Understanding participants’ attitudes toward research in the CARE registry

INTRODUCTION

Elucidating barriers and facilitators to research participation is especially important in Asian American, Native Hawaiian, and Pacific Islander (AANHPI) populations, who are significantly underrepresented in Alzheimer's disease and related dementias (ADRD) research.

METHODS

We analyzed multilingual data from the 7-item Research Attitude Questionnaire (RAQ) among diverse AANHPI participants across a broad age range in the Collaborative Approach for AANHPI Research and Education (CARE) registry.

RESULTS

Upon enrollment, 10,063 CARE participants were invited to complete the RAQ; 72.3% (7281) did so. The RAQ survey showed that 75.0% had favorable attitudes toward research. In a stepwise model, characteristics associated with a more favorable attitude toward research included identifying as Vietnamese, older age, providing multiple contact methods, living in the Western U.S. region, and having better general health.

DISCUSSION

Attitudes toward research differ based on specific characteristics. Certain subpopulations may require more tailored and/or resource-intensive engagement to increase their research participation.

Highlights

• Understanding research participation barriers is crucial in those underrepresented.
• Seventy-five percent of Collaborative Approach for Asian Americans, Native Hawaiians and Pacific Islanders Research and Education (CARE) registry members had favorable research attitudes.
• The study identified characteristics associated with research attitudes.
• Subpopulations may require more tailored and/or resource-intensive engagement.