照顾脑瘫儿童的母亲的幸福:突尼斯横断面研究。

IF 1 Q4 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH
Pan African Medical Journal Pub Date : 2025-06-07 eCollection Date: 2025-01-01 DOI:10.11604/pamj.2025.51.33.45979
Ikram Haddada, Soumaya El Arem, Aymen Hadj Salah, Manel Ben Fredj, Aymen Fekih, Tammem Sayhi, Mouhamed Hedi Zaafrane, Mouna Sghir, Wassia Kessomtini
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引用次数: 0

摘要

简介:脑瘫(CP)是儿童期最常见的肢体残疾。对许多家庭来说,照顾有功能限制和长期依赖的儿童是一项重大挑战。尽管如此,患有CP的孩子的母亲的经历和需求仍然没有得到充分的研究。本研究旨在评估突尼斯CP母亲的疲劳、照顾负担、心理困扰和睡眠障碍(SDs)。方法:本横断面研究探讨突尼斯CP母亲照顾CP儿童的幸福感。参与者使用检查表个人力量(CIS)、Zarit照顾者负担量表(ZCBS)、医院焦虑和抑郁量表(HADS)和匹兹堡睡眠质量指数(PSQI)进行评估。结果:共招募71名参与者。在所有参与者中,39.4%报告中度至重度负担,53.5%报告严重疲劳。临床显著抑郁或焦虑症状的患病率分别为63.4%和53.5%。SDs患病率为74.6%。PSQI中受影响最大的部分是睡眠潜伏期、睡眠质量和睡眠功能障碍。睡眠质量与儿童癫痫(p=0.012)、母亲年龄(p=0.027)、母亲抑郁(p=0.008)、焦虑(p=0.001)显著相关。母亲的负担或疲劳与低睡眠质量之间没有明显的联系。结论:我们的研究结果强调了患有CP儿童的母亲普遍存在疲劳、负担、严重的心理困扰和SDs。因此,医务人员和社会工作者应该更加关注这些母亲的需求,她们经常默默地忍受照顾的情绪和身体压力。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
The well-being of mothers caregiving for children with cerebral palsy: a Tunisian cross-sectional study.

Introduction: cerebral palsy (CP) is the most common physical disability in childhood. Caring for a child with functional limitations and long-term dependence poses significant challenges for many families. Despite this, the experiences and needs of mothers of children with CP remain understudied. This study aims to assess fatigue, caregiving burden, psychological distress, and sleep disorders (SDs) among a group of Tunisian mothers of children with CP.

Methods: this cross-sectional study explored the well-being of Tunisian mothers caring for children with CP. Participants were evaluated using the Checklist Individual Strength (CIS), Zarit Caregiver Burden Scale (ZCBS), Hospital Anxiety and Depression Scale (HADS), and Pittsburgh Sleep Quality Index (PSQI).

Results: a total of 71 participants were recruited. Of all participants, 39.4% reported moderate to severe burden, and 53.5% reported severe fatigue. The prevalence of clinically significant depressive or anxious symptoms was found to be 63.4% and 53.5%, respectively. The prevalence of SDs was 74.6%. The most affected components of the PSQI were sleep latency, sleep quality, and sleep dysfunction. Sleep quality was significantly related to epilepsy in children (p=0.012), mothers' age (p=0.027), mothers' depression (p=0.008), or anxiety (p=0.001). No significant association was found between mothers' burden or fatigue and low sleep quality.

Conclusion: our findings highlight the prevalence of fatigue, burden, serious psychological distress, and SDs among mothers of children with CP. Consequently, medical personnel and social workers should be more attentive to the needs of these mothers who often silently endure the emotional and physical strains of caregiving.

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来源期刊
Pan African Medical Journal
Pan African Medical Journal PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH-
CiteScore
1.80
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发文量
691
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