支持获得综合服务:中国大陆自闭症相关国家政策的范围审查。

IF 5.6 2区 心理学 Q1 PSYCHOLOGY, DEVELOPMENTAL
Autism Pub Date : 2025-07-01 Epub Date: 2025-01-06 DOI:10.1177/13623613241311736
Mingyang Zou, Yujiao Han, Meiyu Jin, Wei Xie, Chuang Shang, Tiantian Li, Liwen Feng, Caihong Sun, Saisai Zhang, Lijie Wu
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引用次数: 0

摘要

该研究旨在审查与自闭症相关的政策,描述政策特征,并确定与世界卫生组织制定的建议相比的潜在政策差距。截止到2022年12月,对15个政府机关和公共机关的自闭症相关政策进行了全面检索,其中2504项中有81项被保留下来。81项政策中有42项是在2021年和2022年发布的。被纳入的15个部委中有12个参与了政策制定,但只有不到三分之一的政策文件是由多个部委联合发布的,这对于有效实施自闭症相关政策至关重要。与世界卫生组织的建议(《2013-2030年精神卫生综合行动计划》和卫生系统的六大组成部分)相比,若干领域显示出强有力的政策承诺,包括领导和治理、服务提供以及获得药物和设施。一些潜在的差距仍然存在,包括相对缺乏对卫生信息和卫生人力的重视,以及对社区的关注不够。尽管存在这些潜在的差距,令人鼓舞的是,国家越来越关注自闭症群体。本研究可为未来的政策制定提供依据,为自闭症患者提供更全面、更优质的服务。研究发现,政策在支持自闭症患者的健康和福祉方面起着至关重要的作用。然而,与自闭症相关的政策审查相对较少,与世界卫生组织的建议相比,目前与自闭症相关的政策水平和潜在差距仍不清楚。本研究回顾了中国大陆与自闭症相关的政策,描述了政策特征,并确定了潜在的政策差距。我们对截至2022年12月的15个政府机构和公共机构网站进行了自闭症相关政策的全面检索,其中2504个保留了81个。我们发现,81项政策中有42项是在2021年和2022年发布的。15个被纳入的部委中有12个参与决策,不到三分之一的政策文件是由两个或两个以上的部委发布的。关于世界卫生组织提出的建议(《2013-2030年精神卫生综合行动计划》和卫生系统的六个组成部分),有几个领域得到了国家的广泛关注,包括领导和治理、服务提供以及获得药品和设施,而对其他组成部分的政策关注有限。尽管存在这些潜在的差距,令人鼓舞的是,国家越来越关注自闭症群体。本研究可为未来的政策制定提供依据,为自闭症患者提供更全面、更优质的服务。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Supporting access to comprehensive services: A scoping review of national policies related to autism in mainland China.

The study was designed to review autism-associated policies, describe policy characteristics, and determine potential policy gaps compared with the recommendations set by the World Health Organization. Autism-associated policies in 15 government agencies and public institutions were thoroughly searched on ministry websites up to December 2022, where 81 of 2504 were retained. And 42 of the 81 policies were issued in 2021 and 2022. Twelve of the 15 included ministries were involved in policymaking, yet fewer than one third of the policy documents were jointly issued by multiple ministries, which are crucial for the effective implementation of autism-associated policies. Compared with the World Health Organization recommendations (the Comprehensive Mental Health Action Plan 2013-2030 and the Six Building Blocks of Health System), several areas showed a strong policy commitment, including leadership and governance, service delivery, and access to medicines and facility. Several potential gaps remained, including a relative lack of emphasis on health information and the health workforce, and insufficient attention to the community. Despite these potential gaps, encouragingly, the nation has increasingly focused on autism groups. This study can provide a basis for future policymaking to provide more comprehensive and better services for individuals with autism.Lay abstractPolicies have been found to play a crucial role in supporting the health and well-being of individuals with autism. Yet, relatively few policy reviews are related to autism, and the current level of autism-associated policies and potential gaps in comparison with the World Health Organization recommendations remain unclear. Our study reviewed autism-associated policies, described policy characteristics, and determined potential policy gaps in mainland China. We conducted a comprehensive search of autism-associated policies from 15 websites of government agencies and public institutions up to December 2022, where 81 of 2504 were retained. We found that 42 of the 81 policies were issued in 2021 and 2022. Twelve of the 15 included ministries were involved in policymaking and fewer than one third of the policy documents were issued by two or more ministries. With respect to recommendations proposed by the World Health Organization (the Comprehensive Mental Health Action Plan 2013-2030 and the Six Building Blocks of Health System), several areas received extensive national attention, including leadership and governance, service delivery, and access to medicines and facility, while there was limited policy attention on the other components. Despite these potential gaps, encouragingly, the nation has increasingly focused on autism groups. This study can provide a basis for future policymaking to provide more comprehensive and better services for individuals with autism.

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来源期刊
Autism
Autism PSYCHOLOGY, DEVELOPMENTAL-
CiteScore
9.80
自引率
11.50%
发文量
160
期刊介绍: Autism is a major, peer-reviewed, international journal, published 8 times a year, publishing research of direct and practical relevance to help improve the quality of life for individuals with autism or autism-related disorders. It is interdisciplinary in nature, focusing on research in many areas, including: intervention; diagnosis; training; education; translational issues related to neuroscience, medical and genetic issues of practical import; psychological processes; evaluation of particular therapies; quality of life; family needs; and epidemiological research. Autism provides a major international forum for peer-reviewed research of direct and practical relevance to improving the quality of life for individuals with autism or autism-related disorders. The journal''s success and popularity reflect the recent worldwide growth in the research and understanding of autistic spectrum disorders, and the consequent impact on the provision of treatment and care. Autism is interdisciplinary in nature, focusing on evaluative research in all areas, including: intervention, diagnosis, training, education, neuroscience, psychological processes, evaluation of particular therapies, quality of life issues, family issues and family services, medical and genetic issues, epidemiological research.
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