步分析和思考的一种方式(N = 34)。采访记录和备忘录一起被分析,以产生贯穿采访记录的主题。我们使用社会生态模型来检查影响PA参与的不同组成部分。该研究强调了关于PA,信任和感官敏感性的神经规范性假设如何影响自闭症成年人的PA参与。运动专业人士缺乏对自闭症、他们的需求、兴趣、能力和信任的理解和知识,严重影响了参与。对自闭症的假设和有限的理解限制了参与,因为现有的PA形式往往不适合自闭症成年人的多样化需求、兴趣和能力。对实践、研究或政策的启示:这些见解强调了共同生产神经分化知情的PA实践的重要性,这些实践反映了自闭症成年人的需求、优势和能力。最后,我们概述了在PA中使用创伤知情方法在建立信任和支持PA参与方面的价值。这是第一个将这种方法用于自闭症成人PA的研究。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Perspectives and experiences of physical activity among autistic adults in middle adulthood.

Physical activity (PA) participation among autistic adults is low; however, it is unclear why this is the case. To date, little research has included the perspectives of autistic adults during middle adulthood to understand how to support their PA and to understand the complexity of their daily lives. Seventeen autistic adults aged 36-59 years participated in two online, semi-structured interviews (N = 34). Reflexive thematic analysis was used to analyze the data, and the socio-ecological model was applied to interpret the themes. Reflexive notes (N = 34) made during the research process also were analyzed to support the rigour of the interpretations. Neuro-normative assumptions about autism and PA, the importance of trust and sensory sensitivities shaped PA participation for these autistic adults. The new concept of neuro-normative assumptions highlights how pervasive assumptions were damaging, made it difficult to build trust and decreased the predilection of PA participation. This article delivers original and significant knowledge and calls on the field to co-produce neurodivergent-informed PA practices that are reflective of the lives, needs and abilities of autistic adults. We conclude the article by highlighting how a trauma-informed approach may have potential value in building trust and supporting autistic adults in PA.Lay AbstractWhat is already known? Autistic adults experience barriers to participating in physical activity (PA), and their rates of participation are low. This is a problem because PA participation can contribute many health and well-being benefits. There is a need for research to better understand how to support their PA participation. Working directly with autistic adults is of utmost importance as minimal research has directly included their perspectives.What this article adds: Seventeen autistic adults from the United Kingdom participated in two online semi-structured interviews (N = 34). Interview data were accompanied by reflexive notes which were a way for the research team to provide preliminary analyses and think about the data during the research process (N = 34). Together, interview transcripts and memos were analyzed to generate themes across the interview transcripts. We used the socio-ecological model to examine the different components that impact PA participation. The study highlights how neuro-normative assumptions about PA, trust and sensory sensitivities shaped PA participation for autistic adults. A lack of understanding and knowledge among movement professionals about autism, their needs, interests and abilities and trust significantly impacted participation. Assumptions and limited understandings about autism limited participation, as the forms of PA available often were not suitable to the diverse needs, interests and abilities of autistic adults.Implications for practice, research or policy: The insights highlight the importance of co-producing neurodivergent-informed PA practices that are reflective of the needs, strengths and abilities of autistic adults. Finally, we outline how the use of a trauma-informed approach to PA may be valuable in building trust and supporting PA participation. This is the first study to use this approach for PA with autistic adults.

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来源期刊
Autism
Autism PSYCHOLOGY, DEVELOPMENTAL-
CiteScore
9.80
自引率
11.50%
发文量
160
期刊介绍: Autism is a major, peer-reviewed, international journal, published 8 times a year, publishing research of direct and practical relevance to help improve the quality of life for individuals with autism or autism-related disorders. It is interdisciplinary in nature, focusing on research in many areas, including: intervention; diagnosis; training; education; translational issues related to neuroscience, medical and genetic issues of practical import; psychological processes; evaluation of particular therapies; quality of life; family needs; and epidemiological research. Autism provides a major international forum for peer-reviewed research of direct and practical relevance to improving the quality of life for individuals with autism or autism-related disorders. The journal''s success and popularity reflect the recent worldwide growth in the research and understanding of autistic spectrum disorders, and the consequent impact on the provision of treatment and care. Autism is interdisciplinary in nature, focusing on evaluative research in all areas, including: intervention, diagnosis, training, education, neuroscience, psychological processes, evaluation of particular therapies, quality of life issues, family issues and family services, medical and genetic issues, epidemiological research.
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