了解注意缺陷/多动障碍儿童家长的披露决定。

IF 2.3 3区 医学 Q2 PSYCHIATRY
Irene Mateo-Arriero, Yael Perry, Jeneva L Ohan
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引用次数: 0

摘要

患有注意力缺陷/多动障碍(ADHD)儿童的父母经常代表他们的孩子做出关于ADHD的公开决定。虽然披露信息可以促进获得支持,但也有被污名化的风险。尽管多动症是最常见的神经发育疾病之一,但很少有人知道父母在孩子多动症诊断或药物使用方面的经验。本研究旨在了解ADHD患儿父母的决策过程。15位家长完成了半结构化的访谈,内容是关于他们做出这些决定的生活经历。采用自反性主题分析对数据进行分析。从“考虑告诉谁”开始,组织了五个主题来遵循父母的决策过程,然后是反映不同披露目标的主题:造福孩子、管理耻辱、获得支持和表达身份。调查结果强调,在这一决策过程中,缺乏对父母的支持,也没有机会开发出在未来提供这种支持的方法。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Understanding Disclosure Decisions in Parents of Children with Attention Deficit/Hyperactivity Disorder.

Parents of children with attention-deficit/hyperactivity disorder (ADHD) often make disclosure decisions about their child's ADHD on their behalf. While disclosure can facilitate access to support, it risks stigma. Despite ADHD being one of the most common neurodevelopmental conditions, little is known about parent's experiences in relating information about their child's ADHD diagnosis or medication use, to others. This study aimed to understand this decision-making process in parents of children with ADHD. Fifteen parents completed semi-structured interviews about their lived experience of making these decisions. Reflexive thematic analysis was used to analyse the data. Five themes were organised to follow parents' decision-making process, starting with 'consider who to tell', followed by themes reflecting different disclosure goals: benefit the child, manage stigma, access support, and express identity. Findings highlighted a lack of support for parents through this decision-making process, and the opportunity to develop ways to provide this support in the future.

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来源期刊
CiteScore
0.50
自引率
3.40%
发文量
174
期刊介绍: Child Psychiatry & Human Development is an interdisciplinary international journal serving the groups represented by child and adolescent psychiatry, clinical child/pediatric/family psychology, pediatrics, social science, and human development. The journal publishes research on diagnosis, assessment, treatment, epidemiology, development, advocacy, training, cultural factors, ethics, policy, and professional issues as related to clinical disorders in children, adolescents, and families. The journal publishes peer-reviewed original empirical research in addition to substantive and theoretical reviews.
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