推进约旦儿科癌症治疗:十年战略路线图

IF 15.5 1区 医学 Q1 PEDIATRICS
Rawad Rihani MD MSc , Abdalla Awidi MD , Maha Barbar MD , Maher Mustafa MD , Laila Tutunji MD , Yaser Rayyan MD , Asem Mansour MD , Hikmat Abdel-Razeq MD , Iyad Sultan MD
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引用次数: 0

摘要

在这篇综述中,我们评估了约旦儿科癌症护理的现状,确定了提供最佳儿科癌症服务的关键差距、障碍和挑战,并提出了有针对性的、可操作的解决方案。我们概述了一份全面的十年路线图,以推进约旦的儿科癌症治疗,该路线图是由国家儿科肿瘤学和公共卫生专家制定的。该路线图强调以患者为中心的整体方法,优先考虑为儿童提供公平、可获得和高质量的护理。该路线图涵盖了从早期发现和诊断到治疗、生存和姑息治疗的整个癌症护理连续体,强调对家庭的社会心理支持。关键优先事项包括能力建设、标准化治疗方案和循证实践,以及社区参与,以提高对癌症的认识并减少耻辱感。在这一路线图中,我们还强调了创新疗法、扩大研究能力和劳动力发展的必要性,以解决癌症儿童的独特需求。拟议的共识驱动监测系统将确保约旦儿科肿瘤学服务的可持续实施和进展。有关摘要的阿拉伯语翻译,请参阅补充资料部分。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Advancing paediatric cancer care in Jordan: a strategic 10-year roadmap
In this Review, we assess the current landscape of paediatric cancer care in Jordan, identifying crucial gaps, barriers, and challenges in delivering optimal paediatric cancer services, and propose targeted, actionable solutions. We outline a comprehensive 10-year roadmap for advancing paediatric cancer care in Jordan, which was developed by national experts in paediatric oncology and public health. The roadmap emphasises a holistic, patient-centred approach that prioritises equitable, accessible, and high-quality care for children. Spanning the entire cancer care continuum, from early detection and diagnosis to treatment, survivorship, and palliative care, the roadmap emphasises psychosocial support for families. Key priorities include capacity building, standardised treatment regimens, and evidence-based practices, as well as community engagement to promote cancer awareness and reduce stigma. In this roadmap, we also highlight the need for innovative therapies, expanded research capacity, and workforce development to address the unique needs of children with cancer. A proposed consensus-driven monitoring system will ensure sustainable implementation and progress in paediatric oncology services in Jordan.

Translation

For the Arabic translation of the abstract see Supplementary Materials section.
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来源期刊
Lancet Child & Adolescent Health
Lancet Child & Adolescent Health Psychology-Developmental and Educational Psychology
CiteScore
40.90
自引率
0.80%
发文量
381
期刊介绍: The Lancet Child & Adolescent Health, an independent journal with a global perspective and strong clinical focus, presents influential original research, authoritative reviews, and insightful opinion pieces to promote the health of children from fetal development through young adulthood. This journal invite submissions that will directly impact clinical practice or child health across the disciplines of general paediatrics, adolescent medicine, or child development, and across all paediatric subspecialties including (but not limited to) allergy and immunology, cardiology, critical care, endocrinology, fetal and neonatal medicine, gastroenterology, haematology, hepatology and nutrition, infectious diseases, neurology, oncology, psychiatry, respiratory medicine, and surgery. Content includes articles, reviews, viewpoints, clinical pictures, comments, and correspondence, along with series and commissions aimed at driving positive change in clinical practice and health policy in child and adolescent health.
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