父母参与神经性厌食症早期干预计划:一项质性研究。

IF 4.9 2区 医学 Q1 PEDIATRICS
Thomas Diot, Alexandra Loisel, Marie Rose Moro, Corinne Blanchet
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引用次数: 0

摘要

神经性厌食症(AN)是一种严重的慢性疾病,需要早期有效的干预。家庭参与被认为是青少年治疗的基石,然而父母早期参与照顾的具体动态仍然知之甚少。本研究旨在探讨在法国家庭日间项目(EVAFAM)的背景下,父母参与AN青少年早期护理的潜在过程。我们采用半结构化访谈对15位父母(7位父亲,8位母亲)进行了定性研究,这些父母的青少年在2023年1月至2024年6月期间参加了EVAFAM项目。我们确定了导致父母参与护理的三个主要过程:(1)一个悲伤的过程,父母认识到疾病的慢性性质和他们对诊断的情绪反应;(2)一个积极的重建过程,父母调整他们的态度和行为,成为治疗伙伴;(3)与机构护理框架的关系,机构护理框架既提供权威,也提供支持,但有时会产生矛盾心理。增加的知识和结构化的干预支持了参与,但受到情绪紧张和不确定性的挑战。值得注意的是,早期干预使家庭从拒绝转变为积极参与,这表明参与是一个渐进的过程,而不是最初的先决条件。了解早期干预期间父母参与的轨迹凸显了支持家庭的关键杠杆,包括承认情感转变、提供实用工具和加强机构联盟。这些见解可以为有针对性的干预措施提供信息,并加强对AN青少年的以家庭为中心的护理。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Parental engagement in an early intervention program for anorexia nervosa: a qualitative study.

Anorexia nervosa (AN) is a severe chronic condition requiring early and effective intervention. Family involvement is considered a cornerstone of adolescent treatment, yet the specific dynamics of early parental engagement into care remain poorly understood. This study aimed to explore the processes underlying parental involvement in early care for adolescents with AN, within the context of a family-based day program (EVAFAM) in France. We conducted a qualitative study using semi-structured interviews with 15 parents (7 fathers, 8 mothers) whose adolescents participated in the EVAFAM program between January 2023 and June 2024. We identified three main processes that lead to parental engagement in care: (1) a grieving process, where parents recognized the chronic nature of the illness and their emotional responses to the diagnosis; (2) an active reconstruction process, where parents adapted their attitudes and behaviors to become therapeutic partners; and (3) the relationship to the institutional care framework, which provided both authority and support, while sometimes generating ambivalence. Engagement was supported by increased knowledge and structured interventions but challenged by emotional strain and uncertainty. Notably, early intervention enabled families to shift from denial to active participation, suggesting that engagement is a progressive construction, not an initial precondition. Understanding the trajectories of parental engagement during early intervention highlights key levers for supporting families, including acknowledging emotional transitions, providing practical tools, and reinforcing institutional alliances. These insights can inform tailored interventions and enhance family-centered care for adolescents with AN.

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来源期刊
CiteScore
12.80
自引率
4.70%
发文量
186
审稿时长
6-12 weeks
期刊介绍: European Child and Adolescent Psychiatry is Europe''s only peer-reviewed journal entirely devoted to child and adolescent psychiatry. It aims to further a broad understanding of psychopathology in children and adolescents. Empirical research is its foundation, and clinical relevance is its hallmark. European Child and Adolescent Psychiatry welcomes in particular papers covering neuropsychiatry, cognitive neuroscience, genetics, neuroimaging, pharmacology, and related fields of interest. Contributions are encouraged from all around the world.
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