在全球北方自闭症差异研究中,“民族”、“种族”和“文化”作为差异结构的可见性。

IF 5.2 2区 心理学 Q1 PSYCHOLOGY, DEVELOPMENTAL
Autism Pub Date : 2025-07-08 DOI:10.1177/13623613251355247
Imane Kostet
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引用次数: 0

摘要

研究表明,在全球北部地区,自闭症的识别和诊断存在显著的民族和种族差异,这引发了人们对文化因素如何导致这些差异的兴趣。然而,尽管有这种兴趣,“文化”的概念在自闭症研究中仍然不发达,民族、种族和其他社会类别也经常被混为一谈。这导致了对“文化”如何影响观察到的差异的选择性和有限的解释。这篇评论文章讨论了在全球北方背景下观察到的差异的自闭症研究如何倾向于将种族和种族作为“差异”的代表,使诊断和社会服务不平等的文化本质主义解释永世长存。与此同时,将自闭症视为一种构建和协商的“文化”和“身份”的研究几乎使种族和种族变得不可见。因此,关于自闭症最初是如何与种族和种族交叉形成的,我们如何共同看待自闭症患者,以及我们的集体形象在多大程度上具有民族或种族多样性,我们知之甚少。这篇文章提倡在自闭症学术中对文化进行更广泛的定义,强调自闭症差异是如何通过意义创造过程来构建和协商的。研究表明,北美和欧洲的少数民族和种族群体在自闭症的识别和诊断方面面临着重大的不平等。这使得人们对自闭症研究越来越感兴趣,研究文化因素是如何导致这些差异的。然而,在自闭症研究中理解“文化”的方式仍然有限。通常,民族、种族和国家背景混合在一起,导致对这些差异存在的原因的解释很狭隘。具体地说,这篇文章探讨了自闭症研究如何经常强调种族和种族作为“差异”的标志,这可以强化关于为什么这些诊断不平等发生的过于简化的想法。相反,当自闭症作为一种社会身份或文化来研究时,种族和种族几乎被忽略了。正因为如此,我们对社会如何看待自闭症患者知之甚少,也不知道这些形象在民族或种族方面到底有多多样化。这项研究主张在自闭症研究中对“文化”有更广泛的理解,敦促学者们考虑如何通过文化和社会解释将自闭症主要视为一种“白人”疾病。这种方法有助于更好地理解和解决自闭症诊断中的差异。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
The (in)visibilisation of 'ethnicity', 'race' and 'culture' as constructs of difference in Global North autism disparities research.

Research evidences significant ethnic and racial disparities in the identification and diagnosis of autism in Global North contexts, sparking interest in how cultural factors contribute to these disparities. Despite this interest, however, the concept of 'culture' remains underdeveloped in autism research, where ethnic, racial, and other social categories are also often conflated. This has led to selective and limited explanations of how 'culture' influences the observed disparities. This commentary article discusses how autism research on the observed disparities in Global North contexts tends to hyper-visibilise ethnicity and race as proxies for 'differences', perpetuating cultural essentialist explanations for inequalities in diagnostics and social services. At the same time, research exploring autism as a constructed and negotiated 'culture' and 'identity' nearly renders ethnicity and race invisible. Consequently, little is known about how autism is initially shaped in intersection with ethnicity and race, how we collectively envision autistic individuals, and the extent to which our collective images are ethnically or racially diverse. This article advocates for a broader definition of culture in autism scholarship, emphasising how autism disparities also result from how autism is constructed and negotiated through processes of meaning-making.Lay abstractResearch shows that people from ethnic and racial minority groups in North America and Europe are confronted with major inequalities in the identification and diagnosis of autism. This has led to growing interest in autism research in how cultural factors might contribute to these differences. However, the way 'culture' is understood in autism research is still limited. Often, ethnic, racial and national backgrounds are mixed together, leading to narrow explanations for why these disparities exist. Concretely, this article explores how autism research often highlights ethnicity and race as markers of 'difference', which can reinforce oversimplified ideas about why these diagnostic inequalities occur. On the contrary, when autism is studied as a social identity or culture, ethnicity and race are almost ignored. Because of this, we know very little about how society imagines autistic people, and how diverse these images actually are in ethnic or racial terms. This study argues for a broader understanding of 'culture' in autism research, urging scholars to consider how autism is often viewed as primarily a 'white' condition through cultural and social interpretations. This approach could help better understand and address the disparities in autism diagnosis.

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来源期刊
Autism
Autism PSYCHOLOGY, DEVELOPMENTAL-
CiteScore
9.80
自引率
11.50%
发文量
160
期刊介绍: Autism is a major, peer-reviewed, international journal, published 8 times a year, publishing research of direct and practical relevance to help improve the quality of life for individuals with autism or autism-related disorders. It is interdisciplinary in nature, focusing on research in many areas, including: intervention; diagnosis; training; education; translational issues related to neuroscience, medical and genetic issues of practical import; psychological processes; evaluation of particular therapies; quality of life; family needs; and epidemiological research. Autism provides a major international forum for peer-reviewed research of direct and practical relevance to improving the quality of life for individuals with autism or autism-related disorders. The journal''s success and popularity reflect the recent worldwide growth in the research and understanding of autistic spectrum disorders, and the consequent impact on the provision of treatment and care. Autism is interdisciplinary in nature, focusing on evaluative research in all areas, including: intervention, diagnosis, training, education, neuroscience, psychological processes, evaluation of particular therapies, quality of life issues, family issues and family services, medical and genetic issues, epidemiological research.
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