纤维化间质性肺疾病的家庭肺康复和健康指导:当前证据和未来方向的观点

Teng Moua, Roberto Benzo
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摘要

简介:纤维化间质性肺疾病(f-ILD)是一种进行性和衰弱性肺疾病,具有显著的症状负担和生活质量受损。肺康复(PR)已证明可改善-f-ILD患者的呼吸困难、身体功能和呼吸相关生活质量(RR-QoL),但在现实环境中摄取和完成程度有限。涵盖领域:完成了一项关于传统PR在f-ILD中的影响和局限性的文献综述,并对家庭方法的使用和健康指导的实施进行了额外的看法。传统的以中心为基础的公共关系项目的障碍包括基于患者和系统的因素,如没有意识到益处,情绪或心理困扰,以及有限的访问。以家庭为基础的公共关系可以消除旅行障碍,增加远程监督和监测的机会,并通过将护理与熟悉的环境联系起来促进社会支持,从而解决这些限制。涉及家庭PR治疗ILD的研究已经显示出改善功能和生活质量以及高依从率的希望。健康指导是一种促进行为改变的合作模式,并已证明对慢性疾病的管理有积极影响。专家意见:将健康指导与家庭公共关系相结合,可以解决公共关系吸收和遵守方面的持续挑战,并将公共关系扩展为一种整体和全面的干预措施。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Home-based pulmonary rehabilitation and health coaching in fibrotic interstitial lung disease: a perspective on current evidence and future directions.

Introduction: The fibrotic interstitial lung diseases ;(f-ILD) are often progressive and debilitating lung diseases with significant symptom burden and impaired quality of life. Pulmonary rehabilitation (PR) has demonstrated improvements in dyspnea, physical function, and respiratory-related quality of life (RR-QoL) in patients with -f-ILD but had limited uptake and completion in real-world settings.

Areas covered: A literature review was completed on the impact and limitations of traditional PR in f-ILD, with additional perspective on the use of home-based approaches and implementation of health coaching. Barriers to traditional center-based PR programs include patient and systems-based factors such as unawareness of benefit, emotional or psychological distress, and limited access. Home-based PR may address these limitations by removing travel barriers, increasing access with remote supervision and monitoring, and promoting social support by connecting care with familiar settings. Studies involving home-based PR in ILD have shown promise with improving functional and quality of life outcomes and high compliance rates. Health coaching is a collaborative paradigm for fostering behavior change and has demonstrated positive impact in the management of chronic diseases.

Expert opinion: A combination of health coaching with home-based PR may address ongoing challenges of PR uptake and compliance as well as expand PR as a holistic and comprehensive intervention.

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