招募种族化的青年到加拿大的干细胞登记处。

IF 1.5 4区 医学 Q3 HEMATOLOGY
Kelly Holloway, Ufuoma Muwhen, Warren B Fingrut, Jennie Haw
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引用次数: 0

摘要

目的:本文的目的是报告种族化的年轻人对干细胞登记的认识的结果。此外,我们研究了招募材料和推广策略,以提高年轻的、种族化的加拿大人对干细胞的认识和注册。背景:非白人患者在获得非亲属供体方面面临差异,因为在干细胞登记中白人登记者的比例不成比例,种族间遗传多样性的差异,以及供体登记的流失率。方法/材料:本定性研究采用基于社区的参与性研究。焦点小组由年龄在17-35岁之间的年轻人组成,他们自我认同为黑人、土著和有色人种(BIPOC)/种族化,能自如地说英语,生活在加拿大。结果:共进行5个2小时焦点小组,共17名参与者。与会者谈到了知识、信任和参与社区等相互关联的主题。他们的动机是为一个更多样化的注册表做出贡献。这些观点使他们了解到哪些材料和事件会与他们的同龄人和社区产生共鸣。结论:我们的研究结果指出了一些具体的建议,这些建议可以引起年轻的种族化加拿大人的共鸣。此外,干细胞登记处应该与年轻人和年轻人组织合作,共同开发教育和招聘材料,并随着时间的推移建立关系,发展他们对干细胞的知识,提高他们在社区内举办干细胞活动的信心。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Recruiting racialised youth to a stem cell registry in Canada.

Objectives: The aim of this paper is to report results of racialised young adults' awareness of the stem cell registry. Further, we examine recruitment materials and outreach strategies to increase stem cell awareness and registration among young, racialised Canadians.

Background: Patients who are not White face disparities in securing unrelated donors because of the disproportionate representation of White registrants on stem cell registries, differences in genetic diversity across ethnicities, and attrition rates for donor registries.

Methods/materials: This qualitative study is informed by community-based participatory research. Focus groups were conducted with young adults ages 17-35 who self-identify as Black, Indigenous, and people of colour (BIPOC)/racialised, are comfortable speaking in English, and live in Canada.

Results: Five 2-h focus groups were conducted with 17 participants in total. Participants spoke to the interconnected themes of knowledge, trust, and engagement with their community. They were motivated by the idea of contributing to a more diverse registry. These perspectives informed their insight into what materials and events would resonate with their peers and their communities.

Conclusion: Our findings point to some concrete suggestions for materials that can resonate with young racialised Canadians. Further, stem cell registries should work collaboratively with young adults and young adult organisations to co-develop educational and recruitment materials and build relationships over time, developing their knowledge of stem cells and raising their confidence to host stem cell events within their communities.

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来源期刊
Transfusion Medicine
Transfusion Medicine 医学-血液学
CiteScore
2.70
自引率
0.00%
发文量
96
审稿时长
6-12 weeks
期刊介绍: Transfusion Medicine publishes articles on transfusion medicine in its widest context, including blood transfusion practice (blood procurement, pharmaceutical, clinical, scientific, computing and documentary aspects), immunohaematology, immunogenetics, histocompatibility, medico-legal applications, and related molecular biology and biotechnology. In addition to original articles, which may include brief communications and case reports, the journal contains a regular educational section (based on invited reviews and state-of-the-art reports), technical section (including quality assurance and current practice guidelines), leading articles, letters to the editor, occasional historical articles and signed book reviews. Some lectures from Society meetings that are likely to be of general interest to readers of the Journal may be published at the discretion of the Editor and subject to the availability of space in the Journal.
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