非洲看不见的帕金森病问题

The BMJ Pub Date : 2025-07-02 DOI:10.1136/bmj.r1123
Frank Burkybile
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引用次数: 0

摘要

在东非,帕金森氏症的诊断正在上升,这暗示着医疗重点的转变。在内罗毕一个阳光明媚的下午,200名病人、护理人员、家属和医护人员聚集在维萨·奥什瓦尔社区中心。墙上挂着庆祝世界帕金森氏症日的明亮横幅,每个横幅都展示了关于韧性和社区力量的充满希望的信息。每个参与者的出现都是一种无声的胜利;他们与帕金森氏症作了漫长的斗争,往往得不到适当的诊断,也得不到知情的医疗保健有些人直到最近才知道他们的症状有一个名字,多年来他们一直默默地经历着他们不理解的症状。东非帕金森氏症患者所承受的负担之重,欧洲或北美患者基本上不知道——耻辱、孤立、严重的财务成本、训练不足的医疗专业人员以及难以获得负担得起的药物。这场危机凸显了重新思考医疗优先事项的必要性。…
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Africa’s invisible Parkinson’s problem
Parkinson’s disease diagnoses are rising across East Africa—hinting at a shift in healthcare priorities. Frank Burkybile reports One sunny afternoon in Nairobi a crowd of 200 patients, care givers, family members, and healthcare workers gather at the Visa Oshwal Community Centre. Bright banners celebrating world Parkinson’s day are hung along the walls, each displaying hopeful messages about resilience and community strength. Every participant’s presence is a quiet triumph; they have navigated a long journey with Parkinson’s disease, often endured without a proper diagnosis or access to informed healthcare.12 Some have only recently learnt their condition had a name, after years spent silently experiencing symptoms they didn’t understand. Parkinson’s in East Africa carries burdens on a scale largely unknown to patients in Europe or North America—stigma, isolation, crippling financial costs, insufficiently trained medical professionals, and inconsistent access to affordable drugs. The crisis underscores a need to rethink healthcare priorities. …
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