儿童癫痫的发作自我效能和社会心理结局:生活质量和病耻感的横断面研究。

IF 2.1 4区 医学 Q3 CLINICAL NEUROLOGY
Unal Akca, Gulfer Akca
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引用次数: 0

摘要

目的:本研究旨在综合儿童和家长的观点,评估癫痫患儿的癫痫自我效能感及其与病耻感和生活质量的关系。方法:对155例9 ~ 17岁癫痫患儿及其家长进行横断面研究。采用标准化工具:儿童癫痫自我效能量表(sess - c)、儿童生活质量量表(PedsQL 4.0)以及儿童和家长的病耻感量表。社会人口学和临床变量(如抗癫痫药物的数量、疾病持续时间、父母教育程度和收入)也被记录和分析。结果:较高的自我效能得分与儿童和家长生活质量的改善和污名感的降低显著相关(p结论:癫痫自我效能是一个可改变的心理因素,与儿童癫痫的社会心理健康密切相关。本研究采用的双视角方法可以更全面地了解疾病负担。提高自我效能感和减少耻辱感的有针对性的干预措施可能会改善儿童及其家庭的生活质量。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Seizure self-efficacy and psychosocial outcomes in pediatric epilepsy: a cross-sectional study on quality of life and stigma.

Objective: This study aimed to evaluate seizure self-efficacy and its association with perceived stigma and quality of life in children with epilepsy, integrating both child and parent perspectives.

Methods: A total of 155 children with epilepsy (aged 9-17 years) and their parents were included in this cross-sectional study. Standardized instruments were used: the Seizure Self-Efficacy Scale for Children (SSES-C), the Pediatric Quality of Life Inventory (PedsQL 4.0), and validated stigma scales for both children and parents. Sociodemographic and clinical variables (e.g., number of antiepileptic drugs, disease duration, parental education, and income) were also recorded and analyzed.

Results: Higher self-efficacy scores were significantly associated with improved quality of life and lower stigma perception in both children and parents (p < 0.001). Multivariate regression revealed that self-efficacy positively predicted child-reported quality of life, while perceived stigma had a significant negative effect. Additional findings indicated that polytherapy, longer disease duration, lower parental education, and low household income were related to lower self-efficacy and higher stigma.

Conclusion: Seizure self-efficacy is a modifiable psychological factor strongly linked to psychosocial well-being in pediatric epilepsy. The dual-perspective approach adopted in this study provides a more comprehensive understanding of disease burden. Targeted interventions that enhance self-efficacy and reduce stigma may lead to improved quality of life outcomes for both children and their families.

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来源期刊
Acta neurologica Belgica
Acta neurologica Belgica 医学-临床神经学
CiteScore
4.20
自引率
3.70%
发文量
300
审稿时长
6-12 weeks
期刊介绍: Peer-reviewed and published quarterly, Acta Neurologica Belgicapresents original articles in the clinical and basic neurosciences, and also reports the proceedings and the abstracts of the scientific meetings of the different partner societies. The contents include commentaries, editorials, review articles, case reports, neuro-images of interest, book reviews and letters to the editor. Acta Neurologica Belgica is the official journal of the following national societies: Belgian Neurological Society Belgian Society for Neuroscience Belgian Society of Clinical Neurophysiology Belgian Pediatric Neurology Society Belgian Study Group of Multiple Sclerosis Belgian Stroke Council Belgian Headache Society Belgian Study Group of Neuropathology
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