复杂抽动秽语综合征儿童的语言和沟通:来自五种混合方法案例研究的见解。

IF 1.9 4区 医学 Q3 AUDIOLOGY & SPEECH-LANGUAGE PATHOLOGY
Angela Feehan, Lesley Pritchard, Paola Colozzo, Veronica Smith, Monique Charest
{"title":"复杂抽动秽语综合征儿童的语言和沟通:来自五种混合方法案例研究的见解。","authors":"Angela Feehan, Lesley Pritchard, Paola Colozzo, Veronica Smith, Monique Charest","doi":"10.1080/17549507.2025.2529930","DOIUrl":null,"url":null,"abstract":"<p><strong>Purpose: </strong>This study aimed to understand and describe language skills and day-to-day communication in five children with complex Tourette syndrome.</p><p><strong>Method: </strong>We conducted five scaffolded mixed methods case studies. Psychosocial functioning and language skills were measured using standardised tests. We collected information about day-to-day communication using communication log books and semi-structured qualitative interviews. Communication was considered using the bioecological model with a focus on microstructure' contexts (i.e. school, home, and peer interaction).</p><p><strong>Result: </strong>All children had accessed school accommodations, extra services, or alternative education options. While some parents highlighted school successes, others described significant challenges in finding a fitting school environment for their child. Managing family interaction in the home required parents to be thoughtful and proactive in their planning. Parents strategised to keep the home environment calm and productive, adopted attitudes of acceptance and understanding, and accessed outside tools and supports. In some cases, parents provided social coaching and created intentional social experiences so their child could be successful; in other cases, children were thriving socially without need for parental intervention.</p><p><strong>Conclusion: </strong>The communication profiles and parent-reported experiences of children with complex Tourette syndrome are diverse. Interventions and accommodations need to be individualised to optimise language development and day-to-day communication.</p>","PeriodicalId":49047,"journal":{"name":"International Journal of Speech-Language Pathology","volume":" ","pages":"1-19"},"PeriodicalIF":1.9000,"publicationDate":"2025-07-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"Language and communication in children with complex tourette syndrome: Insights from five mixed methods case studies.\",\"authors\":\"Angela Feehan, Lesley Pritchard, Paola Colozzo, Veronica Smith, Monique Charest\",\"doi\":\"10.1080/17549507.2025.2529930\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p><strong>Purpose: </strong>This study aimed to understand and describe language skills and day-to-day communication in five children with complex Tourette syndrome.</p><p><strong>Method: </strong>We conducted five scaffolded mixed methods case studies. Psychosocial functioning and language skills were measured using standardised tests. We collected information about day-to-day communication using communication log books and semi-structured qualitative interviews. Communication was considered using the bioecological model with a focus on microstructure' contexts (i.e. school, home, and peer interaction).</p><p><strong>Result: </strong>All children had accessed school accommodations, extra services, or alternative education options. While some parents highlighted school successes, others described significant challenges in finding a fitting school environment for their child. Managing family interaction in the home required parents to be thoughtful and proactive in their planning. Parents strategised to keep the home environment calm and productive, adopted attitudes of acceptance and understanding, and accessed outside tools and supports. In some cases, parents provided social coaching and created intentional social experiences so their child could be successful; in other cases, children were thriving socially without need for parental intervention.</p><p><strong>Conclusion: </strong>The communication profiles and parent-reported experiences of children with complex Tourette syndrome are diverse. Interventions and accommodations need to be individualised to optimise language development and day-to-day communication.</p>\",\"PeriodicalId\":49047,\"journal\":{\"name\":\"International Journal of Speech-Language Pathology\",\"volume\":\" \",\"pages\":\"1-19\"},\"PeriodicalIF\":1.9000,\"publicationDate\":\"2025-07-20\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"International Journal of Speech-Language Pathology\",\"FirstCategoryId\":\"3\",\"ListUrlMain\":\"https://doi.org/10.1080/17549507.2025.2529930\",\"RegionNum\":4,\"RegionCategory\":\"医学\",\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"Q3\",\"JCRName\":\"AUDIOLOGY & SPEECH-LANGUAGE PATHOLOGY\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"International Journal of Speech-Language Pathology","FirstCategoryId":"3","ListUrlMain":"https://doi.org/10.1080/17549507.2025.2529930","RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q3","JCRName":"AUDIOLOGY & SPEECH-LANGUAGE PATHOLOGY","Score":null,"Total":0}
引用次数: 0

摘要

目的:本研究旨在了解和描述5名复杂图雷特综合征儿童的语言技能和日常沟通。方法:采用五种支架混合方法进行病例研究。社会心理功能和语言技能采用标准化测试进行测量。我们使用沟通日志和半结构化定性访谈收集日常沟通的信息。使用生物生态学模型考虑交流,重点关注微观结构背景(即学校、家庭和同伴互动)。结果:所有儿童都获得了学校住宿,额外服务或替代教育选择。虽然一些家长强调了学校的成功,但另一些家长则描述了为孩子寻找合适的学校环境所面临的重大挑战。在家里管理家庭互动需要父母在他们的计划中深思熟虑和积极主动。家长的策略是保持家庭环境的平静和富有成效,采取接受和理解的态度,并获得外部工具和支持。在某些情况下,父母提供社会指导,有意识地创造社会体验,这样他们的孩子就能成功;在其他情况下,孩子们不需要父母的干预就能在社交上茁壮成长。结论:复杂抽动秽语综合征患儿的沟通特征和家长报告经历存在差异。干预和住宿需要个性化,以优化语言发展和日常沟通。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Language and communication in children with complex tourette syndrome: Insights from five mixed methods case studies.

Purpose: This study aimed to understand and describe language skills and day-to-day communication in five children with complex Tourette syndrome.

Method: We conducted five scaffolded mixed methods case studies. Psychosocial functioning and language skills were measured using standardised tests. We collected information about day-to-day communication using communication log books and semi-structured qualitative interviews. Communication was considered using the bioecological model with a focus on microstructure' contexts (i.e. school, home, and peer interaction).

Result: All children had accessed school accommodations, extra services, or alternative education options. While some parents highlighted school successes, others described significant challenges in finding a fitting school environment for their child. Managing family interaction in the home required parents to be thoughtful and proactive in their planning. Parents strategised to keep the home environment calm and productive, adopted attitudes of acceptance and understanding, and accessed outside tools and supports. In some cases, parents provided social coaching and created intentional social experiences so their child could be successful; in other cases, children were thriving socially without need for parental intervention.

Conclusion: The communication profiles and parent-reported experiences of children with complex Tourette syndrome are diverse. Interventions and accommodations need to be individualised to optimise language development and day-to-day communication.

求助全文
通过发布文献求助,成功后即可免费获取论文全文。 去求助
来源期刊
International Journal of Speech-Language Pathology
International Journal of Speech-Language Pathology AUDIOLOGY & SPEECH-LANGUAGE PATHOLOGY-REHABILITATION
CiteScore
3.10
自引率
16.70%
发文量
73
审稿时长
>12 weeks
期刊介绍: International Journal of Speech-Language Pathology is an international journal which promotes discussion on a broad range of current clinical and theoretical issues. Submissions may include experimental, review and theoretical discussion papers, with studies from either quantitative and/or qualitative frameworks. Articles may relate to any area of child or adult communication or dysphagia, furthering knowledge on issues related to etiology, assessment, diagnosis, intervention, or theoretical frameworks. Articles can be accompanied by supplementary audio and video files that will be uploaded to the journal’s website. Special issues on contemporary topics are published at least once a year. A scientific forum is included in many issues, where a topic is debated by invited international experts.
×
引用
GB/T 7714-2015
复制
MLA
复制
APA
复制
导出至
BibTeX EndNote RefMan NoteFirst NoteExpress
×
提示
您的信息不完整,为了账户安全,请先补充。
现在去补充
×
提示
您因"违规操作"
具体请查看互助需知
我知道了
×
提示
确定
请完成安全验证×
copy
已复制链接
快去分享给好友吧!
我知道了
右上角分享
点击右上角分享
0
联系我们:info@booksci.cn Book学术提供免费学术资源搜索服务,方便国内外学者检索中英文文献。致力于提供最便捷和优质的服务体验。 Copyright © 2023 布克学术 All rights reserved.
京ICP备2023020795号-1
ghs 京公网安备 11010802042870号
Book学术文献互助
Book学术文献互助群
群 号:604180095
Book学术官方微信