残疾的美好生活:通过社区艺术工作坊启发和支持女性癌症患者的经历。

IF 1.6 Q3 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH
Roanne Thomas, Sandra Houle, Mary Egan, Wendy Gifford, Pamela Grassau, Judy King, Josée Boulanger, Alysson Rheault, Kelsey Séguin
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引用次数: 0

摘要

在医疗保健中占主导地位的生物医学观点认为,损害与美好生活是不相容的。这导致人们的护理往往侧重于“修复”,而无法支持有缺陷的人过上美好生活的细微体验。对许多人来说,包括那些患有癌症的人,损害是日常生活中常见的“正常”部分。学者们认为,艺术是一种强大的工具,可以挑战主流观点,增强对复杂人类经历的理解。因此,本研究旨在通过一系列以社区为基础的艺术工作坊,从癌症女性的角度探索和描述美好生活的体验。采用以艺术为基础和以社区为基础的参与性研究方法,我们促进了两个系列的虚拟社区艺术研讨会。共有10名女性参与了这项研究。工作坊录像,并在工作坊结束后完成个别访谈。数据收集还包括参与者作品的照片。数据分析采用解释性描述。我们的发现提供了两个相互关联的主题,它们构成了美好生活的关键组成部分:(a)人际关系和社会关系的中心地位;(b)认识到转变的动态过程。参加者将以艺术为基础的工作坊描述为探索、表达和支持他们美好生活体验的宝贵工具。这项研究提供了重要的见解,从个人角度理解癌症患者的复杂生活体验。它还阐明了社区艺术在培养与障碍良好生活的积极经验方面的潜力。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
A Good Life with Impairment: Illuminating and Supporting the Experiences of Women Living With Cancer through Community-Based Art Workshops.

Dominant biomedical perspectives in health care view impairment as incompatible with living a good life. This leads to care that is often focused on "fixing," falling short of supporting nuanced experiences of living a good life among people experiencing impairment. For many people, including those living with and beyond cancer, impairment is a common and "normal" part of everyday life. Scholars suggest that the arts are a powerful tool to challenge dominant perspectives and enhance understanding of complex human experiences. Therefore, this study aimed to explore and describe experiences of a good life from the perspective of women living with cancer through a series of community-based art workshops. Using an arts-based and community-based participatory research approach, we facilitated two series of virtual, community arts-based workshops. A total of 10 women participated in the study. Workshops were video-recorded, and postworkshop, individual interviews were completed. Data collection also consisted of photographs of participants' artwork. Data were analyzed using interpretive description. Our findings offer two interrelated themes that constitute key components of a good life: (a) the centrality of human connection and social relationships and (b) recognizing dynamic processes of transformation. Participants described the arts-based workshops as a valuable tool to explore, express, and support their experiences of a good life. This study provides important insights into understanding the complex experience of living a good life with cancer from personal perspectives. It also illuminates the potential of community arts in fostering positive experiences of living well with impairment.

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来源期刊
Health Promotion Practice
Health Promotion Practice PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH-
CiteScore
3.80
自引率
5.30%
发文量
126
期刊介绍: Health Promotion Practice (HPP) publishes authoritative articles devoted to the practical application of health promotion and education. It publishes information of strategic importance to a broad base of professionals engaged in the practice of developing, implementing, and evaluating health promotion and disease prevention programs. The journal"s editorial board is committed to focusing on the applications of health promotion and public health education interventions, programs and best practice strategies in various settings, including but not limited to, community, health care, worksite, educational, and international settings. Additionally, the journal focuses on the development and application of public policy conducive to the promotion of health and prevention of disease.
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