GamePlan4Care,一个基于网络的资源改编,用于增强阿尔茨海默氏症照顾者健康II干预痴呆症患者的家庭照顾者:形成性,定性可用性测试研究。

IF 2 Q3 HEALTH CARE SCIENCES & SERVICES
Jinmyoung Cho, Thomas Birchfield, Jennifer L Thorud, Marcia G Ory, Alan B Stevens
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引用次数: 0

摘要

背景:通过为照顾者提供支持项目,提高他们的痴呆症护理技能,并提供情感和有形的支持,可以减轻照顾的负面后果。基于网络的技术可以增加基于证据的护理人员干预措施的可用性。GamePlan4Care (GP4C)是基于网络的《提高阿尔茨海默氏症护理者健康资源II》(REACH II)干预的改编版,经过重新设计和格式化,以实现基于网络的交付。GP4C的目标是创建一个基于网络的家庭照护者支持平台,为痴呆症患者的照护者提供基于证据的技能培训和支持。这种使用经过实时支持增强的技术的多维方法具有改进可伸缩性和可持续性的潜力。为了准备新干预措施的随机临床试验,GP4C平台在护理人员中进行了用户界面/用户体验(UI/UX)测试,作为迭代设计过程的一部分。方法:通过与德克萨斯州中部社区组织的合作伙伴关系招募31名护理人员,对护理人员对平台技术和内容相关方面的反应进行UI/UX测试。可用性测试包括执行系统任务,回答关于任务的开放式问题,并提供他们对平台体验的反馈。两名研究人员使用了一种归纳主题的方法来进行数据分析,使用的是每个参与者的个人音频和屏幕录制的会话记录。分析包括3个阶段:数据熟悉、编码和主题制定。结果:共有18名参与者测试了GP4C平台的技术相关方面,13名参与者测试了内容相关方面。参与者的平均年龄为62岁(标准差12.2,范围31-86)。大多数参与者是女性(27/ 31,87.1%)和白人或高加索人(26/ 31,83.1%),而几乎三分之一是西班牙裔(10/ 31,32.3%)。专题分析揭示了3个主题:作为共同主题的支持性资源,平台技术方面的积极参与,以及平台内容方面的综合方法。与会者还建议改变导航和内容。结论:可用性测试的结果表明,该平台提供了引人入胜、有用的内容,护理人员将继续使用这些内容,与他们的护理经历产生共鸣,帮助护理人员思考他们的选择和情绪,并可用于帮助与痴呆症患者沟通。护理人员欣赏基于他们已经完成的个性化服务,以及当他们需要额外帮助时拥有痴呆症护理导航员的概念。护理人员还就如何改进系统提供了多种建议,包括更容易导航和包容性的改变。这种积极的反馈表明,通过一些改变,该平台将有利于满足痴呆症患者护理人员的需求和提供资源。在开发阶段让最终用户参与可用性测试的过程确保了最终的工具能够更好地满足用户的期望和当前的需求。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
GamePlan4Care, a Web-Based Adaptation of the Resources for Enhancing Alzheimer's Caregiver Health II Intervention for Family Caregivers of Persons Living With Dementia: Formative, Qualitative Usability Testing Study.

Background: The negative consequences of caregiving can be mitigated by providing caregivers with support programs that increase their dementia care skills and provide emotional and tangible support. Web-based technology can increase the availability of evidence-based caregiver interventions. GamePlan4Care (GP4C) is a web-based adaptation of the Resources for Enhancing Alzheimer's Caregiver Health II (REACH II) intervention, redesigned and reformatted for web-based delivery.

Objective: The goal of GP4C is to create a web-based family caregiver support platform that facilitates self-directed exposure to evidence-based skills training and support for caregivers of persons living with dementia. This multidimensional approach of using technology enhanced with live support has the potential for improved scalability and sustainability. In preparation for a randomized clinical trial of the new intervention, the GP4C platform underwent user interface/user experience (UI/UX) testing with caregivers as part of an iterative design process.

Methods: UI/UX testing of caregivers' reactions to technical and content-related aspects of the platform was conducted with 31 caregivers recruited through partnerships with community-based organizations in central Texas. Usability testing consisted of performing system tasks, answering open-ended questions on the tasks, and providing feedback on their experience with the platform. Two researchers used an inductive thematic approach to data analysis using transcripts of individual audio and screen-recorded sessions with each participant. The analysis consisted of 3 phases: data familiarization, coding, and theme formulation.

Results: In total, 18 participants tested technical-related aspects of the GP4C platform, and 13 participants tested content-related aspects. The average age of participants was 62 (SD 12.2, range 31-86). A majority of participants were female (27/31, 87.1%) and White or Caucasian (26/31, 83.1%) while almost one-third were Hispanic (10/31, 32.3%). The thematic analysis revealed 3 themes: supportive resources as a common theme, active engagement for technical aspects of the platform, and a comprehensive approach for content aspects of the platform. Participants also suggested changes in navigation and content.

Conclusions: Findings from the usability testing sessions indicate that the platform provided engaging, useful content that the caregiver would continue to use, resonated with their caregiving experience, helped the caregivers think through their choices and emotions, and could be used to help communicate with the person living with dementia. Caregivers appreciated the personalization based on what they had already completed and the concept of having a Dementia Care Navigator when they needed additional help. Caregivers also provided multiple suggestions on how to improve the system, including changes for easier navigation and inclusiveness. This positive feedback indicates that with a few changes, the platform would be beneficial to meet the needs and provide resources for caregivers of persons living with dementia. The process of involving end users in usability testing during the development stage ensures that the finished tool will better meet users' expectations and current needs.

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来源期刊
JMIR Formative Research
JMIR Formative Research Medicine-Medicine (miscellaneous)
CiteScore
2.70
自引率
9.10%
发文量
579
审稿时长
12 weeks
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