一项随机对照试验,研究移动健康应用程序(SAM)在减轻自闭症成年人压力和改善幸福感方面的有效性。

IF 5.2 2区 心理学 Q1 PSYCHOLOGY, DEVELOPMENTAL
Autism Pub Date : 2025-06-26 DOI:10.1177/13623613251346885
Kirsten L Spaargaren, Yvette Roke, Sander M Begeer, Annemieke van Straten, Heleen Riper, Kirstin Greaves-Lord, Anke M Scheeren
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引用次数: 0

摘要

自闭症成年人比非自闭症成年人承受更多的日常压力。然而,压力识别往往被延迟,可能导致慢性压力和重大(精神)健康风险。我们评估了压力自闭症伴侣(SAM)的有效性,这是一款与自闭症患者共同创建的压力监测移动健康应用程序。我们进行了一项双臂、平行、优势随机对照试验。自闭症成人(n = 214)(平均年龄:50.5岁;66.4%为女性),随机分为使用SAM 1个月组或候补组。参与者自我报告的主要(感知压力量表;沃里克-爱丁堡心理健康量表),以及基线和4周后的次要结果(应对自我效能量表),之后对照组可以开始使用该应用程序。分层多元回归分析显示,干预组在1个月后的感知压力(d = 0.27)显著降低,心理幸福感(d = 0.35)显著提高,应对自我效能(d = 0.16)显著提高。未发现干预效应调节因子。更频繁地使用应用程序与感知压力的更强下降显著相关(r = -0.293)。然而,42.9%的应用程序用户表示使用应用程序会增加压力,这值得进一步调查。我们的研究结果表明,SAM可能有效地减轻了一些自闭症患者的感知压力,改善了他们的心理健康。建议进一步改进和调查。自闭成年人通常比非自闭者承受更多的日常压力,但他们可能并不总是及时意识到这种压力,这会导致长期的健康问题。为了解决这个问题,我们测试了一款名为Stress Autism Mate (SAM)的应用程序,它是与自闭症患者一起设计的,旨在帮助自闭症成年人监测和管理他们的压力。在我们的研究中,214名自闭症成年人(平均年龄:50.5岁;(66.4%为女性)被随机分配使用该应用程序1个月或等待使用。我们要求参与者在1个月之前和之后完成调查,以测量他们的压力水平、心理健康和应对信心的变化。结果显示,与不使用这款应用的人相比,使用这款应用的参与者的压力更小,心理健康状况得到改善,应对能力也更好。我们还发现,一个人使用这款应用的频率越高,他们的压力水平就越低。然而,42.9%的用户使用该应用程序感到压力更大,这需要进一步研究。总的来说,我们的研究结果表明,SAM可以帮助一些自闭症成年人减轻压力,改善幸福感,但需要做更多的工作来改进这款应用,并更好地了解它的影响。试验注册表ISRCTN注册表:ISRCTN17394910。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
A randomized controlled trial into the effectiveness of a mobile health application (SAM) to reduce stress and improve well-being in autistic adults.

Autistic adults experience more daily stress compared to non-autistic adults. However, stress recognition is often delayed, potentially leading to chronic stress and significant (mental) health risks. We evaluated the effectiveness of Stress Autism Mate (SAM), a stress-monitoring mobile health application co-created with autistic individuals. We ran a two-arm, parallel, superiority randomized controlled trial. Autistic adults (n = 214) (mean age: 50.5 years; 66.4% female) were randomized to 1-month SAM usage or waitlist control. Participants self-reported on primary (Perceived Stress Scale; Warwick-Edinburgh Mental Wellbeing Scale), and secondary outcomes (Coping Self-Efficacy Scale) at baseline and 4 weeks later, after which the control group could start using the app. Hierarchical multiple regression analyses revealed that the intervention group had significantly lower perceived stress (d = 0.27), greater mental well-being (d = 0.35), and improved coping self-efficacy (d = 0.16) compared to the control group after 1 month. No intervention effect moderators could be identified. More frequent app usage was significantly associated with a stronger decrease in perceived stress (r = -0.293). However, 42.9% of app users indicated increased stress from app use, warranting further investigation. Our results suggest that SAM may be effective in reducing perceived stress and improving mental well-being for some autistic individuals. Further refinement and investigation are recommended.Lay abstractAutistic adults often experience more daily stress than non-autistic individuals, but they may not always recognize this stress timely, which can lead to long-term health problems. To help address this, we tested an app called Stress Autism Mate (SAM), which was designed together with autistic individuals to help autistic adults monitor and manage their stress. In our study, 214 autistic adults (average age: 50.5 years; 66.4% female) were randomly assigned to either use the app for 1 month or wait before using it. We asked participants to complete surveys before and after the 1-month period to measure changes in their stress levels, mental well-being, and confidence in coping. Results showed that participants who used the app reported lower stress, improved mental well-being, and better coping skills compared to those who did not use the app. We also found that the more often someone used the app, the more their stress levels decreased. However, 42.9% of users felt more stressed using the app, which needs further study. Overall, our findings suggest that SAM can help reduce stress and improve well-being for some autistic adults, but more work is needed to improve the app and better understand its effects.Trial registry ISRCTN Registry: ISRCTN17394910.

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来源期刊
Autism
Autism PSYCHOLOGY, DEVELOPMENTAL-
CiteScore
9.80
自引率
11.50%
发文量
160
期刊介绍: Autism is a major, peer-reviewed, international journal, published 8 times a year, publishing research of direct and practical relevance to help improve the quality of life for individuals with autism or autism-related disorders. It is interdisciplinary in nature, focusing on research in many areas, including: intervention; diagnosis; training; education; translational issues related to neuroscience, medical and genetic issues of practical import; psychological processes; evaluation of particular therapies; quality of life; family needs; and epidemiological research. Autism provides a major international forum for peer-reviewed research of direct and practical relevance to improving the quality of life for individuals with autism or autism-related disorders. The journal''s success and popularity reflect the recent worldwide growth in the research and understanding of autistic spectrum disorders, and the consequent impact on the provision of treatment and care. Autism is interdisciplinary in nature, focusing on evaluative research in all areas, including: intervention, diagnosis, training, education, neuroscience, psychological processes, evaluation of particular therapies, quality of life issues, family issues and family services, medical and genetic issues, epidemiological research.
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