儿童慢性病教育倡议的见解：儿童、青少年和家庭的观点。范围审查

IF 2.9 2区医学 Q2 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH

Patient Education and Counseling Pub Date : 2025-06-19 DOI:10.1016/j.pec.2025.109228

Marianne Eg , Henrik Sehested Laursen , Katja Lindblad Christensen , Susanne Friis Søndergaard

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引用次数: 0

摘要

目的本研究旨在识别、检查和概念化绘制关于患有慢性疾病的儿童和青少年及其家庭如何在医疗保健中经历教育举措的文献，以揭示知识差距并指导未来的研究。我们确定了本综述关注的人群、概念和背景，并系统地检索了Medline、CINAHL和Web of Science数据库。我们遵循了Peters等人（2021）概述的方法，采用概念映射来指导叙事综合。结果纳入14个来源，覆盖18年。大多数来源发表于2016年至2020年之间。出现了三个概念图：1)建立对医疗保健的信心：培训、同伴教育和多学科干预的作用。3)超越诊断：同伴教育如何提高健康意识结论本综述强调了整合多种教育方法、优化家长参与和利用多学科团队提供全面健康素养教育的重要性。此外，它强调有必要针对家庭、儿童/青少年的具体需要，考虑到他们的年龄和疾病，采取个性化的办法。实践意义：我们的研究结果强调需要继续研究和实施促进健康素养和增强儿童和青少年管理健康能力的战略。此外，我们建议开发综合的、环境敏感的服务，加强同伴和父母的支持，并让医疗保健专业人员参与进来，以改善教育举措和护理服务。实践意义我们的调查结果强调，需要继续研究和实施促进卫生知识普及和增强儿童和青少年管理自身健康能力的战略。此外，我们建议开发综合的、环境敏感的服务，加强同伴和父母的支持，并让医疗保健专业人员参与进来，以改善教育举措和护理服务。

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Insights into pediatric chronic disease education initiatives: Children, adolescents and families’ perspectives. A scoping review

Objective

This study aimed to identify, examine, and conceptually map the literature on how children and adolescents with chronic health conditions and their families experience educational initiatives in healthcare, in order to uncover knowledge gaps and guide future research

Method

We followed the Joanna Briggs Institute guidelines for conducting and reporting scoping reviews. We identified the population, concept, and context on which to focus this review and systematically searched the Medline, CINAHL, and Web of Science databases. We followed the methodology outlined by Peters et al. (2021), employing conceptual mapping to guide the narrative synthesis.

Results

We included 14 sources covering 18 years. Most sources were published between 2016 and 2020. Three conceptual maps emerged: 1) Building confidence in healthcare: The role of training, peer-education, and multidisciplinary interventions. 2) Empowered together: Peer-education and support fuels motivation and success and 3) Beyond the diagnosis: How peer-education boosts health awareness

Conclusion

The review highlights the importance of integrating diverse educational approaches, optimizing parental involvement, and utilizing multidisciplinary teams to deliver comprehensive health literacy education. Furthermore, it emphasizes the need for individualized approaches tailored to the specific needs of families, children/adolescents considering their age and illness.

Practice Implications: Our findings underscore the need for continued research and implementation of strategies that promote health-literacy and empower children and adolescents to manage their health. Furthermore, we suggest developing integrated, context-sensitive services, enhancing peer and parental support, and involving healthcare professionals to improve educational initiatives and care delivery.

Practice implications

Our findings underscore the need for continued research and implementation of strategies that promote health-literacy and empower children and adolescents to manage their health. Furthermore, we suggest developing integrated, context-sensitive services, enhancing peer and parental support, and involving healthcare professionals to improve educational initiatives and care delivery.

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来源期刊

Patient Education and Counseling 医学-公共卫生、环境卫生与职业卫生

CiteScore

5.60

自引率

11.40%

发文量

384

审稿时长

46 days

期刊介绍： Patient Education and Counseling is an interdisciplinary, international journal for patient education and health promotion researchers, managers and clinicians. The journal seeks to explore and elucidate the educational, counseling and communication models in health care. Its aim is to provide a forum for fundamental as well as applied research, and to promote the study of organizational issues involved with the delivery of patient education, counseling, health promotion services and training models in improving communication between providers and patients.