Emily O Wakefield, William T Zempsky, Rebecca M Puhl, Susmita Kashikar-Zuck, Mark Connelly, Burel R Goodin, Barbara Edelheit, Vaishali Belamkar, Tolulope Adetayo, Corinne T Evans, Christopher Theriault, Carissa DelGaudio, Mark D Litt
{"title":"青少年慢性疼痛患者疼痛相关耻辱感量表（PReSS-A）的编制与验证","authors":"Emily O Wakefield, William T Zempsky, Rebecca M Puhl, Susmita Kashikar-Zuck, Mark Connelly, Burel R Goodin, Barbara Edelheit, Vaishali Belamkar, Tolulope Adetayo, Corinne T Evans, Christopher Theriault, Carissa DelGaudio, Mark D Litt","doi":"10.1016/j.jpain.2025.105463","DOIUrl":null,"url":null,"abstract":"<p><p>Adolescents with chronic pain often feel stigmatized by their pain condition. Despite the frequency of stigma in this population, few measures exist to assess pain-related stigma in youth with chronic pain. This study reports on the development and validation of the self-report Pain-related Stigma Scale for Adolescents (PReSS-A). The PReSS-A was designed to assess several dimensions of pain-related stigma (felt stigma, peer stigmatization, internalized stigma, and anticipatory stigma/concealment), and to assess stigma across multiple interpersonal relationships. Reliability, construct validity and factor structure of the instrument were evaluated in youth with chronic pain. The sample consisted of 286 adolescents (aged 12-17) with juvenile fibromyalgia (JFM), other chronic primary musculoskeletal pain conditions (CPMP), juvenile idiopathic arthritis (JIA), and disorders of gut-brain interactions (DGBI). Examination of the underlying structure of the instrument was conducted with exploratory factor analysis. Stigma dimension scores were explored between adolescents with different chronic pain conditions. PReSS-A subscales demonstrated strong internal consistency. Construct validity was established through subscale and total score correlations with complementary constructs. The exploratory factor analysis revealed two broad factors for the PReSS-A: felt stigma and internalized stigma. Majority of the sample reported pain-related stigma from all sources: medical providers, school personnel, family members, and peers. Adolescents with JFM reported significantly higher pain-related stigma than those with other conditions. The PReSS-A can facilitate the advancement of pain-related stigma research among adolescents with varied chronic pain conditions. Future research should focus on the degree to which pain-related stigma influences functioning and social development. PERSPECTIVE: This paper presents the development and psychometric properties of the Pain-related Stigma Scale for Adolescents (PReSS-A) among adolescents with chronic pain. This measure can advance our understanding of pain-related stigma among children and adolescents living with chronic pain.</p>","PeriodicalId":51095,"journal":{"name":"Journal of Pain","volume":" ","pages":"105463"},"PeriodicalIF":4.0000,"publicationDate":"2025-06-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12329753/pdf/","citationCount":"0","resultStr":"{\"title\":\"The development and validation of the pain-related stigma scale for adolescents (PReSS-A) with chronic pain.\",\"authors\":\"Emily O Wakefield, William T Zempsky, Rebecca M Puhl, Susmita Kashikar-Zuck, Mark Connelly, Burel R Goodin, Barbara Edelheit, Vaishali Belamkar, Tolulope Adetayo, Corinne T Evans, Christopher Theriault, Carissa DelGaudio, Mark D Litt\",\"doi\":\"10.1016/j.jpain.2025.105463\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p><p>Adolescents with chronic pain often feel stigmatized by their pain condition. Despite the frequency of stigma in this population, few measures exist to assess pain-related stigma in youth with chronic pain. This study reports on the development and validation of the self-report Pain-related Stigma Scale for Adolescents (PReSS-A). The PReSS-A was designed to assess several dimensions of pain-related stigma (felt stigma, peer stigmatization, internalized stigma, and anticipatory stigma/concealment), and to assess stigma across multiple interpersonal relationships. Reliability, construct validity and factor structure of the instrument were evaluated in youth with chronic pain. The sample consisted of 286 adolescents (aged 12-17) with juvenile fibromyalgia (JFM), other chronic primary musculoskeletal pain conditions (CPMP), juvenile idiopathic arthritis (JIA), and disorders of gut-brain interactions (DGBI). Examination of the underlying structure of the instrument was conducted with exploratory factor analysis. Stigma dimension scores were explored between adolescents with different chronic pain conditions. PReSS-A subscales demonstrated strong internal consistency. Construct validity was established through subscale and total score correlations with complementary constructs. The exploratory factor analysis revealed two broad factors for the PReSS-A: felt stigma and internalized stigma. Majority of the sample reported pain-related stigma from all sources: medical providers, school personnel, family members, and peers. Adolescents with JFM reported significantly higher pain-related stigma than those with other conditions. The PReSS-A can facilitate the advancement of pain-related stigma research among adolescents with varied chronic pain conditions. Future research should focus on the degree to which pain-related stigma influences functioning and social development. 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The development and validation of the pain-related stigma scale for adolescents (PReSS-A) with chronic pain.
Adolescents with chronic pain often feel stigmatized by their pain condition. Despite the frequency of stigma in this population, few measures exist to assess pain-related stigma in youth with chronic pain. This study reports on the development and validation of the self-report Pain-related Stigma Scale for Adolescents (PReSS-A). The PReSS-A was designed to assess several dimensions of pain-related stigma (felt stigma, peer stigmatization, internalized stigma, and anticipatory stigma/concealment), and to assess stigma across multiple interpersonal relationships. Reliability, construct validity and factor structure of the instrument were evaluated in youth with chronic pain. The sample consisted of 286 adolescents (aged 12-17) with juvenile fibromyalgia (JFM), other chronic primary musculoskeletal pain conditions (CPMP), juvenile idiopathic arthritis (JIA), and disorders of gut-brain interactions (DGBI). Examination of the underlying structure of the instrument was conducted with exploratory factor analysis. Stigma dimension scores were explored between adolescents with different chronic pain conditions. PReSS-A subscales demonstrated strong internal consistency. Construct validity was established through subscale and total score correlations with complementary constructs. The exploratory factor analysis revealed two broad factors for the PReSS-A: felt stigma and internalized stigma. Majority of the sample reported pain-related stigma from all sources: medical providers, school personnel, family members, and peers. Adolescents with JFM reported significantly higher pain-related stigma than those with other conditions. The PReSS-A can facilitate the advancement of pain-related stigma research among adolescents with varied chronic pain conditions. Future research should focus on the degree to which pain-related stigma influences functioning and social development. PERSPECTIVE: This paper presents the development and psychometric properties of the Pain-related Stigma Scale for Adolescents (PReSS-A) among adolescents with chronic pain. This measure can advance our understanding of pain-related stigma among children and adolescents living with chronic pain.
期刊介绍：
The Journal of Pain publishes original articles related to all aspects of pain, including clinical and basic research, patient care, education, and health policy. Articles selected for publication in the Journal are most commonly reports of original clinical research or reports of original basic research. In addition, invited critical reviews, including meta analyses of drugs for pain management, invited commentaries on reviews, and exceptional case studies are published in the Journal. The mission of the Journal is to improve the care of patients in pain by providing a forum for clinical researchers, basic scientists, clinicians, and other health professionals to publish original research.
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