Floortje Mols, Noortje van Willegen, Dagna Lek, Vivian Engelen
{"title":"癌症对诊断后2年日常生活的积极和消极影响：对5,710名不同类型癌症患者的调查结果。","authors":"Floortje Mols, Noortje van Willegen, Dagna Lek, Vivian Engelen","doi":"10.1007/s11764-025-01870-w","DOIUrl":null,"url":null,"abstract":"<p><strong>Purpose: </strong>This study aimed to understand the positive and negative long-term impact of cancer and its treatment on survivors more than two years post-diagnosis.</p><p><strong>Methods: </strong>The Dutch Federation of Cancer Patient Organisations (NFK), with input from patient representatives and researchers, created a national online survey. It was distributed via email, websites, and social media to patient organization members, with additional promotion by partner organizations. Participants shared their experiences regarding the physical and psychological effects of cancer on daily life.</p><p><strong>Results: </strong>A total of 5,710 cancer survivors participated. Of these, 73% felt proud of how they coped, 66% reported that cancer reshaped their priorities, 44% saw new opportunities, and 35% enjoyed life more. However, 58% could not be worry-free, and 49% struggled to resume life. Long-term symptoms were common: 55% experienced both physical and psychological symptoms, 33% reported only physical symptoms, and 2% only psychological. The most frequent physical symptoms included fatigue (56%), reduced fitness (47%), neuropathy (32%), sexual issues (25%), and sleep disturbances (24%). Common psychological symptoms were memory/concentration issues (32%), acceptance struggles (19%), depressive feelings (19%), planning issues (18%), and anxiety (16%).</p><p><strong>Conclusion: </strong>Cancer survivors often face persistent physical and psychological symptoms, with cancer continuing to affect their lives significantly.</p><p><strong>Implications for cancer survivors: </strong>Greater awareness of these long-term consequences among healthcare providers and patients is essential.</p>","PeriodicalId":15284,"journal":{"name":"Journal of Cancer Survivorship","volume":" ","pages":""},"PeriodicalIF":3.1000,"publicationDate":"2025-07-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"The positive and negative impact of cancer on daily life > 2 years after diagnosis: Results from a survey among 5,710 patients with various cancer types.\",\"authors\":\"Floortje Mols, Noortje van Willegen, Dagna Lek, Vivian Engelen\",\"doi\":\"10.1007/s11764-025-01870-w\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p><strong>Purpose: </strong>This study aimed to understand the positive and negative long-term impact of cancer and its treatment on survivors more than two years post-diagnosis.</p><p><strong>Methods: </strong>The Dutch Federation of Cancer Patient Organisations (NFK), with input from patient representatives and researchers, created a national online survey. It was distributed via email, websites, and social media to patient organization members, with additional promotion by partner organizations. Participants shared their experiences regarding the physical and psychological effects of cancer on daily life.</p><p><strong>Results: </strong>A total of 5,710 cancer survivors participated. Of these, 73% felt proud of how they coped, 66% reported that cancer reshaped their priorities, 44% saw new opportunities, and 35% enjoyed life more. However, 58% could not be worry-free, and 49% struggled to resume life. Long-term symptoms were common: 55% experienced both physical and psychological symptoms, 33% reported only physical symptoms, and 2% only psychological. The most frequent physical symptoms included fatigue (56%), reduced fitness (47%), neuropathy (32%), sexual issues (25%), and sleep disturbances (24%). Common psychological symptoms were memory/concentration issues (32%), acceptance struggles (19%), depressive feelings (19%), planning issues (18%), and anxiety (16%).</p><p><strong>Conclusion: </strong>Cancer survivors often face persistent physical and psychological symptoms, with cancer continuing to affect their lives significantly.</p><p><strong>Implications for cancer survivors: </strong>Greater awareness of these long-term consequences among healthcare providers and patients is essential.</p>\",\"PeriodicalId\":15284,\"journal\":{\"name\":\"Journal of Cancer Survivorship\",\"volume\":\" \",\"pages\":\"\"},\"PeriodicalIF\":3.1000,\"publicationDate\":\"2025-07-17\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Journal of Cancer Survivorship\",\"FirstCategoryId\":\"3\",\"ListUrlMain\":\"https://doi.org/10.1007/s11764-025-01870-w\",\"RegionNum\":2,\"RegionCategory\":\"医学\",\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"Q2\",\"JCRName\":\"ONCOLOGY\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Journal of Cancer Survivorship","FirstCategoryId":"3","ListUrlMain":"https://doi.org/10.1007/s11764-025-01870-w","RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q2","JCRName":"ONCOLOGY","Score":null,"Total":0}
The positive and negative impact of cancer on daily life > 2 years after diagnosis: Results from a survey among 5,710 patients with various cancer types.
Purpose: This study aimed to understand the positive and negative long-term impact of cancer and its treatment on survivors more than two years post-diagnosis.
Methods: The Dutch Federation of Cancer Patient Organisations (NFK), with input from patient representatives and researchers, created a national online survey. It was distributed via email, websites, and social media to patient organization members, with additional promotion by partner organizations. Participants shared their experiences regarding the physical and psychological effects of cancer on daily life.
Results: A total of 5,710 cancer survivors participated. Of these, 73% felt proud of how they coped, 66% reported that cancer reshaped their priorities, 44% saw new opportunities, and 35% enjoyed life more. However, 58% could not be worry-free, and 49% struggled to resume life. Long-term symptoms were common: 55% experienced both physical and psychological symptoms, 33% reported only physical symptoms, and 2% only psychological. The most frequent physical symptoms included fatigue (56%), reduced fitness (47%), neuropathy (32%), sexual issues (25%), and sleep disturbances (24%). Common psychological symptoms were memory/concentration issues (32%), acceptance struggles (19%), depressive feelings (19%), planning issues (18%), and anxiety (16%).
Conclusion: Cancer survivors often face persistent physical and psychological symptoms, with cancer continuing to affect their lives significantly.
Implications for cancer survivors: Greater awareness of these long-term consequences among healthcare providers and patients is essential.
期刊介绍：
Cancer survivorship is a worldwide concern. The aim of this multidisciplinary journal is to provide a global forum for new knowledge related to cancer survivorship. The journal publishes peer-reviewed papers relevant to improving the understanding, prevention, and management of the multiple areas related to cancer survivorship that can affect quality of care, access to care, longevity, and quality of life. It is a forum for research on humans (both laboratory and clinical), clinical studies, systematic and meta-analytic literature reviews, policy studies, and in rare situations case studies as long as they provide a new observation that should be followed up on to improve outcomes related to cancer survivors. Published articles represent a broad range of fields including oncology, primary care, physical medicine and rehabilitation, many other medical and nursing specialties, nursing, health services research, physical and occupational therapy, public health, behavioral medicine, psychology, social work, evidence-based policy, health economics, biobehavioral mechanisms, and qualitative analyses. The journal focuses exclusively on adult cancer survivors, young adult cancer survivors, and childhood cancer survivors who are young adults. Submissions must target those diagnosed with and treated for cancer.
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