父母和围产期专业优先事项和观点产前围生期对话:半结构化访谈的主题分析。

IF 2.1 3区 医学 Q2 PEDIATRICS
Frontiers in Pediatrics Pub Date : 2025-07-01 eCollection Date: 2025-01-01 DOI:10.3389/fped.2025.1552911
J Peterson, E J Johnstone, A Mahaveer, D M Smith
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引用次数: 0

摘要

背景:围产期(22 + 0-23 + 6周)给临床医生和家长带来了许多伦理、心理和实践上的困难。该研究旨在为专业人士和家长确定出生前可对话的关键特征,包括优先事项和挑战。方法:对来自关键利益相关者群体的参与者进行半结构化访谈:新生儿/儿科医生(n = 5)、产科医生(n = 5)、助产士(n = 5)和家长(n = 7)。访谈探讨了他们的周边咨询经验,包括优先事项、挑战和看法。主题分析用于家长和专业人员之间的发展。结果:确定了三个主题,总结了产前围期对话中的父母和专业观点:产前对话中的年表和叙事,对不确定性的不同观点以及围期创伤中透明度的作用。由于围产期专业人员的沟通不当,父母在围产期间所经历的创伤可能会加剧。这些主题表明,提供给父母的信息应该始终如一地概述与他们的孩子相关的所有可用的护理选择,包括富有同情心的交付,但诚实和描述性的情感选择,如舒适护理。信息应根据个别家庭的具体情况和风险因素进行个性化处理,并包括对“好父母信念”的关键话题的讨论,以使父母能够履行其职责。结论:围产期专业人员需要能够利用透明的沟通,个性化的信息,并了解叙事在决策中发挥的必要作用。未来的研究需要更好地了解最适合培训围产期专业人员将这些和其他创伤知情护理原则纳入他们与未来父母的沟通和互动的教育方法。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Parent and perinatal professional priorities and perspectives for the pre-birth periviable conversation: a thematic analysis of semi-structured interviews.

Background: Periviable birth (22 + 0-23 + 6 weeks) presents clinicians and parents with numerous ethical, psychological and practical difficulties. The study aimed to identify key features within pre-birth periviable conversations for both professionals and parents, including priorities and challenges.

Methods: Semi-structured interviews were conducted with participants from the key stakeholder groups: neonatologists/paediatricians (n = 5), obstetricians (n = 5), midwives (n = 5) and parents (n = 7). Interviews explored their experience of periviable counselling including priorities, challenges and perceptions. Thematic analysis was used to develop across parents and professionals.

Results: Three themes were identified summarising the parent and professional perspectives within the pre-birth periviable conversations: chronology and narrative within pre-birth conversations, different perspectives on uncertainty and the role of transparency within periviable trauma. The trauma experienced by parents through periviable birth can be compounded through poor communication practices of perinatal professionals. These themes demonstrate that the information provided to parents should consistently outline all available care options relevant to their baby, including compassionately delivered, but honest and descriptive accounts of emotive options, such as comfort care. Information should be individualised to the specific circumstances and risk factors of that individual family and incorporate discussion of topics key to the 'good parent belief' to empower parents within their role.

Conclusion: Perinatal professionals need to be able to utilise transparent communication, individualisation of information and understand the necessary role that narrative plays within decision-making. Future research is required to better understand the educational methods best suited to train perinatal professionals to incorporate these, and other trauma-informed care principles, within their communication and interactions with future parents.

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来源期刊
Frontiers in Pediatrics
Frontiers in Pediatrics Medicine-Pediatrics, Perinatology and Child Health
CiteScore
3.60
自引率
7.70%
发文量
2132
审稿时长
14 weeks
期刊介绍: Frontiers in Pediatrics (Impact Factor 2.33) publishes rigorously peer-reviewed research broadly across the field, from basic to clinical research that meets ongoing challenges in pediatric patient care and child health. Field Chief Editors Arjan Te Pas at Leiden University and Michael L. Moritz at the Children''s Hospital of Pittsburgh are supported by an outstanding Editorial Board of international experts. This multidisciplinary open-access journal is at the forefront of disseminating and communicating scientific knowledge and impactful discoveries to researchers, academics, clinicians and the public worldwide. Frontiers in Pediatrics also features Research Topics, Frontiers special theme-focused issues managed by Guest Associate Editors, addressing important areas in pediatrics. In this fashion, Frontiers serves as an outlet to publish the broadest aspects of pediatrics in both basic and clinical research, including high-quality reviews, case reports, editorials and commentaries related to all aspects of pediatrics.
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