超越语言：父母对普通话儿童人工耳蜗使用者功能结局的看法

IF 1.3 4区医学 Q3 OTORHINOLARYNGOLOGY

International journal of pediatric otorhinolaryngology Pub Date : 2025-07-01 DOI:10.1016/j.ijporl.2025.112456

Shih-Lung Chen , Chia-Chen Lin , Yu-Chien Wang , Che-Ming Wu

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引用次数: 0

摘要

目的：本研究探讨了父母对植入人工耳蜗的普通话儿童的现实功能结果的看法，重点关注标准化测试经常忽视的领域，如沟通、社会参与和学术独立性。方法63位台湾父母完成了一份经文化调整的中文版父母报告问卷，评估了十个功能领域的结果。收集儿童的临床数据，包括植入时年龄、CI持续时间、语言感知、智商和语言评分。进行Spearman相关分析以检验父母报告的结果与客观测量之间的关联。结果家长对一般功能和家庭支持等方面的满意度较高，但对教育和沟通方面的挑战表示担忧。表达性语言和单词识别得分与功能域表现出中度相关性，而植入年龄和智商指数表现出较弱或不一致的相关性。结论：标准化评估可能无法完全反映儿科CI使用者面临的日常困难，特别是在声调语言和学术背景下。家长报告工具为普通话人群的文化响应和以家庭为中心的护理提供了有价值的见解。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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Beyond Speech: Parental perspectives on functional outcomes in Mandarin-speaking pediatric cochlear implant users

Purpose

This study explored parental perceptions of real-world functional outcomes in Mandarin-speaking children with cochlear implants (CIs), focusing on domains often overlooked by standardized tests, such as communication, social participation, and academic independence.

Method

Sixty-three Taiwanese parents completed a culturally adapted Mandarin version of a validated parent-report questionnaire, assessing outcomes across ten functional domains. Children's clinical data including age at implantation, CI duration, speech perception, IQ, and language scores were collected. Spearman correlation analysis was conducted to examine associations between parent-reported outcomes and objective measures.

Results

Parents reported high satisfaction in domains such as general functioning and family support, but expressed concern about educational and communication challenges. Expressive language and word recognition scores showed moderate correlations with functional domains, while age at implantation and IQ indices showed weaker or inconsistent associations.

Conclusion

Standardized assessments may not fully capture everyday difficulties faced by pediatric CI users, particularly in tonal-language and academic contexts. Parent-report tools offer valuable insights for culturally responsive and family-centered care in Mandarin-speaking populations.

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来源期刊

International journal of pediatric otorhinolaryngology 医学-耳鼻喉科学

CiteScore

3.20

自引率

6.70%

发文量

276

审稿时长

62 days

期刊介绍： The purpose of the International Journal of Pediatric Otorhinolaryngology is to concentrate and disseminate information concerning prevention, cure and care of otorhinolaryngological disorders in infants and children due to developmental, degenerative, infectious, neoplastic, traumatic, social, psychiatric and economic causes. The Journal provides a medium for clinical and basic contributions in all of the areas of pediatric otorhinolaryngology. This includes medical and surgical otology, bronchoesophagology, laryngology, rhinology, diseases of the head and neck, and disorders of communication, including voice, speech and language disorders.