{"title":"帕金森病患者网络群体言语康复的参与者满意度及发展方向","authors":"Gemma Moya-Galé","doi":"10.1080/17549507.2025.2541682","DOIUrl":null,"url":null,"abstract":"<p><strong>Purpose: </strong>With increased access to telehealth platforms and considering the heterogeneity of Parkinson's disease, understanding the contributors of patients' satisfaction with online group speech rehabilitation programs becomes essential for patient retention and adherence with continuous practice. The purpose of this study was to examine elements of an existing online group speech treatment program that contribute to participant satisfaction and determine patient-centred considerations for further growth.</p><p><strong>Method: </strong>Ten individuals with Parkinson's disease enrolled in <i>Speech for PD</i>, an online university- and community-based program, participated in focus groups. The semi-structured interviews were video-recorded and transcribed. Data were analysed qualitatively following reflexive thematic analysis.</p><p><strong>Result: </strong>Three themes were constructed: The importance and power of social connectedness, voice and cognitive-linguistic exercises as essential elements, and recommendations for growth; which emphasised the role of biofeedback and self-management techniques, as well as continued practice and in-person social gatherings.</p><p><strong>Conclusion: </strong>Online group speech treatment programs may significantly contribute to increased social connectedness in individuals with Parkinson's disease. Participant satisfaction may also be enhanced through targeting not only the reported voice and speech deficits in Parkinson's disease but also cognitive-linguistic skills in group format. Elements of success and considerations for growth of an existing program, <i>Speech for PD</i>, are discussed.</p>","PeriodicalId":49047,"journal":{"name":"International Journal of Speech-Language Pathology","volume":" ","pages":"1-10"},"PeriodicalIF":1.9000,"publicationDate":"2025-08-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"Participant satisfaction and directions for growth in online group speech rehabilitation for individuals with Parkinson's disease.\",\"authors\":\"Gemma Moya-Galé\",\"doi\":\"10.1080/17549507.2025.2541682\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p><strong>Purpose: </strong>With increased access to telehealth platforms and considering the heterogeneity of Parkinson's disease, understanding the contributors of patients' satisfaction with online group speech rehabilitation programs becomes essential for patient retention and adherence with continuous practice. The purpose of this study was to examine elements of an existing online group speech treatment program that contribute to participant satisfaction and determine patient-centred considerations for further growth.</p><p><strong>Method: </strong>Ten individuals with Parkinson's disease enrolled in <i>Speech for PD</i>, an online university- and community-based program, participated in focus groups. The semi-structured interviews were video-recorded and transcribed. Data were analysed qualitatively following reflexive thematic analysis.</p><p><strong>Result: </strong>Three themes were constructed: The importance and power of social connectedness, voice and cognitive-linguistic exercises as essential elements, and recommendations for growth; which emphasised the role of biofeedback and self-management techniques, as well as continued practice and in-person social gatherings.</p><p><strong>Conclusion: </strong>Online group speech treatment programs may significantly contribute to increased social connectedness in individuals with Parkinson's disease. Participant satisfaction may also be enhanced through targeting not only the reported voice and speech deficits in Parkinson's disease but also cognitive-linguistic skills in group format. Elements of success and considerations for growth of an existing program, <i>Speech for PD</i>, are discussed.</p>\",\"PeriodicalId\":49047,\"journal\":{\"name\":\"International Journal of Speech-Language Pathology\",\"volume\":\" \",\"pages\":\"1-10\"},\"PeriodicalIF\":1.9000,\"publicationDate\":\"2025-08-07\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"International Journal of Speech-Language Pathology\",\"FirstCategoryId\":\"3\",\"ListUrlMain\":\"https://doi.org/10.1080/17549507.2025.2541682\",\"RegionNum\":4,\"RegionCategory\":\"医学\",\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"Q3\",\"JCRName\":\"AUDIOLOGY & SPEECH-LANGUAGE PATHOLOGY\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"International Journal of Speech-Language Pathology","FirstCategoryId":"3","ListUrlMain":"https://doi.org/10.1080/17549507.2025.2541682","RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q3","JCRName":"AUDIOLOGY & SPEECH-LANGUAGE PATHOLOGY","Score":null,"Total":0}
Participant satisfaction and directions for growth in online group speech rehabilitation for individuals with Parkinson's disease.
Purpose: With increased access to telehealth platforms and considering the heterogeneity of Parkinson's disease, understanding the contributors of patients' satisfaction with online group speech rehabilitation programs becomes essential for patient retention and adherence with continuous practice. The purpose of this study was to examine elements of an existing online group speech treatment program that contribute to participant satisfaction and determine patient-centred considerations for further growth.
Method: Ten individuals with Parkinson's disease enrolled in Speech for PD, an online university- and community-based program, participated in focus groups. The semi-structured interviews were video-recorded and transcribed. Data were analysed qualitatively following reflexive thematic analysis.
Result: Three themes were constructed: The importance and power of social connectedness, voice and cognitive-linguistic exercises as essential elements, and recommendations for growth; which emphasised the role of biofeedback and self-management techniques, as well as continued practice and in-person social gatherings.
Conclusion: Online group speech treatment programs may significantly contribute to increased social connectedness in individuals with Parkinson's disease. Participant satisfaction may also be enhanced through targeting not only the reported voice and speech deficits in Parkinson's disease but also cognitive-linguistic skills in group format. Elements of success and considerations for growth of an existing program, Speech for PD, are discussed.
期刊介绍:
International Journal of Speech-Language Pathology is an international journal which promotes discussion on a broad range of current clinical and theoretical issues. Submissions may include experimental, review and theoretical discussion papers, with studies from either quantitative and/or qualitative frameworks. Articles may relate to any area of child or adult communication or dysphagia, furthering knowledge on issues related to etiology, assessment, diagnosis, intervention, or theoretical frameworks. Articles can be accompanied by supplementary audio and video files that will be uploaded to the journal’s website. Special issues on contemporary topics are published at least once a year. A scientific forum is included in many issues, where a topic is debated by invited international experts.