加强医患沟通,克服种族偏见和医疗不信任在造血干细胞移植存活。

IF 3.5 2区 医学 Q2 ONCOLOGY
Lyndsey J Wallace, Amy Fraire, Erica McKinney, Karen Kersting, Mackenzie Goertz
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引用次数: 0

摘要

对种族不敏感的癌症治疗导致医疗不信任、不良健康结果、获得机会有限和随访依从性低。针对种族的护理不仅限于治疗身体症状。它需要了解文化对患者及其家属的价值观、态度和行为的影响。方法:在这里,我们报告了一例61岁的黑人妇女,她因骨髓增生异常综合征接受了异基因造血干细胞移植,并认为她对生存的持续担忧被医疗团队所忽视。心理肿瘤科通过组织多学科家庭会议进行干预。结果:会议包括来自多个学科的医疗保健提供者和患者家属。它旨在提高家庭参与度,促进共同决策。患者报告感觉得到肯定和倾听,这提高了她对护理团队的信任和对后续护理的参与。讨论:本病例强调了肿瘤治疗中文化敏感、种族敏感的重要性。多学科干预可以在重建信任和改善种族边缘化患者的结果中发挥关键作用。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Enhancing Patient-Provider Communication to Overcome Racial Bias and Medical Mistrust in Hematopoietic Stem Cell Transplant Survivorship.

Introduction: Racially insensitive cancer care contributes to medical distrust, poor health outcomes, limited access, and low adherence to follow-up. Racially responsive care extends beyond treating physical symptoms. It requires an understanding of the cultural influences on the values, attitudes, and behaviors of patients and their families.

Methods: Here, we report a case of a 61-year-old Black woman who underwent an allogeneic hematopoietic stem cell transplant for myelodysplastic syndromes and felt her ongoing concerns related to survivorship were dismissed by the medical team. The psycho-oncology service intervened by organizing a multidisciplinary family meeting.

Results: The meeting included healthcare providers from multiple disciplines and the patient's family members. It aimed to increase family engagement and foster shared decision-making. The patient reported feeling affirmed and heard, which improved her trust in the care team and her engagement in follow-up care.

Discussion: This case underscores the importance of culturally sensitive, racially responsive care in oncology. Multidisciplinary interventions can play a critical role in rebuilding trust and improving outcomes for racially marginalized patients.

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来源期刊
Psycho‐Oncology
Psycho‐Oncology 医学-心理学
CiteScore
6.30
自引率
8.30%
发文量
220
审稿时长
3-8 weeks
期刊介绍: Psycho-Oncology is concerned with the psychological, social, behavioral, and ethical aspects of cancer. This subspeciality addresses the two major psychological dimensions of cancer: the psychological responses of patients to cancer at all stages of the disease, and that of their families and caretakers; and the psychological, behavioral and social factors that may influence the disease process. Psycho-oncology is an area of multi-disciplinary interest and has boundaries with the major specialities in oncology: the clinical disciplines (surgery, medicine, pediatrics, radiotherapy), epidemiology, immunology, endocrinology, biology, pathology, bioethics, palliative care, rehabilitation medicine, clinical trials research and decision making, as well as psychiatry and psychology. This international journal is published twelve times a year and will consider contributions to research of clinical and theoretical interest. Topics covered are wide-ranging and relate to the psychosocial aspects of cancer and AIDS-related tumors, including: epidemiology, quality of life, palliative and supportive care, psychiatry, psychology, sociology, social work, nursing and educational issues. Special reviews are offered from time to time. There is a section reviewing recently published books. A society news section is available for the dissemination of information relating to meetings, conferences and other society-related topics. Summary proceedings of important national and international symposia falling within the aims of the journal are presented.
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