多发性硬化症对健康、生产力和社会关系的影响。

IF 1.6 4区 医学 Q4 NEUROSCIENCES
Arquivos de neuro-psiquiatria Pub Date : 2025-05-01 Epub Date: 2025-06-20 DOI:10.1055/s-0045-1809400
Vinicius Eduardo Vergani, Bruna Rocha Silveira, Gustavo San Martin Elexpe Cardoso, Jean Faber, Denis Bernardi Bichuetti
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引用次数: 0

摘要

多发性硬化症(MS)是50岁以下人群非创伤性神经功能障碍的主要原因。评估全国多发性硬化症患者样本中最普遍的症状,并分析其与疾病特征、人口统计学、生活质量、就业状况和社会福利使用的相关性。横断面、在线、自我报告的调查,涉及人口统计和临床数据、就业状况和社会福利的使用。共有466名患者回答了调查。发病中位年龄为30岁,目前年龄为39岁,病程为8年。此外,患者确定的疾病阶梯(PDDS)中位数为2,表明轻度至中度残疾。MS影响和步行量表得分的中位数分别为31和20%,这表明生活质量和活动能力受到轻微到中度的损害。在参与者中,43%的人感到疲劳,51%的人表示睡眠不好。失业患者诊断延迟,致残率较高。此外,有一半的失业患者正在领取某种社会福利,而就业患者只有6.5%。目前的研究显示了全国多发性硬化症患者样本的症状患病率,并揭示了那些诊断延迟和更多残疾的患者有更高的失业率和社会福利使用率。早期诊断的策略和更好的治疗计划不仅可以减少患者的残疾,而且可能增加就业机会并减少社会福利的使用。
本文章由计算机程序翻译,如有差异,请以英文原文为准。

The impact of multiple sclerosis on wellbeing, productivity, and societal relations.

The impact of multiple sclerosis on wellbeing, productivity, and societal relations.

Multiple sclerosis (MS) is the main cause of nontraumatic neurological disabilities in the population under 50 years of age.To evaluate the most prevalent symptoms in a national sample of people with MS and to analyze their correlation with disease characteristics, demographics, quality of life, employment status, and use of social benefits.Cross-sectional, online, self-reported survey, concerning demographic and clinical data, employment status, and use of social benefits.A total of 466 patients answered the survey. The median age at onset was 30 years, the current age, of 39, and disease duration was 8 years. Furthermore, the median patient determined disease steps (PDDS) was 2, which indicates minor to moderate disability. The median MS impact and walking scale scores were 31 and 20%, which denotes minor to moderate quality of life and mobility compromise. Among the participants, 43% suffered fatigue and 51% reported not sleeping well. Unemployed patients had delayed diagnosis and higher disability rates. Furthermore, half of the unemployed patients are receiving some social benefit, compared with only 6.5% of the employed patients.The current study presents symptom prevalence in a national sample of patients with MS and discloses that those with a diagnosis delay and more disability have higher rates of unemployment and use of social benefits. Strategies for earlier diagnosis and better treatment plans can not only reduce patient disability but, possibly, increase employment retention and reduce the use of social benefits.

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来源期刊
Arquivos de neuro-psiquiatria
Arquivos de neuro-psiquiatria 医学-精神病学
CiteScore
2.10
自引率
7.10%
发文量
262
审稿时长
4-8 weeks
期刊介绍: Arquivos de Neuro-Psiquiatria is the official journal of the Brazilian Academy of Neurology. The mission of the journal is to provide neurologists, specialists and researchers in Neurology and related fields with open access to original articles (clinical and translational research), editorials, reviews, historical papers, neuroimages and letters about published manuscripts. It also publishes the consensus and guidelines on Neurology, as well as educational and scientific material from the different scientific departments of the Brazilian Academy of Neurology. The ultimate goals of the journal are to contribute to advance knowledge in the areas of Neurology and Neuroscience, and to provide valuable material for training and continuing education for neurologists and other health professionals working in the area. These goals might contribute to improving care for patients with neurological diseases. We aim to be the best Neuroscience journal in Latin America within the peer review system.
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