使用基于社区的在线激励调查来描述青少年功能性癫痫发作的医疗保健和校本护理

IF 2.3 3区医学 Q2 BEHAVIORAL SCIENCES

Epilepsy & Behavior Pub Date : 2025-08-02 DOI:10.1016/j.yebeh.2025.110636

Andrea L. Tanner , Ukamaka M. Oruche , Claire Burke Draucker

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引用次数: 0

摘要

功能性癫痫对青少年及其家庭有着深远的影响。这些青少年报告了与医疗保健和学校提供者的负面经历，这些经历可能因种族/民族和社会经济差异而加剧。对这一人群的研究主要在临床环境中进行。本研究旨在(1)通过基于社区的在线激励调查，确定是否可以招募种族/民族和社会经济不同的功能性癫痫发作青少年群体，(2)描述青少年心理卫生保健利用情况和父母对青少年医疗保健差异的看法，(3)描述青少年校本结果，(4)描述青少年及其父母对校本护理的看法。方法对功能性癫痫发作青少年及其家长进行横断面、基于社区的在线激励调查。结果22名功能性癫痫青少年及其父母完成了问卷调查，但问卷调查中存在较高的欺诈和粗心的回答率。大多数青少年反应者长期缺课，大多数正在接受心理健康治疗。一半的父母报告了由于种族/民族、费用或两者兼而有之造成的健康差异。家长和青少年提供了宝贵的见解，关于他们的观点，以学校为基础的照顾青少年的功能癫痫发作。结论：学校护士和其他医疗保健提供者应制定策略，解决功能性癫痫发作引起的慢性缺勤问题，评估青少年及其家庭的健康差异，克服对功能性癫痫发作缺乏了解的问题，并为这一人群提供知情和富有同情心的护理。调查研究人员应该制定一个系统的计划，使用多种策略来打击调查研究中的欺诈反应。

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Using a community-based online incentivized survey to describe the healthcare and school-based care of adolescents with functional seizures

Introduction

Functional seizures have profound effects on adolescents and their families. These adolescents report negative experiences with healthcare and school-based providers that are likely exacerbated by racial/ethnic and socioeconomic disparities. Research with this population has been conducted mainly in clinic settings. This study aimed to (1) Determine if a racially/ethnically and socioeconomically diverse group of adolescents with functional seizures can be recruited via a community-based online incentivized survey, (2) Describe adolescents’ mental health care utilization and parents’ perceptions of encountering disparities in the adolescents’ healthcare, (3) Describe adolescents’ school-based outcomes, and (4) Describe adolescents’ and their parents’ perspectives on school-based care.

Methods

A cross-sectional community-based online incentivized survey with adolescents with functional seizures and their parents.

Results

A racially/ethnically and socioeconomically diverse sample of 22 adolescents with functional seizures and their parents completed the survey, although recruitment was challenged by a high rate of fraudulent and careless responders. Most adolescent responders were chronically absent from school, and most were receiving mental health treatment. Half of the parents reported health disparities due to race/ethnicity, cost, or both. Parents and adolescents provided valuable insights regarding their perspectives on school-based care for adolescents with functional seizures.

Conclusion

School nurses and other healthcare providers should develop strategies to address chronic absenteeism due to functional seizures, assess health disparities experienced by adolescents and their families, combat lack of understanding of functional seizures, and provide informed and compassionate care for this population. Survey researchers should develop a systematic plan using multiple strategies to combat fraudulent responses in survey research.

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来源期刊

Epilepsy & Behavior 医学-行为科学

CiteScore

5.40

自引率

15.40%

发文量

385

审稿时长

43 days

期刊介绍： Epilepsy & Behavior is the fastest-growing international journal uniquely devoted to the rapid dissemination of the most current information available on the behavioral aspects of seizures and epilepsy. Epilepsy & Behavior presents original peer-reviewed articles based on laboratory and clinical research. Topics are drawn from a variety of fields, including clinical neurology, neurosurgery, neuropsychiatry, neuropsychology, neurophysiology, neuropharmacology, and neuroimaging. From September 2012 Epilepsy & Behavior stopped accepting Case Reports for publication in the journal. From this date authors who submit to Epilepsy & Behavior will be offered a transfer or asked to resubmit their Case Reports to its new sister journal, Epilepsy & Behavior Case Reports.