美国癫痫协会/国际抗癫痫联盟-美国癫痫保健差异北美联合工作队。

IF 6.3 2区 医学 Q1 CLINICAL NEUROLOGY
Jaideep Kapur, Dave Clarke, Mill Etienne, Camilo Gutierrez, Barbara C Jobst, Emily Johnson, Sucheta Joshi, Elaine T Kiriakopoulos, David M Labiner, Fred A Lado, Alain Lekoubou, Daniel H Lowenstein, Karen Parko, Ellen Riker, Renée A Shellhaas, Joseph I Sirven, Karen Skjei, John M Stern, Timothy E Welty, Adam B Eickmeyer, Shawna L Strickland
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引用次数: 0

摘要

许多因素,包括健康的社会决定因素、知识差距、经济挑战、劳动力限制和卫生系统缺陷,都与癫痫患者在获得卫生保健服务和健康结果方面的显著差异有关。美国癫痫协会(AES)和北美抗癫痫国际联盟(ILAE-NA)成立了一个联合工作队,探讨和制定建议,以解决PWE经历的卫生保健差异。工作组通过会议、公众和患者组织的意见和讨论收集基础知识,以制定共识性建议。我们列举了这些建议,并讨论了这些建议背后的理由,以便通过全面的研究、包容性的临床实践、强有力的宣传和有针对性的教育举措来减少癫痫治疗方面的差异。虽然我们的建议主要针对美国,但我们承认,PWE在全球范围内也存在类似的障碍和限制,这些障碍和限制也需要在其当地领域内加以解决,并注意其中的独特因素。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
American Epilepsy Society/International League Against Epilepsy-North America Joint Task Force for Epilepsy Health Care Disparities in the United States.

Numerous factors including social determinants of health, knowledge gaps, economic challenges, workforce limitations, and health system deficiencies are associated with significant disparities in access to health care services and health outcomes for people with epilepsy (PWE). The American Epilepsy Society (AES) and the International League Against Epilepsy-North America (ILAE-NA) established a joint task force to explore and develop recommendations to address health care disparities experienced by PWE. The task force gathered foundational knowledge through meetings, public and patient organization comments and discussions to develop consensus recommendations. We enumerate the recommendations and discuss the rationale behind them to reduce disparities in epilepsy care through comprehensive research, inclusive clinical practices, robust advocacy, and targeted educational initiatives. While our recommendations are focused on the United States, we acknowledge that similar barriers and limitations exist for PWE globally and that these also need to be addressed within their local domains and with attention to unique factors therewithin.

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来源期刊
Epilepsy Currents
Epilepsy Currents CLINICAL NEUROLOGY-
CiteScore
2.40
自引率
5.60%
发文量
88
审稿时长
>12 weeks
期刊介绍: Epilepsy Currents is an open access, bi-monthly current-awareness journal providing reviews, commentaries and abstracts from the world’s literature on the research and treatment of epilepsy. Epilepsy Currents surveys and comments on all important research and developments in a format that is easy to read and reference. Each issue is divided into two main sections: Basic Science and Clinical Science. An outstanding Editorial Board reviews the literature and assigns topics and articles to world experts for comment. In addition, the Editors commission authoritative review articles on important subjects.
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