改善抽动症服务在英格兰:一项多方法研究,以探索现有的医疗服务提供抽动症和抽动症的儿童和青少年。

IF 4.9 0 PSYCHIATRY
Nikita R Rattu,Sophie S Hall,Charlotte L Hall,Tara Murphy,Joseph Kilgariff,Nadya James,Emma McNally,Alexia Jeayes,Kareem Khan,Suzanne Rimmer,Louise Thomson,Madeleine Jane Groom
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引用次数: 0

摘要

背景:及时获得诊断评估和治疗对于改善抽动儿童和青少年(CYP)的功能和减轻不良长期预后的风险至关重要。目的:本研究旨在探索(i)目前英格兰为CYP提供的抽动服务是如何组织的,包括获得评估和治疗的机会,以及(ii)医疗保健专业人员(HCPs)评估和治疗抽动的经验。方法采用两种方法对tic服务提供情况进行调查。首先,向综合护理委员会(FOI1)和服务提供者(FOI2)发送了两份信息自由请求,以收集有关转诊和评估过程以及所提供治疗的数据。其次,一项全国性的卫生保健专业人员调查探讨了他们在评估和治疗抽搐时的经验和培训需求。调查结果sfoi的回应表明,62家服务机构中有12家(19.4%)主要位于伦敦地区,为CYP的抽搐转诊、评估和治疗提供了完整的途径。全国调查样本(n=184)包括心理学家、儿科医生、神经科医生和精神卫生护士。大多数描述服务结构不良,并报告在抽动症的评估和治疗方面需要额外的资源和培训。结论:整个英格兰不一致且资金不足的tic服务提供限制了HCPs有效支持CYP的能力。迫切需要制定明确的服务途径,提供评估和治疗,并为医护人员提供足够的培训和资源,以提供适当的护理。临床意义目前的tic服务不能满足英格兰CYP的医疗需求。如果没有改善,CYP长期预后较差的风险增加。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
ImproviNg Tic services in EnglaND: a multi-method study to explore existing healthcare service provision for children and young people with tics and Tourette syndrome.
BACKGROUND Timely access to diagnostic assessment and treatment is essential to improve function and mitigate the risk of poor long-term outcomes in children and young people (CYP) with tics. OBJECTIVE This study aimed to explore (i) how tic services for CYP in England are currently organised, including access to assessment and treatment and (ii) healthcare professionals' (HCPs) experiences of assessing and treating tics. METHODS Two methodologies were used to examine tic service provision. First, two freedom of information (FOI) requests were sent to Integrated Care Boards (FOI1) and service providers (FOI2) to gather data on referral and assessment processes, and treatments offered. Second, a national survey of HCPs explored their experiences and training needs when assessing and treating tics. FINDINGS FOI responses indicated that 12 of 62 services (19.4%), primarily located in the London area, offered a full pathway for the referral, assessment and treatment of tics in CYP.The national survey sample (n=184) included psychologists, paediatricians, neurologists and mental health nurses. Most described services as poorly structured and reported a need for additional resources and training in the assessment and treatment of tics. CONCLUSIONS Inconsistent and underfunded tic service provision across England limits HCPs' ability to support CYP with tics effectively. There is an urgent need to develop clear service pathways offering both assessment and treatment, and to equip HCPs with sufficient training and resources to provide appropriate care. CLINICAL IMPLICATIONS Current tic service provision does not meet the healthcare needs of CYP in England. Without improvements, CYP are at increased risk of poorer long-term outcomes.
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CiteScore
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